Rare Disease

Create a new post for topic
Join the Conversation on
Rare Disease
236K people
0 stories
11.6K posts
About Rare Disease Show topic details
Explore Our Newsletters
What's New in Rare Disease
All
Stories
Posts
Videos
Latest
Trending
Post
See full photo

Mindset Shift: Tell Yourself This When Life Feels Like It’s Falling Apart

When we are going through failure, heartbreak, or uncertainty, the mind quickly creates worst-case scenarios. It tells us that everything is over and that things will never improve. But if you look back at your life, you will probably see many moments where you felt exactly the same way and somehow made it through. One powerful mental tool during difficult moments is simply reminding yourself that the situation is temporary and that you have survived hard things before. That perspective can calm your mind and help you keep moving forward.

When was a time in your life when you thought everything was over, but later realized it actually made you stronger?

If you want to learn more about this, check out my video by clicking on one of the links below.

www.instagram.com/thomas_of_copenhagen

www.tiktok.com/@thomas_of_copenhagen

~ Thanks to all. Thanks for all. ~

#MentalHealth #MentalHealth #Depression #Anxiety #BipolarDisorder #BorderlinePersonalityDisorder #Addiction #dissociativedisorders #ObsessiveCompulsiveDisorder #ADHD #Fibromyalgia #EhlersDanlosSyndrome #PTSD #Cancer #RareDisease #Disability #Autism #Diabetes #EatingDisorders #ChronicIllness #ChronicPain #RheumatoidArthritis #Suicide #MightyTogether

Most common user reactionsMost common user reactions 4 reactions
Post
See full photo

What are your favorite activities to do with friends or loved ones?

A great way to strengthen the relationships and bonds you have with the people who are important to you is to engage in fun activities or hobbies together. From watching movies to craft projects, board games, going out to eat, or even tried-and-true conversation, the possibilities are endless!

What are your favorite ways to pass the time with those you love?

#52SmallThings #CheckInWithMe #Selfcare #MentalHealth #Disability #ChronicIllness #ChronicPain #RareDisease #Anxiety #Depression
#Autism #Parenting #PTSD #BorderlinePersonalityDisorder #BipolarDisorder #Fibromyalgia #Lupus #MultipleSclerosis #Migraine #Spoonie

Most common user reactionsMost common user reactions 4 reactions 4 comments
Post
See full photo

Be careful what you think.

Your mind produces thousands of thoughts every day, and many of them are automatic. The skill that strengthens your mental health is not stopping thoughts, but questioning them. When you pause and examine whether a thought is true or simply fear, you interrupt negative patterns and create space for clarity. That small moment of awareness can completely shift your emotional state and your behavior.

What is one recurring thought you’ve started questioning lately?

Also, if you're going through a tough time right now, I want you to know that I post daily mental health videos about how to deal with painful thoughts. So if you or anyone you know is struggling and wants help, click on one of the links below or write me if you have any questions you want me to answer:

www.instagram.com/thomas_of_copenhagen

www.tiktok.com/@thomas_of_copenhagen

~ Thanks to all. Thanks for all. ~

#MentalHealth #MentalHealth #Depression #Anxiety #BipolarDisorder #BorderlinePersonalityDisorder #Addiction #dissociativedisorders #ObsessiveCompulsiveDisorder #ADHD #Fibromyalgia #EhlersDanlosSyndrome #PTSD #Cancer #RareDisease #Disability #Autism #Diabetes #EatingDisorders #ChronicIllness #ChronicPain #RheumatoidArthritis #Suicide #MightyTogether

Most common user reactions 9 reactions 2 comments
Post
See full photo

What’s something you enjoy talking about with others?

What are your favorite subjects to chat about, Mighties? Personal projects, cooking, art, spirituality or religion, a show you’re watching, a book you’re reading, goals you have, a special interest, something you’re learning more about, animals and pets, your career, or your passions?

Let us know in the comments below! You might even find someone else who enjoys talking about your favorite topics, too. 💡

#CheckInWithMe #DistractMe #MentalHealth #Disability #ChronicIllness #ChronicPain #RareDisease

Most common user reactionsMost common user reactions 5 reactions 3 comments
Post
See full photo

How does your health affect your relationships?

Having a mental health condition, chronic illness, and/or disability can affect your life in many different ways, including the relationships you have with the people around you. From work connections, to building and maintaining friendships, familial relationships, or even dating — health can either strengthen or weaken bonds. It can even cause bonds to break.

What have your experiences been like? How does your health play a role?

Share with us below. ⬇️

#52SmallThings #CheckInWithMe #Selfcare #MentalHealth #Disability #ChronicIllness #ChronicPain #RareDisease #Anxiety #Depression
#Autism #Parenting #PTSD #BorderlinePersonalityDisorder #BipolarDisorder #Fibromyalgia #Lupus #MultipleSclerosis #Migraine #Spoonie

Most common user reactionsMost common user reactions 8 reactions 7 comments
Post
See full photo

What are your hopes for March?

Happy Monday and happy March, Mighty fam! 🎁

A new month is here, so let’s take a moment to check in. What hopes are you carrying into March? Are there any goals you’d like to explore or work toward? What are you looking forward to, or what would you like to do more of this month?

Check in with us below! 🩷

#MightyMinute #CheckInWithMe #ChronicPain #ChronicIllness #Disability #RareDisease #MentalHealth #Anxiety #Autism #Parenting #PTSD #ADHD #BorderlinePersonalityDisorder #BipolarDisorder #ObsessiveCompulsiveDisorder #EatingDisorders #Depression #Fibromyalgia #Lupus #MultipleSclerosis #Migraine #Spoonie

Most common user reactionsMost common user reactions 45 reactions 25 comments
Post
See full photo

What do you value most when building relationships with others?

We’ll be talking about relationships this week, Mighties! 🌸

Whether it’s with a family member, friend, co-worker, medical professional, or someone else in your life (neighbors! boss! your kids’ teacher!), we are continuously building relationships with those around us. And it’s our values in those relationships that help us to stay true to ourselves while also maintaining the connections we find important.

Mighty staffer @sparklywartanks values consistency, open and honest communication, and transparency in her relationships. There’s nothing more important to her than feeling safe enough to be fully herself.

What do you value most?

#52SmallThings #CheckInWithMe #Selfcare #MentalHealth #Disability #ChronicIllness #ChronicPain #RareDisease #Anxiety #Depression
#Autism #Parenting #PTSD #BorderlinePersonalityDisorder #BipolarDisorder #Fibromyalgia #Lupus #MultipleSclerosis #Migraine #Spoonie

Most common user reactions 47 reactions 17 comments
Post
See full photo

Rare Disease Week 2026

Rare Disease Week 2026

Grateful to stand with fellow RDLA advocates from Vermont and Maine this week as we met with Senators and staffers to share the realities of rare disease communities.

These conversations matter because policy begins with people, and lived experience helps shape the systems meant to support us.

Thank you to everyone who continues to advocate, educate, and show up for one another. 💙

#rarediseaseweek #rdla #rarediseaseday #Advocacy

Most common user reactionsMost common user reactions 2 reactions