Optic Neuritis

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Optic Neuritis
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I’m new here!

Hi, my name is Christine. I'm here because I have been diagnosed with #OpticNeuritis and #relapsingremitingmultiplesclerosis.
A family member directed me to look up MS Societies in my local area and fell upon #nationalmssociety where I found #MightyTogether .

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I'm new here!

Hi, my name is Bagofcatsemily80. I'm here because I am reaching my 3 year mark from the day I was hospitalized for acute blindness (optic neuritis). At the time the neurology staff, mainly newly posted med students were very focused on an MS diagnosis and ruling out another more debilitating form I think it was NM. In the end my vision was restored after 3 days on IV solumedrol. I was given no diagnosis and followed up with both neuro-opthamologist and neurologist.

the thing is, my blindness episode began to take root on the last week of a 3 week stay in a beach cottage that was infested with ticks. It was in Orient, NY which just so happens to be a short boat ride Lyme, CT. At the hospital my Lyme tests were negative. I still to this day believe it was a tick bite.

I do not believe this was my first encounter with tick bites either. As a young girl, I spent 12 endless summers running through the woods of an area of Pennsylvania known for its dense deer and tick population.

I get migraines nearly every afternoon on both sides of the bridge of my nose, I have to lock myself in a cold dark room because it’s not the just the light but unbearable sound of my lovely family’s voices that can make me mean. I use a Neil sinus rinse bottle because it feels like there are rocks in my sinuses, after I use the Flonase. I have sinusitis but I keep erupting into hot burning hives from antibiotics that previously were fine to take. On these migraine days my anxiety sky rockets, my knees burn up and ache and stomach gurgles and cramps. A little while later, I have an intense need to vomit or otherwise. After this last event, I usually feel light, almost giddy as I drift off in a very sweaty deep sleep.

am I just being bullheaded about my Lyme’s speculation?

#MightyTogether #Migraine

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I'm new here!

Hi, my name is donnyrecovery. I'm here because
I have optic neuritis and lesions on my brain but I'm currently undiagnosed and in limbo and very scared#MightyTogether #MultipleSclerosis

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I’m new here!

Hi, my name is MummyTut82. I've been diagnosed with so many illnesses diseases that at age 40 and Mum of 3 darling children, I have lost all quality of life and I'm scared of myself honestly.. For I can't keep just 'existing' like this and I know it is destroying my children's hearts watching me so sick ... it breaks me more every minute coz I honestly believe they shouldn't have to see Mummy this way anymore it isn't fair on them... #icantdothis😮‍💨 #heartbroken💔 #idontwanttoleavemybabies😪 #itisjustfartoomuchtohandle💔

#MightyTogether #PTSD #Fibromyalgia #Anxiety #Depression #ADHD #OCD #Grief #Leukemia #FunctionalMovementDisorder #DiabetesType2 #Cancer #RheumatoidArthritis #OpticNeuritis #NeurocardiogenicSyncope #DemyelinatingNeuropathies #CeliacDisease #InappropriateSinusTachycardia #congenitalheartdefect/Disease #BirthDefect #IronDeficiencyAnemia #Arthritis #ArteriovenousMalformation #SuicidalThoughts #chronicactiveepstein-BarrVirus #ChronicIllness #polycysticovarysyndrome(PCOS) #Hyperparathyroidism #ThyroidCancer #Cardiomyopathy #CardiovascularDisease #CongenitalVascularCavernousMalformations

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State of Unbelief… #FND ? #nowayihavethat !

Hi! 😃💜💜
I’m new to the group!

Hope all of you are having a good day today! 😊💟

As the title states… I did NOT believe it when I received the #FNDdiagnosis !

I’m still having trouble grasping my neuros assessment of all my conditions & symptoms!….

Since I’ve been dealing with ALL my NEURO health issues since 2013 & she just met me last year!

— Can’t stand narrow minded tunnel vision non proactive & non helpful doctors! — #timetochangeneuros

Anybody else try to “forget” all their diagnosis ON THE DAILY??!!
— because it’s just too overwhelming & creates anxiety?

I try most days to push myself beyond the EXTREME pain & numerous symptoms & focus on ANYTHING ELSE to take my mind off my daily struggles & I’m sure you ALL do some of the same things!

— That’s it! lol 😜😎🥰

I hope each of you find JOY in your lives DAILY!😁😘

#HEDS #POTS #IIH #RheumatoidArthritis #DevicsDisease #wheelchairbound4x #OpticNeuritis #DoubleVision
#gastreoparesisSUCKS !! #PituitaryTumor #Diabetes #HBP #Asthma #COPD
#Anxiety #Depression #NeurogenicBladder #chronicUTIS #KidneyStones #toomanypillstotake !
#toomanydiagnosis !


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Advice for dating when newly diagnosed?

I was just diagnosed last month after a hospital stay for optic neuritis and have been out of work for 2 months while I recovered and started treatment (Ocrevus, second half dose next week). I've also been trying to date but just don't know how to do it right now. I feel like my MS is the only thing I have to talk about because it's the only thing I have going on and I still feel so crappy most days. It's also in the back of my head that I don't have much of a support system here and I need help and am going to need even more help in the future. I'm mobile right now but have had bouts of total lower body numbness that makes me concerned. I don't want someone I just started dating to immediately feel the pressure I guess.. or be with someone who feels like they are doing charity work being with me.

Would love any inspiring stories of meeting your person after diagnosis and any perspectives on the matter.


I'm new here!

Hi, my name is Thayette. I was diagnosed with MS a little over two years ago, when I had a sudden onset of optic neuritis in my right eye. My mother had the same symptom, decades ago, and it still took years more for her to be diagnosed. It's probably for this reason that I wasn't surprised when I heard the MRI results.
Treatment has been patchy due to my abysmal financial situation and a lack of available support, so I find I'm having more and more frequent relapses. Not to mention I only just recently (partially?) recovered from an extremely nasty case of COVID. Surely that made it worse.
I'm just feeling so alone right now, and so frustrated. My body is a prison that I can barely force to perform basic functions. Before 3 weeks ago this would have taken me maybe 15 minutes to type. It's taken me an hour at least.
I've had a really horrible week. This wall of text has already gone on far too long, so thank you. I just needed somewhere I could vent to others who might understand.

#MightyTogether #Anxiety #Depression #ADHD #MultipleSclerosis


Is self denial a thing with MS?

Hey, new here. I've seen specialists and found it very hard to get answers.
I have diagnosed optic neuritis and had varying other symptoms such as: numb left foot- worse with excersize and stress. Tight neck muscles feeling like they cramp and hold for days at a time. Cognitive funtion- putting sentences together pausing regulary because of the struggle with remembering words.
After 3 years of being f***** around, scans and blood still say nothing with continuous symptoms.
I work full time and just hide my symptoms at work. It's made a big part of me really doubt and question myself and lose alot of confidence I had. #MS