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Normal MRI… what now?

My MRI results came back as normal & ENT have discharged me.

I’m not quite sure what to do. Does this mean I have to deal with migraines for the rest of my life now? My hearing randomly going? The pain and mental attacks from the increases during colds etc?

I know, I should be grateful that it’s normal. But I’m just feeling lost and frustrated. There’s no plan now other than just having to deal with it.

#Sinus #ent #MRI #symptoms #ChronicPain #ChronicMigraines #Hearing #MentalHealth #Feelinglost #normal #WhatNow

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Gotta catch ‘em all

The last few weeks have been particularly hard on me.

Mentally, I’m mostly okay. Physically, I’m not. And that’s caused me to question a lot of things, wonder how it got to this point, increasing the severity of incidents where I won’t take painkillers.

I’m being referred to cardiology for a tilt table test.

In April, I was told I had low blood pressure but they didn’t seem too worried. At the end of May after worsening lightheadedness, I was told the same, and I was basically just told just to eat more and take iron supplements. And then last week, I went back again.

I initially made the appointment for something else a month before (I had to wait for a month), but then the lightheadedness got worse, so I told them about it again. I told them I had taken iron supplements, I was eating healthier than ever, I was staying hydrated, I was staying active, I was just really doing all the right things. And again it was low.

They’ve diagnosed me with postural hypotension in the meantime and told me to try compression socks for a week, and then if that didn’t work to call them and they’d refer me. So here we are. I get to have a blood test in September while I wait to be seen.

My sinus issues had a major flare up. I was so miserable with it that I sent a email basically begging them to give me an appointment (I was referred back in February but waiting list is apparently a year) because it was beginning to affect my mental health, and I get to see them in October.

It’s affected my hearing, so I had to chase up my ENT appointment. I hope it is just the sinus issues causing it, and not a third relapse of my ear problem, especially as everything seemed perfect last time I saw them. It would be nice to celebrate the first winter in 11 years without an ear infection.

And then of course, my referral for heartburn/ acid reflux. I see the doctors for a one-month review, which will end in the referral they wanted to do (because I had suffered for at least 5 years w/out diagnostics) but held off on. The medication they put me on has somewhat helped, but I’m still having to take gaviscon most days.

Finally, the chronic pain. It’s been difficult these past two days, and after (stupidly) lifting a sofa up because the cat pushed her toy under it (and then she herself went under it so I had to call my sister because I physically couldn’t lift it for much longer), it’s been worse. I still forget that I’m not really supposed to do things like that, and I always pay the price (pun not intended, but yeah cause volatarol is expensive).

I’m just really very tired. I remind myself it could be worse, which is probably what has helped me stay positive and mentally mostly okay, but sometimes it gets to me. Particularly when it’s yet another tablet added to my daily medication. It makes me tired, and I think “it only gets worse as I get older”. I want to stop them, but I know I can’t. I ended up in hospital the last two times I did.

Or another time it bothers me is when everything is getting worse/ is bad/ is happening all at the same time. This post doesn’t even cover all of it, but at this point I’m too tired to write anymore. Speaking of tired, I’ve only had 5 hours sleep each day for the last 3 days. I wake up early and then typically can’t get back to sleep because of pain and insomnia :))

#ChronicPain #Depression #GastroesophagealRefluxDisease #Heartburn #AcidReflux #BloodPressure #Lowbloodpressure #PosturalHypotension #Hospital #DoctorsAppointments #Doctors #Sinus #HearingLoss #ent #cardiology #Hearing #Medication #MentalHealth #Pain #BackPain #Insomnia #Painsomnia


Facial/sinus pain with Fibro?? #Sinus pain #Facial pain

Hi there I got diagnosed with fibromyalgia either 2002 or 2003 I always forget when. It’s been a really long journey and honestly no end in sight with battling crazy symptoms. Do any of you suffer from facial pain that you’re not sure is a sinus infection or not? I think I’ve read that fibromyalgia can cause pretty bad facial pain plus a weird head pain like you’re being squeezed in a vice. Sorry not a pleasant image but anyway has anyone found good coping mechanisms for this weird kind of pain that mimics a sinus infection?
Just last year I finally was diagnosed with interstitial cystitis, and possibly costochondritis. That’s the chest and sternum pain that’s really scary and that could land you in the ER and then you feel like an idiot when you don’t have any cardiac symptoms after all 😖. That’s happened to me at least twice or three times in the last 15 or so years. I tend to just suck it up and keep isolating and not knowing how to get the help & support I need. so I’m so glad I found this group! I’m tired of trying to just soldier on and not get the more specialized support I need to deal with all this. All my healthy friends obviously can’t understand what I’m walking through and one of them thinks I’m making excuses at times and says I should just keep pushing through to keep commitments and my body is like “ not a chance... have fun with that one Cate!”


any tips on how to get rid of a sinus headache, tension headache, or migraine?

I have chronic Migraines and chronic sinusitis, so it’s not new to me, but I’m on day 3 of this and nothing seems to be soothing it. It started off as a sinus headache, then became a migraine and now my sinuses hurt but it’s a mixed tension migraine. I’ve tried saline spray for my sinuses, ibuprofen for the pain, moist heat for my sinuses, heat for my neck, & sleep.
Thanks for your help!

#Migraine #ChronicPain #chronicmigraine #Tensionheadache #sinusitis #Advice #Headache #Sinus #neckpain #Pain