Rare Disease

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    True or False: I feel like my doctor listens to me and values my opinion.

    Mighty fam, we’ve heard from so many of you about the relationship you have with your doctor and how important it is. For some of you, your doctor is the only one who “gets” it. For others, communicating with your doctor is a frustrating experience.

    Share whether the above statement feels true or false to you in the comments below. (And if you feel up to it, tell us why!)

    #RareDisease #Parenting #Caregiving #Dwarfism #SkeletalDysplasia #Achondroplasia #ChronicPain

    5 reactions 2 comments
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    TRUE or FALSE: Forgiveness isn’t something you do for someone else, it’s something you do for you.

    I often hear the phrase, "If you’re forgiving someone, you’re doing it for yourself, not for the other person," and it gets me thinking every single time.

    From reflecting on my past relationships to my current ones, forgiveness has been a topic that I’ve struggled to fully understand, especially when it comes to recovering from trauma. Although I’ve come a long way in forgiving myself and others, I think about the role forgiveness plays in my healing journey and ways I can forgive more freely.

    What are your thoughts? How do you view forgiveness?

    #CheckInWithMe #MentalHealth #Depression #Anxiety #Fibromyalgia #EatingDisorders #BorderlinePersonalityDisorder #ADHD #ObsessiveCompulsiveDisorder #PTSD #BipolarDisorder #Disability #ChronicPain #ChronicIllness #RareDisease

    34 reactions 23 comments
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    What routines are important for you to include as you plan out your day?

    From waking up or going to bed at a certain time, taking a shower, writing a to-do list, or taking intentional time out for self-care and relaxation, including a few routines can be helpful in creating structure and consistency to our day-to-day schedules.

    What routines do you find important to include when you plan out your day? Why are those routines important?

    #52SmallThings #CheckInWithMe #Selfcare #MentalHealth #Disability #ChronicIllness #ChronicPain #RareDisease #Anxiety #Depression

    30 reactions 15 comments
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    7 days left
    Physical
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    Overcoming.

    How many people here believe in the power of themselves?

    ~ Thanks to all. Thanks for all. ~

    Speaking of thanks for all, I was hoping we could acknowledge everyone who comments below. I know it seems like a small gesture, but many people here have never opened up to anyone before and being open and honest with strangers can be quite scary. So, if we could show our gratitude by giving their comment a simple reply or heart, I’m sure they would really appreciate your team support. What do you say?

    #MentalHealth #Depression #Suicide #Anxiety #BipolarDisorder #BorderlinePersonalityDisorder #Addiction #dissociativedisorders #OCD #ADHD #Fibromyalgia #EhlersDanlosSyndrome #POTS #PTSD #Cancer #RareDisease #Disability #Autism #Diabetes #EatingDisorders #ChronicIllness #ChronicPain #RheumatoidArthritis #Schizophrenia #ComplexRegionalPainSyndrome

    142 reactions 20 comments
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    Have you found any books, shows, or movies that portray EDS well?

    Unfortunately, depictions of EDS in the media are rare, and are not always accurate.

    We’ve heard from our community how frustrating it is to see media perpetuating harmful or misleading stereotypes ("you’re so bendy!"), or how isolating it can be to not feel represented at all.

    Have you found any accurate or validating portrayals of EDS (whether in books, shows, movies, etc.)? Share with us below.

    #EhlersDanlosSyndrome #RareDisease #Hypermobility
    #ChronicIllnessEDS
    #HypermobileTypeEDS #ChronicIllness #ChronicPain #Spoonie #Fibromyalgia
    #MentalHealth #Anxiety #Depression

    4 reactions 5 comments
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    ✨ Have you checked out our "When Chronic Pain Comes to Work and School" Collection? ✨

    🔔 Ring Ring 🔔 Special delivery! 📦

    Are you navigating school or the workplace with chronic pain and need support, tips, tricks, or anything in between? If so, this collection is for you!

    themighty.com/topic/chronic-pain/collection/636e7c110d03f3002bb8b7c7

    P.S. As a reminder, Collections are like playlists, but for your health. Our editors have selected the best and most helpful of The Mighty just for you.

    #ChronicPain #ChronicIllness #RareDisease #CheckInWithMe #Fibromyalgia #EhlersDanlosSyndrome #RheumatoidArthritis #Migraine #PosturalOrthostaticTachycardiaSyndrome #Lupus #AutoimmuneDisease #Disability #InvisibleIllness #Spoonie #MentalHealth

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    What are your biggest challenges when it comes to planning ahead?

    To plan or not to plan... that is the question — and also happens to be the topic we will be exploring this week!

    We all know that living with a health condition (or several) can pose some unavoidable challenges, ones that can blow up and disrupt premeditated plans or schedules. It’s one of the hardest, trickiest variables to plan around, and this community knows that better than most.

    What is it like for you to plan ahead? What challenges often arise?

    #52SmallThings #CheckInWithMe #Selfcare #MentalHealth #Disability #ChronicIllness #ChronicPain #RareDisease #Anxiety #Depression

    65 reactions 21 comments