Optic Neuritis

Hi, my name is Kat_ire. I'm here because

#MightyTogether #COVID19 #Anxiety #EatingDisorder #PTSD #OpticNeuritis

I was just diagnosed last month after a hospital stay for optic neuritis and have been out of work for 2 months while I recovered and started treatment (Ocrevus, second half dose next week). I've also been trying to date but just don't know how to do it right now. I feel like my MS is the only thing I have to talk about because it's the only thing I have going on and I still feel so crappy most days. It's also in the back of my head that I don't have much of a support system here and I need help and am going to need even more help in the future. I'm mobile right now but have had bouts of total lower body numbness that makes me concerned. I don't want someone I just started dating to immediately feel the pressure I guess.. or be with someone who feels like they are doing charity work being with me.

Would love any inspiring stories of meeting your person after diagnosis and any perspectives on the matter.

Hi, my name is Thayette. I was diagnosed with MS a little over two years ago, when I had a sudden onset of optic neuritis in my right eye. My mother had the same symptom, decades ago, and it still took years more for her to be diagnosed. It's probably for this reason that I wasn't surprised when I heard the MRI results.
Treatment has been patchy due to my abysmal financial situation and a lack of available support, so I find I'm having more and more frequent relapses. Not to mention I only just recently (partially?) recovered from an extremely nasty case of COVID. Surely that made it worse.
I'm just feeling so alone right now, and so frustrated. My body is a prison that I can barely force to perform basic functions. Before 3 weeks ago this would have taken me maybe 15 minutes to type. It's taken me an hour at least.
I've had a really horrible week. This wall of text has already gone on far too long, so thank you. I just needed somewhere I could vent to others who might understand.

#MightyTogether #Anxiety #Depression #ADHD #MultipleSclerosis

Hey, new here. I've seen specialists and found it very hard to get answers.
I have diagnosed optic neuritis and had varying other symptoms such as: numb left foot- worse with excersize and stress. Tight neck muscles feeling like they cramp and hold for days at a time. Cognitive funtion- putting sentences together pausing regulary because of the struggle with remembering words.
After 3 years of being f***** around, scans and blood still say nothing with continuous symptoms.
I work full time and just hide my symptoms at work. It's made a big part of me really doubt and question myself and lose alot of confidence I had. #MS

Hi, my name is Missy. I'm here because sometimes we all need to talk with someone who understands and "gets it."

#MightyTogether #MultipleSclerosis #Anxiety #Depression #BipolarDisorder #PTSD #Migraine #BenignParoxysmalPositionalVertigo #TrigeminalNeuralgia #OpticNeuritis

Hi, my name is charliwheeler. I’m new to The Mighty and look forward to sharing my story.

#MightyTogether

#Depression

#Migraine

#EhlersDanlosSyndrome

#InappropriateSinusTachycardia

#Dysautonomia

#CentralPainSyndrome

#NeurocardiogenicSyncope

#OpticNeuritis

#ObstructiveSleepApneaHypopnea

#ChronicDailyHeadache

#FamilialHemiplegicMigraine

Anyone know much about Phosphenes? Have had a few episodes. My eyes are open, and little lines are moving like shooting stars. Lasts 5 to 10 seconds, but they are bright and vivid. #OpticNeuritis #Undiagnosed #ChronicIllness #PeripheralNeuropathy #ChronicPain #Migraine #Hypertension #MultipleSclerosis

How’s it going to be when I walk and talk a little faster
How would it be going up and down stairs in a breeze
And walking in the park
How would it be
walking hand-in-hand around the mall and around town
Opening doors for you and pulling out your chair
How’s it going to be
Not falling and meeting the floor again and again
Raising fear and being picked up
How would it be
Without a wheelchair
Without a walker
Without a cane
How would it be with no PT, OT and physiologist needed
How would it be
With clear vision and no optic neuritis
no TN pain
No spasticity
How would it be
With no sudden urgency and
No tremors and Eating with your dominant hand smoothly
No sitting breaks all the time
How would it be
Carrying in groceries and putting them away
No walker with a tray
How would it be
With no wife working three jobs In hopes to make ends meet
How would it be
Not being carried and helped up and down stairs
How would it be
Not needing medication to manipulate your immune system
To have your body not attack itself
How would it be
with no pillow between your knees and walking straight
Going to sleep with no fear of getting worse
How would it be
Not to need a reacher and to bend down without your knees coming together
How would it be
Not to furniture and wall surf
But have great balance instead
How would it be
Not to have cold and heat sensitivity
To drive again
How would it be
With no MS
Cause I wouldn’t know