RestrictiveLungDisease

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Drained

Feeling the heaviness of life. My daughter has been home from the hospital a little over a week; 9 days exactly. No Covid-19 but she had a respiratory illness and was in the brink of getting a pneumonia. Luckily we caught it early. She did not need the intensity of high-flow oxygen like she did twice last year in September and again in October. However she did need intrapulmonary percussive ventilation (IPV). As I said she came home last Monday but some of these same symptoms started again yesterday 😢. I’ve started back with the breathing treatment regimen her pulmonologist sent her home on (for two days). I’m really hoping my daughter doesn’t have to be admitted again but I just cannot shake this feeling and it’s overwhelming. #RestrictiveLungDisease #pulmonary #Breathing #CerebralPalsy #GrowingWithKerstin

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