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The Mighty Staff
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Polymyalgia Rheumatica
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Living With Polymyalgia Rheumatica (PMR): Patient Insights for the Newly Diagnosed

NewIf you’ve recently been experiencing symptoms or have been diagnosed with polymyalgia rheumatica (PMR), you’re not alone. PMR is an inflammatory disorder characterized by muscle pain and stiffness, particularly in the shoulders and hips. It affects around 1 in 2,000 people aged 50 and above, with women more likely to be affected. The risk of [...]
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mcoye1993
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Rare Disease
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I Won’t Let My CIDP Diagnosis Take Away My Dreams

Think about your senior year of high school. Does prom come to mind? At the start of my senior year, 17-year-old me highly anticipated prom night. When I went dress shopping, I had my best friend with me — along with my physical and occupational therapists — because putting on dresses was my “therapy” that [...]
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The Mighty Staff
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Rare Disease
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Advice for Adults Seeking a Rare Disease Diagnosis

NewThe journey to receiving a rare disease diagnosis later in life, also known as a late-onset diagnosis, can be a bumpy one (and that’s putting it nicely). To help you navigate this road, we asked our rare community to share their advice for others who are similarly searching for answers.  Here’s some advice that’s helped [...]
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Mighty Partners
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Rare Disease
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An Accidental Cerebral Cavernous Malformation Diagnosis

NewI discovered I had cerebral cavernous malformation (CCM) by chance. Earlier in the pandemic, I was in medical school and running a lot to relieve stress. When I returned home from my runs, I noticed my vision became bright, as if someone was shining a light into my eyes, which worried my mom and me. [...]
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Two kids hugging
Two kids hugging
Dr. Neena Nizar
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Rare Disease
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When Your Child With a Rare Disease Doesn’t Feel Brave

Have you ever done something that you knew was the right thing to do, but you were scared to do it? Or maybe you did something that looked hard, but you decided to try it. That is courage in action and you probably felt very good about what you did. And you should! Courage shows [...]
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Close up shot of woman eye looking at camera
Close up shot of woman eye looking at camera
Glenda McCoy
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Rare Disease
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How My Daughter's Rare Disease Opened My Eyes

When my daughter was first (mis)diagnosed with a rare disease in 2013, not only was I utterly devastated by the news that she had a progressive disease, but I was also shocked beyond reason by the realization that such a disease even existed in the first place. That moment was reality-altering. In fact, I remember very little from that day, except [...]
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Tierra Drollinger
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@tierradrollinger23
AmplifiedMusculoskeletalPainSyndrome 19h
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Mmhmm!! 🙌 If a treatment or cure came along you would want to be there for it. Don't give up, you are NOT alone in this!!

#AmplifiedMusculoskeletalPainSyndrome #Arthritis #Asthma #AnkylosingSpondylitis #Anxiety #bedbound #BoneSplints #ChronicFatigueSyndrome #CheckInWithMe #ChronicPain #ChronicIllness #ComplexRegionalPainSyndrome #Depression #Disability #DistractMe #EhlersDanlosSyndrome #Endometriosis #Eczema #Fibromyalgia #GastroesophagealRefluxDisease #gallstones #Grief #HypothyroidismUnderactiveThyroidDisease #Hypersomnia #HighBloodPressure #Headache #Insomnia #Lymphedema #JuvenileRheumatoidArthritis #PosturalOrthostaticTachycardiaSyndrome #PTSD #Psoriasis #PsoriaticArthritis #plantarfasciitis #PanicAttack #PanicAttacks #Upallnight #MentalHealth #MemoryLoss #MightyTogether #Migraine #RareDisease #RheumatoidArthritis #musclespasms #MultipleAutoimmuneSyndrome #SuicidalThoughts

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Tierra Drollinger
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@tierradrollinger23
Christians on The Mighty 19h
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God keeps his promises. Just keep going, He will find a way ❤️

#AmplifiedMusculoskeletalPainSyndrome #Arthritis #Asthma #Anxiety #AnkylosingSpondylitis #bedbound #BoneSplints #ChronicFatigueSyndrome #CheckInWithMe #ChronicPain #ChronicIllness #ComplexRegionalPainSyndrome #Depression #Disability #DistractMe #EhlersDanlosSyndrome #Endometriosis #Eczema #Fibromyalgia #GastroesophagealRefluxDisease #gallstones #Grief #HypothyroidismUnderactiveThyroidDisease #Hypersomnia #HighBloodPressure #Headache #Insomnia #JuvenileRheumatoidArthritis #Lymphedema #PosturalOrthostaticTachycardiaSyndrome #PTSD #Psoriasis #PsoriaticArthritis #plantarfasciitis #PanicAttack #PanicAttacks #Psychosis #MentalHealth #MightyTogether #MemoryLoss #Migraine #RareDisease #RheumatoidArthritis #musclespasms #MultipleAutoimmuneSyndrome #SuicidalThoughts #Sleepwalking #Scoliosis #sciatica #ShinSplints

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Tierra Drollinger
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@tierradrollinger23
AmplifiedMusculoskeletalPainSyndrome 1d
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Watercolor with quote both by me.

If I told you I see the beauty in you, Would you begin to see it too?

Please feel free to comment!

Proof the hurricane was very very bad but not so bad that we gave up.

It was absolutely scary but soooooo blessed to have a house, candles, water, food, and that our power was turned on 2 days before we had estimated. Hallelujah for that my friends!!!

And I kept Rosie close so we would both stay safe if not melted from the insane heat in our area and with extra humidity. Yuck!

Just suck in some air but try not to choke as humidity tries to drown you 😅

I prayed and pray still that all of you can quickly get any help you need.

The best thing EVER was being able to cancel appointments from this week- whoop whooop!!! 🥳🤭

#AmplifiedMusculoskeletalPainSyndrome #Arthritis #Asthma #Anxiety #AnkylosingSpondylitis #bedbound #BoneSplints #Depression #Disability #DistractMe #EhlersDanlosSyndrome #ChronicFatigueSyndrome #CheckInWithMe #ChronicPain #ChronicIllness #ComplexRegionalPainSyndrome #Fibromyalgia #GastroesophagealRefluxDisease #Grief #HypothyroidismUnderactiveThyroidDisease #Hypersomnia #HighBloodPressure #Headache #JuvenileRheumatoidArthritis #Insomnia #Lymphedema #MentalHealth #MemoryLoss #MightyTogether #Migraine #PosturalOrthostaticTachycardiaSyndrome #PTSD #Psoriasis #PsoriaticArthritis #PanicAttack #PanicAttacks #plantarfasciitis #Psychosis #musclespasms #MultipleAutoimmuneSyndrome #CheerMeOn #Eczema #Upallnight #gallstones #MightyPets #WakingNightmares #Sleepwalking #RareDisease #RheumatoidArthritis #SuicidalThoughts #Scoliosis #sciatica #ShinSplints

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Thomas Ousterhout PhD
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@thomas_of_copenhagen
Conquer Your Mind 1d
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3 Tips to Manage Anxiety in the Moment

Hey everyone, as some of you know, I make video responses to many of the mental health questions you ask me. My last video was about 3 tips to help you manage anxiety in the moment. If this sounds relevant to you, you can check out the video here:

www.instagram.com/thomas_of_copenhagen

If you have any questions about mental health, please comment below and I will make a video response just for you.

~ Thanks to all. Thanks for all. ~

#MentalHealth #MentalHealth #Depression #Anxiety #BipolarDisorder #BorderlinePersonalityDisorder #Addiction #dissociativedisorders #ObsessiveCompulsiveDisorder #ADHD #Fibromyalgia #EhlersDanlosSyndrome #PTSD #Cancer #RareDisease #Disability #Autism #Diabetes #EatingDisorders #ChronicIllness #ChronicPain #RheumatoidArthritis #Suicide #MightyTogether

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