Polycystic Ovary Syndrome (PCOS)

Join the Conversation on
Polycystic Ovary Syndrome (PCOS)
12.2K people
0 stories
1.1K posts
About Polycystic Ovary Syndrome (PCOS)
Explore Our Newsletters
What's New in Polycystic Ovary Syndrome (PCOS)
All
Stories
Posts
Videos
Latest
Trending
Post

Too many to list...

My body is a contradiction, constantly. Hypermobile yet stiff as a board at times. When my vision goes out I rely on my peripherals to see and and ambulate. SFN. I will have intense nerve pain in my upper arms that will cause my wrists to loose feeling (everything else is fine), arms must remain at least 90° and proximal to my waist, it also limits my strength and duration. Fight or flight can 💋my🍑. Don't get me started with the gut and stomach fun. 😆
It's one thing having 1 or 2 of the conditions but then start adding the others and mixing them in completely different playing fields with totally different dynamics...😥
Dx: Dysautonomia, POTS, SFN, Fibromyalgia, hypothyroidism that reversed, PCOS, ADHD, MDD, PTSD/trauma, anxiety, more

6 reactions 2 comments
Post

Doing more than I should…

I have done a lot today. And I mean A LOT! Way more than I should have done. I feel certain I am going to pay for it the rest of the week. But sometimes things just have to get done. Everyone in my household has their own issues. So, we all struggle. I wish I had enough money to pay for some help….but I can’t…so I just have to keep pushing.
#PolycysticOvarySyndrome
#ChronicFatigueSyndrome
#Migraine
#Sarcoidosis
#HypothyroidismUnderactiveThyroidDisease

17 reactions 3 comments
Post

I'm new here!

People's Advocates for Total Health works to provide advocacy and connections to better health in communities across the United States. Our original focus was Ehlers Danlos Syndrome, but we now support doctors, coaches, advocates, and educators in supporting invisible and chronic illnesses in every way possible. Right now we are spearheading a fundraiser to provide 300 families with genetic testing for EDS. To donate or find out more, reach out or go to www.path2betterhealth.org. #MightyTogether #Dysautonomia #Dysphagia #EhlersDanlosSociety #EhlersDanlosSyndrome #chron #PolycysticOvarySyndromePCOS #InflammatoryBowelDiseaseIBD #Infertility #LymphomaNonHodgkin

Post

I'm new here!

People's Advocates for Total Health works to provide advocacy and connections to better health in communities across the United States. Our original focus was Ehlers Danlos Syndrome, but we now support doctors, coaches, advocates, and educators in supporting invisible and chronic illnesses in every way possible. Right now we are spearheading a fundraiser to provide 300 families with genetic testing for EDS. To donate or find out more, reach out or go to www.path2betterhealth.org. #MightyTogether #Dysautonomia #Dysphagia #EhlersDanlosSociety #EhlersDanlosSyndrome #chron #PolycysticOvarySyndromePCOS #InflammatoryBowelDiseaseIBD #Infertility #LymphomaNonHodgkin

Post

Medical care too expensive

How many people have trouble affording the doctor? I literally had to cancel appointments because I already owe so much. My freaking deductible is $6000, which is just crazy. Some things covered before then but not much 🤦‍♀️. It is so frustrating. #Doctor #doctorappoinment
#Finances
#PolycysticOvarySyndrome #Sarcoidosis #Headache #Migraine #ChronicFatigue

31 reactions 9 comments