Rare Disease

Join the Conversation on
Rare Disease
234K people
0 stories
10.9K posts
About Rare Disease
Explore Our Newsletters
What's New in Rare Disease
See full photo

Reactions by Melanie R.

Reactions, Reactions.
Pulsed like contractions.
Not just the pain,
I’ve been through it;
in my body now all of these years.

Just then it hit me.
Wild fire and crippling.
Felt the burn as I waited,
and prayed in the dark suffering.
As My savior led the way,
because reactions were made.

Can’t hold it back now-not the same.
Don’t feel right being this way.
Passed through old familiar strains.
Flooded fields, fluttered gates.
Did my body betray?
When reactions were made.

Should’ve known it was coming,
Pointed straight to my trusting.
Would’ve loved this to heal me,
and soul-fire fill me, but reactions-
were no over-reaction.

As it raced through my veins;
He saved me from hurt, and the poisoning flame.
Rescued out of that day-
because reactions were made.

There He shared in the low,
And remains in control.
All my actions now praised-

‘cause reactions were made.

Started from a reaction,
New life put me in action-
I am healed through His Name!

#MitochondrialDisease #ChronicInflammatoryDemyelinatingPolyneuropathy #RareDisease #IrritableBowelSyndromeIBS #ChronicPain #ChronicIllness #InsideTheMighty #RheumatoidArthritis #MightyPoets

1 reaction
See full photo

What are your favorite compression sock brands?

I started wearing compression socks very regularly after I was diagnosed with lupus last summer. The only other times I had worn them were during extended hospital stays, so wearing them on a regular ’ol Tuesday was new for me.

To be honest, I’m mad at myself for resisting them for so long (or perhaps the right phrasing is that I didn't give them very much consideration). But as it turns out, if you get the right kind, they’re comfy! They help keep the swelling down! I can feel my legs all day! Cute patterns DO exist!

So I’m curious about brands you love and can’t live without. My favorite right now is Comrad because they have really soft, low compression options. But they’re not cheap, so I also like the brand fenglaoda for the bright animal prints and reasonable price point (if I’m going to wear them, I might as well have a good time, yes?).

What about you?

#Spoonie #ChronicPain #ChronicIllness #AutoimmuneDisease #POTS #Lupus #Fibromyalgia #EhlersDanlosSyndrome #RareDisease #Disability #RheumatoidArthritis

6 reactions 1 comment
See full photo

What daily task do you dread most?

Let’s get right into it: If Mighty staffer @xokat never had to cook dinner or figure out what her household was eating for another meal in the history of her lifetime… she’d take it. There is simply no other task or responsibility that drains her more, both physically and mentally. (Which is saying something, considering she actually enjoys to cook. Perhaps it’s the daily requirement that’s a bother?)

What’s that task for you? Which one do you dread each day?

#MightyMinute #CheerMeOn #MentalHealth #Anxiety #Depression #ChronicPain #ChronicIllness #Disability #RareDisease #Caregiving #Autism #ADHD

114 reactions 31 comments

I'm new here!

Hi, my name is ReedtamS. I'm here because I want to learn more about my diseases and conditions. Like many people with rare diseases, I accumulated over 30 diagnoses before I was diagnosed with Pulmonary Arterial Hypertension, and a few more since then. Along with all of those diagnoses are the medications to treat them. I take over 35 medications every day. I am trying to live my best life, and educate myself so that I can advocate for myself.

#MightyTogether #Anxiety #Depression #Fibromyalgia #PulmonaryArterialHypertension #MixedConnectiveTissueDiseaseMCTD #IdiopathicPulmonaryFibrosis #Arthritis #AntiphospholipidSyndrome #Hypertension #HypothyroidismUnderactiveThyroidDisease

8 reactions 6 comments
See full photo


If you had to wait for everything to be in place before you were able to find peace, there would be no point in mental health exercises. You need to find peace in the moment despite the constant flow of obstacles and challenges in your life. How do you practice peace in the face of obstacles?

As a way to better share advice with you all, I make video responses to your mental health questions.

The last video I made was about what to do if you define yourself by your mental health challenges and how to move forward. If this sounds relevant to you, you can check out the video here:


Otherwise, if you have any questions about mental health, please post in my group and I will try to make a video response specifically for you.

~ Thanks to all. Thanks for all. ~

Speaking of thanks for all, I was hoping we could acknowledge everyone who comments below. I know it seems like a small gesture, but many people here have never opened up to anyone before and being open and honest with strangers can be quite scary. So, if we could show our gratitude by giving their comment a simple reply or heart, I’m sure they would really appreciate your team support. What do you say?

#MentalHealth #MentalHealth #Depression #Anxiety #BipolarDisorder #BorderlinePersonalityDisorder #Addiction #dissociativedisorders #ObsessiveCompulsiveDisorder #ADHD #Fibromyalgia #EhlersDanlosSyndrome #PTSD #Cancer #RareDisease #Disability #Autism #Diabetes #EatingDisorders #ChronicIllness #ChronicPain #RheumatoidArthritis #Suicide #MightyTogether

211 reactions 35 comments
See full photo

Today I’ll choose…

When you live with a rainbow of health conditions, choice sometimes get a bad rap. Some of that is justified — shout-out to people in our lives who constantly tell us to “choose happiness,” as if that’ll “cure” our depression. Then there’s the cold-hard, impossible-to-ignore fact that illness often strips us of our autonomy to even make a choice a lot of the time.

But there still a lot within our control when it comes to choice. What will you eat for lunch today? Who will you prioritize today? What mindset or emotional state would feel good to try on?

Whether’s a single word, a goal, a to-do, or an emotion, tell us what you’ll choose today.

#MightyMinute #CheckInWithMe #MentalHealth #Anxiety #Depression #ChronicPain #ChronicIllness #RareDisease #Disability #CheerMeOn #Caregiving #Autism #ADHD

64 reactions 22 comments