mobility
Join the Conversation on
477 people
0 stories
37 posts
What's New in
All
Stories
Posts
Videos
Latest
Latest
Trending
Post
See full photo
MY CAT IS MY LIFESAVER
Honey, my 1 yr old cat, is my 24/7 companion. cats are just purrr-fect for ppl with #mobility issues &/or get hospitalized from time to time. Cats, unlike dogs, go to the bathroom indoors, don't have to be walked, & can be left alone short-term in the event of #Hospitalization .
Post
Spine and mobility
I’m new here. Interested in #spinal #Fusion #mobility #Neuropathy
#FootDrop content and connections
Post
See full photo
Happily surprised in a Museum #NZ #mobility #PosturalOrthostaticTachycardiaSyndrome
Enjoying my holiday and was happily surprised when I visited the Canterbury Museum in Christchurch today. An good prepared route for people with mobility issues to see everything without searching and asking for elevators and directions
3 reactions Post
Crutches for mibility
Hi all. As my pain seems to be getting worse, especially in my mid and lower back, I am wondering if any of you have found crutches helpful? I have a walking stick, which I so use but find it causes muscle tension on the side I use it. Not quite ready ro go full time with a wheelchair ( though I do use it on days out etc) thanks all x #Fibromyalgia #degenerative disc disease #mobility
16 reactions •
6 comments
Post
Sleep Deprived EEG Tests
I’m going to be having an eeg test soon for the first time. I just found out its a sleep deprived one.
Have you had this test and can you tell me your experience with it? I’m wondering why the neurologist ordered this kind (sleep deprived) specifically.
Did it get you and your doctors closer to proper diagnosis? #EEG #testing #Nerve and joint pain #neurologist #Diagnosis #mobility #Tinnitus #Epilepsy #ChronicPain
32 comments
Post
See full photo
What I need to remember when I bow out of summer activities.
#Heat #Fatigue #mobility #MultipleSclerosis #Depression #newlydiagnosed #MightyTogether #ChronicIllness #Disabilities #Caregiving #Disability #Support
3 comments
Post
Making an apartment more accessible?
I was finally awarded disability and I’m trying to stock up on helpful items. I have hypermobile Ehlers Danlos, POTS, and a few other things that limit my mobility. I have a shower chair and that’s about it. Anything you’ve done that has been helpful for you for mobility?
8 comments
Post
How much do you push your body when in an effort to fight for mobility you can’t control the nerve pain or the muscle spacticity and spasms?
I’m living with chronic intense spine pain with nerve damage and muscle atrophy in my lower body. Just a few weeks ago I was in a wheelchair for eleven days straight and could not walk at all. I haven’t been able to do anything besides the bare basics of caring for myself and my pup. Yes, the bare basics. I’m not in a wheelchair right this minute but I cannot walk without my rollator or walker with my attached cane. It’s been that way for a long time now, years.
Anyway, I’m trying to walk (via walker) and track my steps, push myself a little more each day.
The pain, burning and numbness take over my body and I have to stop repeatedly to bend my spine forward and relieve the pain and pressure, ease the burning. It’s horrible and the pain sucks but still, I want my life back and I’m not going down without a whole lot more fighting (again). Yes, I’ve been living with chronic pain my entire adult life, so it’s been an ongoing battle for years.
The problem I’m having right now and daily is: when I’m pushing for mobility and trying to save my lower body (mid spine to feet) from being permanently paralyzed I’m fighting nerve damage that only relieves with ice for hours (mid to low spine and bum and hips) but muscle spasms that only relieve with heat (legs/feet).
Just exactly how much muscle spasms/spasticity is too much and how do I know if I’m pushing way too much or just not enough? I’m really not knowing and I know if I don’t keep fighting and just stay in whats comfortable and least painful I won’t be out of the wheelchair very long. Any tips, advice? I welcome them all please. This pain is making me a little bit nuts and I’m using ice and heat at the same time to combat the different parts and symptoms on my lower body. I’m exhausted and frustrated to say the least. #ChronicPain #FailedBackSurgery #Nervedamage #DDD #Osteoarthritis #spinestimulator #migratedleadwire #Exercise #Neuropathy #MuscleWasting #Tremors #numb #tingling #Burning #Spasticity #musclespasms #mobility #Fibromyalgia
12 comments
Post
See full photo
I’m so glad to finally be back after the most #traumatic year!
I have been a contributor for some time and I can’t believe I’ve only written two articles! I have had #MyalgicEncephalomyelitis for 12 years, I am severely affected - housebound and bed/sofa bound. I developed #Gastroparesis 5 years ago. I used to be a regular figure in the M.E community (you might know me from my books!) but when my husband and I started our own business around 2019 all of my energy was put into that. So much has happened. In April 2021 I was diagnosed with #GeneralizedAnxietyDisorder then two days later my brother broke my heart by walking out of my life, choosing to believe his girlfriend (who has previous!) over his big sister who he always said was his second Mum. This ripped my world apart. The shock… the disbelief.. because as siblings we were so close. I couldn’t have imagined it in a million years. Long story short I fell into a deep depression, for about 3-4 months. Wasn’t working, wasn’t really even living. All of this on top of #SevereME is a hell I wouldn’t wish on anyone. My husband and I lost a lot that year. We are still picking up the pieces. I I have been a contributor for some time and I can’t believe I’ve only written two articles! I have had #MyalgicEncephalomyelitis for 12 years, I am severely affected - housebound and bed/sofa bound. I developed #Gastroparesis 5 years ago. I used to be a regular figure in the M.E community (you might know me from my books!) but when my husband and I started our own business around 2019 all of my energy was put into that. So much has happened. In April 2021 I was diagnosed with #GeneralizedAnxietyDisorder then two days later my brother broke my heart by walking out of my life, choosing to believe his girlfriend (who has previous!) over his big sister who he always said was his second Mum. This ripped my world apart. The shock… the disbelief.. because as siblings we were so close. I couldn’t have imagined it in a million years. Long story short I fell into a deep depression, for about 3-4 months. Wasn’t working, wasn’t really even living. All of this on top of #SevereME is a hell I wouldn’t wish on anyone. My husband and I lost a lot that year. We are still picking up the pieces. I deteriorated significantly with my #CognitiveIssues & #mobility and I won’t lie, I’m a mess. After coming out of a 6 month long #Gastroparesis flare I can now try and get the help I need. Anyways that was a super long essay but I can’t wait to write another article, and having been away from #Spoonie friends for so long, I forget that there are people who care. Sending love and hugs to anyone who needs it right now. Hay xxxxxx
2 comments
