Rare Disease

He was 6 weeks old when I got him so I was his dad not just an owner and I loved him dearly. My heart is broken the ray of sunshine that saved my soul in so many ways has passed away. We were just going to the vet for a checkup but that morning he was already acting strange panting uncomfortably and on the way there he was foaming at the mouth I had a bad feeling that today he might not make it. When I got to the vet they had to pull him out of my truck on a stretcher and he went inside and I waited until they called me in. The vet said your dog is in major distress and the prognosis isn't good so with a very heavy heart I made the choice to have him put to sleep he was 14 trying out another cancer medication would only hurt the dog.

So I write here to my dog papi loves you Mayak and you were the best companion I've ever had. Now you can play with your brother Moose in Heaven 💙❤️#MentalHealth #MuscleDysfunction #RareDisease #Depression #MuscularDystrophy #DegenerativeDiscDisease

Mighties, what even is a boundary? A boundary is a limit or barrier that separates two things from each other. When discussing our personal boundaries, we are establishing and identifying limits or needs based on something we feel is best for us.

Today's challenge is to reflect on a time when you stood up for yourself and set a boundary. What brought you to that point? What feelings came up that influenced you to speak up? How did you feel after setting that boundary?

Mighty staffer @sparklywartanks recalls a time when she felt exhausted and drained from taking on too many tasks. She set a boundary to step back and delegate certain responsibilities to others so she could regain her energy and avoid overextending herself. Although it didn't feel good at first—since she was used to handling everything—she later recognized the relief that came with acknowledging that her needs mattered too.

#52SmallThings #CheckInWithMe #Selfcare #MentalHealth #Disability #ChronicIllness #ChronicPain #RareDisease #Anxiety #Depression #Autism #Parenting #PTSD #BorderlinePersonalityDisorder #BipolarDisorder #Fibromyalgia #Lupus #MultipleSclerosis #Migraine #Spoonie

Let's continue on our self-care journey, shall we, Mighties? Our next checkpoint is setting boundaries. How comfortable do you feel about setting boundaries with yourself and with others? Does it come easy or do you find it challenging?

Mighty staffer @sparklywartanks shared that she's comfortable setting boundaries, but continuously enforcing them is challenging for her.

What are your thoughts?

#52SmallThings #CheckInWithMe #Selfcare #MentalHealth #Disability #ChronicIllness #ChronicPain #RareDisease #Anxiety #Depression #Autism #Parenting #PTSD #BorderlinePersonalityDisorder #BipolarDisorder #Fibromyalgia #Lupus #MultipleSclerosis #Migraine #Spoonie

Negative thought loops can feel impossible to escape, but the fastest way to regain control of your mind is to pause and question what’s happening instead of reacting emotionally. When you ask how a thought is making you feel, what it’s trying to teach you, and how you can respond in a productive way, your brain shifts out of panic mode and into clarity. This simple mental health exercise builds awareness, emotional regulation, and long-term peace. Try these three questions the next time your mind spirals and notice how quickly things start to calm down.

Which question helped you the most?

If you want to learn more about this, check out my video by clicking on one of the links below.

www.instagram.com/thomas_of_copenhagen

www.tiktok.com/@thomas_of_copenhagen

~ Thanks to all. Thanks for all. ~

#MentalHealth #MentalHealth #Depression #Anxiety #BipolarDisorder #BorderlinePersonalityDisorder #Addiction #dissociativedisorders #ObsessiveCompulsiveDisorder #ADHD #Fibromyalgia #EhlersDanlosSyndrome #PTSD #Cancer #RareDisease #Disability #Autism #Diabetes #EatingDisorders #ChronicIllness #ChronicPain #RheumatoidArthritis #Suicide #MightyTogether

Mighty staffer @sparklywartanks was recently having an interesting conversation about the definition of “normal,” especially as it relates to managing a mental health condition. It got her thinking about how she defines “normal” and how she learned to recognize the difference between her symptoms and her true personality.

She realized that her definition of “normal” has changed over time. Ultimately, she feels it’s her relationship with self-awareness that helps guide what “normal” means to her each day.

What are your thoughts? How do you define “normal” while living with a health condition? How does your relationship with your health shape that definition?

Feel free to share your insights below! 👇💭

#MightyMinute #CheckInWithMe #ChronicPain #ChronicIllness #Disability #RareDisease #MentalHealth #Anxiety #Autism #Parenting #PTSD #ADHD #BorderlinePersonalityDisorder #BipolarDisorder #ObsessiveCompulsiveDisorder #EatingDisorders #Depression #Fibromyalgia #Lupus #MultipleSclerosis #Migraine #Spoonie

One distinct part of living with a health condition—especially a rare disease (diagnosed or otherwise)—is having to explain, and re-explain, what it’s like to manage it. Fluctuating, changing, unpredictable, and under-researched symptoms can make it difficult for others to fully understand how to support you or empathize with your experience.

What’s something that’s often misunderstood about living with your rare disease?

💌 Feel free to share with us below.

#RareDisease #ChronicPain #ChronicIllness #GeneticDisorders #MentalHealth #Disability #Migraine #SUNCTHeadache #StiffPersonSyndrome #MedicalZebra #EhlersDanlosSyndrome #Spoonie #MarfanSyndrome #EmptyNoseSyndrome #Syringomyelia #Neurosarcoidosis #BehcetsDisease #FunctionalNeurologicalDisorder

We're heading into the weekend, Mighties!

Depending on what your weekdays look like vs. your weekends, your routines may look different. What may have been a priority on weekdays may not be as important on the weekends or vice versa.

What do your routines look like on the weekends? Are they similar or different than your weekday routines? If they're different, how come?

#52SmallThings #CheckInWithMe #Selfcare #MentalHealth #Disability #ChronicIllness #ChronicPain #RareDisease #Anxiety #Depression
#Autism #Parenting #PTSD #BorderlinePersonalityDisorder #BipolarDisorder #Fibromyalgia #Lupus #MultipleSclerosis #Migraine #Spoonie

Depression often pulls the mind into the past while anxiety pushes it into the future. The present moment is where calm lives. Learning to notice where your thoughts go and gently bring them back builds emotional balance and mental strength. This simple awareness exercise can completely change how you experience stress and overwhelm. Try it today and tell me if you felt the shift.

Also, if you're going through a tough time right now, I want you to know that I post daily mental health videos about how to deal with painful thoughts. So if you or anyone you know is struggling and wants help, click on one of the links below or write me if you have any questions you want me to answer

www.instagram.com/thomas_of_copenhagen

www.tiktok.com/@thomas_of_copenhagen

~ Thanks to all. Thanks for all. ~

#MentalHealth #MentalHealth #Depression #Anxiety #BipolarDisorder #BorderlinePersonalityDisorder #Addiction #dissociativedisorders #ObsessiveCompulsiveDisorder #ADHD #Fibromyalgia #EhlersDanlosSyndrome #PTSD #Cancer #RareDisease #Disability #Autism #Diabetes #EatingDisorders #ChronicIllness #ChronicPain #RheumatoidArthritis #Suicide #MightyTogether