Optic Neuritis

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Optic Neuritis
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    State of Unbelief… #FND ? #nowayihavethat !

    Hi! 😃💜💜
    I’m new to the group!

    Hope all of you are having a good day today! 😊💟

    As the title states… I did NOT believe it when I received the #FNDdiagnosis !

    I’m still having trouble grasping my neuros assessment of all my conditions & symptoms!….

    Since I’ve been dealing with ALL my NEURO health issues since 2013 & she just met me last year!

    — Can’t stand narrow minded tunnel vision non proactive & non helpful doctors! — #timetochangeneuros

    Anybody else try to “forget” all their diagnosis ON THE DAILY??!!
    — because it’s just too overwhelming & creates anxiety?

    I try most days to push myself beyond the EXTREME pain & numerous symptoms & focus on ANYTHING ELSE to take my mind off my daily struggles & I’m sure you ALL do some of the same things!

    — That’s it! lol 😜😎🥰

    I hope each of you find JOY in your lives DAILY!😁😘

    #HEDS #POTS #IIH #RheumatoidArthritis #DevicsDisease #wheelchairbound4x #OpticNeuritis #DoubleVision
    #gastreoparesisSUCKS !! #PituitaryTumor #Diabetes #HBP #Asthma #COPD
    #Anxiety #Depression #NeurogenicBladder #chronicUTIS #KidneyStones #toomanypillstotake !
    #toomanydiagnosis !


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    Advice for dating when newly diagnosed?

    I was just diagnosed last month after a hospital stay for optic neuritis and have been out of work for 2 months while I recovered and started treatment (Ocrevus, second half dose next week). I've also been trying to date but just don't know how to do it right now. I feel like my MS is the only thing I have to talk about because it's the only thing I have going on and I still feel so crappy most days. It's also in the back of my head that I don't have much of a support system here and I need help and am going to need even more help in the future. I'm mobile right now but have had bouts of total lower body numbness that makes me concerned. I don't want someone I just started dating to immediately feel the pressure I guess.. or be with someone who feels like they are doing charity work being with me.

    Would love any inspiring stories of meeting your person after diagnosis and any perspectives on the matter.


    I'm new here!

    Hi, my name is Thayette. I was diagnosed with MS a little over two years ago, when I had a sudden onset of optic neuritis in my right eye. My mother had the same symptom, decades ago, and it still took years more for her to be diagnosed. It's probably for this reason that I wasn't surprised when I heard the MRI results.
    Treatment has been patchy due to my abysmal financial situation and a lack of available support, so I find I'm having more and more frequent relapses. Not to mention I only just recently (partially?) recovered from an extremely nasty case of COVID. Surely that made it worse.
    I'm just feeling so alone right now, and so frustrated. My body is a prison that I can barely force to perform basic functions. Before 3 weeks ago this would have taken me maybe 15 minutes to type. It's taken me an hour at least.
    I've had a really horrible week. This wall of text has already gone on far too long, so thank you. I just needed somewhere I could vent to others who might understand.

    #MightyTogether #Anxiety #Depression #ADHD #MultipleSclerosis

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    17 years until a diagnosis

    Optic neuritis, extreme nerve sensitivity, numbness, wandering eye, numb butt (really) and all kinds of doctors and testing – Spencer is such an authentic voice talking about his own zigzag journey with MS. www.youtube.com/watch

    Every #myMSstory is powerful. What's yours?

    #multiplesclerosis #selfadvocacy #newlydiagnosed #MightyTogether #ChronicIllness #Disabilities #Disability #Support

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    Is self denial a thing with MS?

    Hey, new here. I've seen specialists and found it very hard to get answers.
    I have diagnosed optic neuritis and had varying other symptoms such as: numb left foot- worse with excersize and stress. Tight neck muscles feeling like they cramp and hold for days at a time. Cognitive funtion- putting sentences together pausing regulary because of the struggle with remembering words.
    After 3 years of being f***** around, scans and blood still say nothing with continuous symptoms.
    I work full time and just hide my symptoms at work. It's made a big part of me really doubt and question myself and lose alot of confidence I had. #MS


    I’m new here!

    Hi, my name is Missy. I'm here because sometimes we all need to talk with someone who understands and "gets it."

    #MightyTogether #MultipleSclerosis #Anxiety #Depression #BipolarDisorder #PTSD #Migraine #BenignParoxysmalPositionalVertigo #TrigeminalNeuralgia #OpticNeuritis


    Phosphenes (Seeing Stars)

    Anyone know much about Phosphenes? Have had a few episodes. My eyes are open, and little lines are moving like shooting stars. Lasts 5 to 10 seconds, but they are bright and vivid. #OpticNeuritis #Undiagnosed #ChronicIllness #PeripheralNeuropathy #ChronicPain #Migraine #Hypertension #MultipleSclerosis


    What would it be like

    How’s it going to be when I walk and talk a little faster
    How would it be going up and down stairs in a breeze
    And walking in the park
    How would it be
    walking hand-in-hand around the mall and around town
    Opening doors for you and pulling out your chair
    How’s it going to be
    Not falling and meeting the floor again and again
    Raising fear and being picked up
    How would it be
    Without a wheelchair
    Without a walker
    Without a cane
    How would it be with no PT, OT and physiologist needed
    How would it be
    With clear vision and no optic neuritis
    no TN pain
    No spasticity
    How would it be
    With no sudden urgency and
    No tremors and Eating with your dominant hand smoothly
    No sitting breaks all the time
    How would it be
    Carrying in groceries and putting them away
    No walker with a tray
    How would it be
    With no wife working three jobs In hopes to make ends meet
    How would it be
    Not being carried and helped up and down stairs
    How would it be
    Not needing medication to manipulate your immune system
    To have your body not attack itself
    How would it be
    with no pillow between your knees and walking straight
    Going to sleep with no fear of getting worse
    How would it be
    Not to need a reacher and to bend down without your knees coming together
    How would it be
    Not to furniture and wall surf
    But have great balance instead
    How would it be
    Not to have cold and heat sensitivity
    To drive again
    How would it be
    With no MS
    Cause I wouldn’t know