Rare Disease

Create a new post for topic
Join the Conversation on
Rare Disease
236K people
0 stories
11.3K posts
About Rare Disease Show topic details
Explore Our Newsletters
What's New in Rare Disease
All
Stories
Posts
Videos
Latest
Trending
Post
See full photo

How long does it take you to recover from a busy day?

When you live with a chronic health condition, recovery time is important — especially when your spoons were limited to begin with and your body needs time and space to recharge.

What activities drain your energy the most? How long does it take your body to recover? What does your spoon calculator look like after a busy day?

#MightyMinute #CheckInWithMe #ChronicPain #ChronicIllness #Disability #RareDisease #MentalHealth #Anxiety #Autism #Parenting #PTSD #BorderlinePersonalityDisorder #BipolarDisorder #ObsessiveCompulsiveDisorder #EatingDisorders #Depression #Fibromyalgia #Lupus #MultipleSclerosis #Migraine #Spoonie

Most common user reactionsMost common user reactionsMost common user reactions 39 reactions 19 comments
Post
See full photo

Aside from writing, what else helps you process your thoughts?

There are so many different ways you can process your feelings, emotions, and experiences. There is writing, of course, but let’s use today to brainstorm OTHER methods you find helpful in self-reflection.

Some examples could be drawing, taking a walk, or perhaps even talking to a therapist, friend, or trusted love one. Mighty staffer @sparklywartanks does her best thinking when she’s talking with her therapist or her mom. These conversations help her gain a different perspective and think things through more clearly.

What do you find helpful?

#52SmallThings #Journaling #CheckInWithMe #Selfcare #MentalHealth #Disability #ChronicIllness #ChronicPain #RareDisease #Anxiety #Depression
#Autism #Parenting #PTSD #BorderlinePersonalityDisorder #BipolarDisorder #Fibromyalgia #Lupus #MultipleSclerosis #Migraine #Spoonie

Most common user reactionsMost common user reactionsMost common user reactions 13 reactions 5 comments
Post
See full photo

How to protect your inner peace in a chaotic world

The hardest part of being human isn’t surviving pain, it’s staying kind and open-hearted while you do.

When you witness cruelty, injustice, or ignorance, your mind wants to fight, to fix, to carry it all.

But if you let that weight settle inside you, it will dim your light.

Staying peaceful in a world that often isn’t doesn’t mean ignoring what’s wrong. It means learning to meet it with awareness instead of anger. To act from clarity, not chaos.

You don’t heal the world by letting it break you. You heal it by becoming the calm within it; the light that doesn’t go out.

What helps you stay grounded when everything feels too heavy?

Also, if you're going through a tough time right now, I want you to know that I post daily mental health videos about how to deal with painful thoughts. So if you or anyone you know is struggling and wants help, click on one of the links below or write me if you have any questions you want me to answer:

www.instagram.com/thomas_of_copenhagen

www.tiktok.com/@thomas_of_copenhagen

~ Thanks to all. Thanks for all. ~

#MentalHealth #MentalHealth #Depression #Anxiety #BipolarDisorder #BorderlinePersonalityDisorder #Addiction #dissociativedisorders #ObsessiveCompulsiveDisorder #ADHD #Fibromyalgia #EhlersDanlosSyndrome #PTSD #Cancer #RareDisease #Disability #Autism #Diabetes #EatingDisorders #ChronicIllness #ChronicPain #RheumatoidArthritis #Suicide #MightyTogether

Most common user reactions 25 reactions 5 comments
Post
See full photo

💭 October Thoughts 🍂

As we make our way through October—with all its ups, downs, twists, turns, highs, lows, victories, setbacks, challenges, and changes—let’s take a moment to gather our thoughts. What’s come up for you this month? What words come to mind? What’s made you smile or lifted you up? What’s felt heavy or hard to carry?

Share your October thoughts with us below. 📖📝

#MightyMinute #CheckInWithMe #ChronicPain #ChronicIllness #Disability #RareDisease #MentalHealth #Anxiety #Autism #Parenting #PTSD #BorderlinePersonalityDisorder #BipolarDisorder #ObsessiveCompulsiveDisorder #EatingDisorders #Depression #Fibromyalgia #Lupus #MultipleSclerosis #Migraine #Spoonie

Most common user reactionsMost common user reactions 16 reactions 8 comments
Poll

Select all that apply
5 weeks left
How it affects your daily life
The emotional and mental toll
Medication side effects
Managing pain and fatigue
How lifestyle impacts symptoms
That symptoms can change a lot
The costs of treatment and travel
How hard it is to access care
Listening to patient experiences
Other (share your experiences in the comments below!)
6 reactions
Post
See full photo

Use emojis to show us your current favorite interests or what’s been helping you pass the time.

What’s piqued your interest lately, Mighties? Are there topics you’re diving into, movies that have kept you on the edge of your seat, shows you’ve recently binged, books you can’t put down, life hacks that are changing the game for you, or recipes you’re trying out?

Share with us using emojis below! ⤵️

#MightyMinute #CheckInWithMe #ChronicPain #ChronicIllness #Disability #RareDisease #MentalHealth #Anxiety #Autism #Parenting #PTSD #BorderlinePersonalityDisorder #BipolarDisorder #ObsessiveCompulsiveDisorder #EatingDisorders #Depression #Fibromyalgia #Lupus #MultipleSclerosis #Migraine #Spoonie

Most common user reactions 9 reactions 11 comments
Post
See full photo

Finish this sentence: I find it hard to be alone with my thoughts when…

Being alone with your thoughts can be an overwhelming sensation at times — especially in those moments when distractions are at an all-time high, or processing them doesn’t feel super safe or accessible. Whether it be due to a health condition, external circumstances, or all of the above, having a way to get through those tough moments is important.

Mighty staffer @sparklywartanks finds it hardest to be alone with her thoughts when she’s having limiting beliefs and things around her don’t seem like they would change. Journaling is important to her because it allows her to explore the things she can do for herself that can help her find a sense of relief.

When do you find it hardest to be alone with your thoughts? What are some things you do or can do that would be helpful in processing those thoughts?

#52SmallThings #Journaling #CheckInWithMe #Selfcare #MentalHealth #Disability #ChronicIllness #ChronicPain #RareDisease #Anxiety #Depression
#Autism #Parenting #PTSD #BorderlinePersonalityDisorder #BipolarDisorder #Fibromyalgia #Lupus #MultipleSclerosis #Migraine #Spoonie

Most common user reactions 23 reactions 9 comments
Post
See full photo

A symptom I’m experiencing and learning more about is _________.

Sometimes symptoms can be unpredictable, appear unexpectedly, or present in new ways. Whether it’s something completely new or a recurring, chronic, and persistent issue, what’s a symptom you’re still learning about? How does it affect your health?

#MightyMinute #CheckInWithMe #ChronicPain #ChronicIllness #Disability #RareDisease #MentalHealth #Anxiety #Autism #Parenting #PTSD #BorderlinePersonalityDisorder #BipolarDisorder #ObsessiveCompulsiveDisorder #EatingDisorders #Depression #Fibromyalgia #Lupus #MultipleSclerosis #Migraine #Spoonie

Most common user reactionsMost common user reactionsMost common user reactions 12 reactions 12 comments