Rare Disease

I’ve been thinking a lot about the moments when I feel my best. I want to not only cherish those moments more, but also create more opportunities to be that version of myself.

For me, I feel like I’m my most authentic self when I’m home with my family, when I’m being creative or creating something, or when I’m sharing my mental health journey. I feel safe and calm in those moments.

What about you? When or where are you your best self?

#CheerMeOn #CheckInWithMe #MentalHealth #Disability #Anxiety #Depression #RareDisease #ChronicPain #ChronicIllness

When you’re searching for answers or an accurate diagnosis, there may be times when you have to see different types of medical professionals that can help you in your health journey. This can mean having to share your story and symptoms to multiple people — often times, over and over and over again — to find the one that’s right for your specific needs.

Whether it’s writing down detailed notes and questions for your appointments, sharing your medical history aloud, or pointing out specific symptoms that have been especially challenging for you, how do communicate your health concerns to new doctors?

What advice would you give to someone who is also undiagnosed?

#Undiagnosed #CheckInWithMe #ChronicPain #ChronicIllness #RareDisease #MentalHealth #Spoonie

Receiving a diagnosis can be a monumental relief, but what happens when the diagnosis doesn’t seem to match your experiences or expectations? Health care providers are not always right, and they don’t have all the answers (though sometimes they do!).

If you’ve ever been unsure or doubtful of a diagnosis you’ve received from a health care provider, have you seen another provider? What’s been your experience with getting a second opinion? Share your experiences in the comments below.

#Undiagnosed #Misdiagnosed #MightyMinute #CheckInWithMe #MentalHealth #Anxiety #Depression #ChronicPain #ChronicIllness #RareDisease #Disability #BipolarDisorder

Whether it’s with strangers, ourselves, or with people we know, we are constantly communicating with those around us. And, like many things in life, practice, familiarity, trust, and other factors can influence how accustomed and comfortable we are with that communication (some more than others).

Who do you communicate most effectively with in your life?

#52SmallThings #CheckInWithMe #Selfcare #MentalHealth #Disability #ChronicIllness #ChronicPain #RareDisease #Anxiety #Depression

Hello! My name is Corey Briskey and I am a neurodiversity-affirming advocate for disabled children and their families! I am a mother to a disabled child with multiple diagnoses ranging from Autism to Epilepsy and an unidentified genetic syndrome. I just want to help others feel less alone and help share my perspective to help new moms and caregivers that are going through what I went through!

I have also written a memoir on overcoming ableism and reclaiming motherhood and it is in the process of finding a home for future publishing! You can support me by following my on Instagram or subscribing to my blog. coreybriskey.com

#Disability #Autism #Neurodiversity #Parenting #Epilepsy #RareDisease

Accountability means carrying out the tasks and goals you’ve set for yourself, which can be challenging! How do you hold yourself accountable? Do you have any tips for others who may be struggling with accountability?

(And if you need a reminder: Accountability is not something you learn (or perfect) overnight.)

#CheckInWithMe #MentalHealth #Anxiety #Depression #ChronicPain #ChronicIllness #RareDisease #Disability #ADHD #Autism #Cancer #Parenting #Trauma #MightyMinute

It’s often not talked about how much chronic illnesses like A1AT can impact your mental and emotional well-being. We know how challenging it can be to balance your condition along with your other responsibilities, while also finding time to take care of your mental health. Having a rare disease can lead to feelings of isolation, depression, and anxiety as well.

But you don’t have to go through this alone. Maybe you’ve found a support group, or perhaps you’ve started taking medication or practicing mindfulness techniques. Whatever you do to support your mental health, share in the comments below. ⬇️

#RareDisease #A1TA #ChronicIllness #Caregiving #LiverDisease #LungDisease #ChronicPain

Can you put a bit of extra attention into remembering one of these today? It could be one that is easy for you, or one that is hard. Which one will you practice and why?

Finally, I'm so grateful for all of you and would love to get to know you all better outside of The Mighty, so if you're on Instagram, feel free to reach out at:

www.instagram.com/thomas_of_copenhagen

~ Thanks to all. Thanks for all. ~

Speaking of thanks for all, I was hoping we could acknowledge everyone who comments below. I know it seems like a small gesture, but many people here have never opened up to anyone before and being open and honest with strangers can be quite scary. So, if we could show our gratitude by giving their comment a simple reply or heart, I’m sure they would really appreciate your team support. What do you say?

#MentalHealth #Depression #Anxiety #BipolarDisorder #BorderlinePersonalityDisorder #Addiction #dissociativedisorders #ObsessiveCompulsiveDisorder #ADHD #Fibromyalgia #EhlersDanlosSyndrome #PTSD #Cancer #RareDisease #Disability #Autism #Diabetes #EatingDisorders #ChronicIllness #ChronicPain #RheumatoidArthritis #Suicide #MightyTogether #SchizophreniaSpectrumPsychoticDisorders