Sickle Cell Anemia

Join the Conversation on
Sickle Cell Anemia
401 people
0 stories
34 posts
  • About Sickle Cell Anemia
  • Explore Our Newsletters
  • What's New in Sickle Cell Anemia
    All
    Stories
    Posts
    Videos
    Latest
    Trending
    Post

    I'm new here!

    Hi, my name is Salintae. I’m new to The Mighty and look forward to sharing my story.

    #MightyTogether

    #SickleCellAnemia

    1 comment
    Post
    See full photo

    #MightyTogether

    Hell I am Shae I have been writing since my mother passed away from complications of sickle cell disease when I was seven years old. I am very passionate about bringing more awareness and education through arts when it comes to myself. I am multi talented as writing is only one thing I do well. I also love to create all things as a filmmaker and a photographer. The amount of videos I have now as a brand influence making sure that I educate and empower those in my community and beyond. As a published author I am now working on pushing myself out of my comfort zone in regards to the types of works I put out into the world. As a sickle cell patient myself it is more than satisfying to know I am fully processing my own struggles and strength for people to relate with and learn more in the process. I am a single mom with a unique perspective of life with sickle cell disease. I intend to use all of my gifts share them with the world for as long as I can fight I will. #MightyTogether #SickleCellAnemia #sicklecellawareness #warrior

    Post

    Hello mighties, I need your advice if possible direct them to my inbox

    I'm Alex from Germany
    I'm a private contractor and I have my own little engineering company.
    2days ago a one of my staff abused a lady sexually and after much investigation I found out that's my stuff was wrong for assaulting and abusing the young lady I had to lock him up in the police cell and offer his salary to the family of the lady he abused but some people said I was too harsh on my staff
    I shared this here to know your opinions
    Thanks

    #Abuse #ChildAbuse #SexualAbuseSurvivors #Dementia #Depression #CongestiveHeartFailure #KidneyDisease #SexualDysfunction #SocialAnxiety #Anxiety #HIVAIDS #SickleCellAnemia #phobias #CaudalRegressionSyndrome

    16 comments
    Post

    How do you work with chronic illness? Do you have a remote job?#RemoteJobs #SickleCellAnemia #Onlinejobs #ChronicIllness #entreprenuer

    Or what do you think about working from anywhere and earning your morning from everywhere?

    2 comments
    Post
    See full photo

    'We should just learn to live with it' 🤦🏿‍♀️🤢

    I keep seeing the 'We should just learn to live with it' suggestion as a counter to restrictions. And it fills me with rage. Abject rage, because I cannot help but find the sentiment so selfish and ignorant.

    Eventually yes, when we have a well researched and globally regulated & recognised vaccine fine! But even then!- the battle for survival will continue.

    And till then!- I refuse! I refuse to sacrifice the lives of the elderly; those with learning difficulties, those with chronic conditions; those with disabilities. All of us. We have worked too gosh darn hard to live. To etch out our own existences.

    And they too have worked too hard: friends, family, carers (formal & informal) have worked too blooming hard to ensure lives are lived to let your discomfort kill.

    As I type this I know and acknowledge that this is polarising and I type this honestly sad that it is polarising.

    I type this knowing and having experienced the fear of wondering if my employer would keep me on. Experiencing furlough and wondering whether it would cover bills and debts that still needed to be paid.

    I type this knowing mine and most likely your nation has entered into a recession. One of the worst since records began.

    I type this knowing we have a mental health crisis impending, when mental health services were already globally struggling.

    But sacrificing the lives of one person, older or disabled, is not the answer.

    If it is then it speaks more about how our societies chronically undervalue the lives of the disabled and elderly. How care homes were left to fend for themselves in the initial days of the Pandemic and are still reeling from losses: www.itv.com/news/2020-05-19/care-home-deaths-under-scrutiny-...

    It speaks how casually people assert 'Well they were going to die anyway, so 🤷🏿‍♀️'. As if that death, if even infinitesimally preventable, isn't a tragedy. As if it isn't a further stain on our overworked, under-resourced and underpaid health & social care systems.

    This Pandemic is killing and it's killing cruelly and at times discriminately. BME/POCs/BIPOCs are dying at alarming rates globally: www.google.com/amp/s/www.bbc.co.uk/news/amp/uk-52219070.

    So please, please don't even flippant entertain such a thing.

    Listen to the fears of the elderly, disabled and chronically ill!

    And listen to their hopes! That film they want to see! That best friend they need to chuckle with. That birthday party they can't wait to have!

    We don't want to die. They don't want to die.

    #ChronicFatigue #ChronicIllness #Depression #SickleCellAnemia #SickleCellDisease #Carer #Fibromyalgia #ChronicPain #DiabetesType2 #Diabetes #Anxiety #COVID19 #Asthma #HypothyroidismUnderactiveThyroidDisease #ThyroidDisease #IrritableBowelSyndromeIBS #Insomnia

    2 comments
    Post

    Was anyone else shocked and ashamed after learning that they had depression after years of wondering what was wrong?

    So I was born with sickle cell anemia and aleways had to deal with the pain and embarrassment as a child of having to explain to my peers what's wrong with me all the time, but as I grew up I realized I shouldn't be ashamed, especially after having my girls because there's nothing I can do about it but own it. But over the years I've always felt guilty for being too tired, too short tempered, too emotional or too "lazy", as some people have put it. Recently I have been the worst I've ever been in a really long time to the point where I just don't want to keep going on anymore, I have to force myself to get up and continue my day to day, so I went to go see a therapist as scared and nervous as I was but now that I've been told I have some type of depression, it's made me feel worse and even more guilty when I think about all these years with my babies and how I could have possibly gotten help sooner. And to know that my chronic Illness could also again be a contributing factor to my depression makes me angry because I feel like again it's taking control of my life like it has before.

    Post

    How much do you tell people about your chronic illness?

    Do you tell them about the pain, how hard it is to live with it? or how you wake up and struggle through with fatigue?
    #ChronicFatigue #ChronicPain #SickleCellAnemia

    yomisblog.com/five-fictional-books-that-will-teach-you-about...

    14 comments
    Post

    Does anyone else have a “Emotion Plan”? A list of steps to do to pull you out of a low place? If so please share. #SickleCellAnemia #MentalHealth

    Recently I’ve been thinking about how the emotions have been kicking my butt as much as the physical pain has & I need to get that under control. #emotionalpain #Pain