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My mental health has been better. There’s times when I struggle, but I’m trying my best to stay upbeat. Doctors have finally decreased my meds after I took it into my own hands and decreased it myself.

One thing I forgot to mention here was that I had a torn tendon 2 months back. I’m fully recovered now, which naturally means I’m getting tendon pain in the other foot and felt it trying to tear itself/ it would have if I didn’t have such a short distance to walk on that day.

I had bad news at my second post-op appointment. I was told I had an ear infection. It’s thankfully cleared up now, but it meant another two weeks of 3x a day drops, which didn’t really work with my lifestyle. Now it’s just the anxious wait to find out if it’s caused my op to fail, as they were worried.

The sinus issues have been bad. I wasn’t symptomatic last week, so I stupidly didn’t take it when I should have and I’ve paid for it this week where nothing is getting the migraines under control.

To be honest, I’ve been getting tired of taking medication. I’ve been taking them every day for almost 10 years now. I don’t remember a life without them. All my teenage and adult years, I was taking them. I hate that I can’t just simply go to sleep when I’m exhausted, I have to take my medication and make sure it’s the right amount of tablets for the right medications. And I’ve had 3 new medications added in the last few weeks, so it is getting tiring. But I simply can’t exist without them, I’ve seen what I’m like without them.

My chronic pain has been worse. And with my refusal to take painkillers unless absolutely necessary, worsened by the whole medication issue, I’ve been struggling.

#ChronicPain #EarInfection #Infection #Pain #Medication #Medicine #MentalHealth #sinusitis #Migraines #Postop #Recovery

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Nose Cauterization and quite tired of this crap.

Just had a side of my nose cauterized the other day. Hopefully it will grow new skin that won't be inflamed. Tomorrow I have to travel for appointments again, I don't have the energy or the heart. Tired of the upkeep, my body is showing it too. Like I had a month off, now been in a month and Im into burnout zone. My brain is fried. Next month will make a long trip to a Neurologist. Just want to postpone Adele.

I'm exhausted, I hurt, I need to shower and play along but Im so tired of this crap.

I just got caught up on laundry, now Ive worn myself out for tomorrow. Sitting here, just dreading it.

I don't want it to get to me but it does! #Depression #Anxiety #RareDisease #ChronicPain #Arthritis #CPTSD #Inflammation #Migraine #Fatigue #epsteinbarr #cystitis #Neuropathy #sinusitis #Disability #hatetodrive #someoneputmetobed

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I need all the sleep tips please!

So insomnia + painsomnia - sleeping meds - pain meds + an uncomfortable sleeping environment = nightly anxiety attacks induced by pain. I can’t take it anymore, it’s bringing back the #SuicidalIdeation and I’m seriously afraid that I won’t be able to fight it.

I’ve been off all mental health and pain meds since early August. They took me off of everything cold turkey in hospital because of my heart condition, #Cardiomyopathy and a low ejection fraction. Now I’m only allowed acetaminophen for pain but sparingly and Xanex for panic attacks but only if I absolutely have to however I can’t take it when I really need it because I have to take a heart medicine at bedtime and the two can’t mix. I have several #ChronicPain conditions as well as #MajorDepression , #ObsessiveCompulsiveDisorder and #CPTSD as well as #Cancer and my heart condition. It makes it really impossible to be able to look past the intense pain (6-8 during the day and usually a 9-10 at night now). It doesn’t help that my heart medicine flares up my #Asthma and #Anxiety so on top of being in pain I’m wheezing and coughing and freaking out over the wheezing and coughing.

I’m having surgery next week for a port removal and replacement. I know last time the pain was insane and that was on meds and before the horrible neuropathy that chemo gave me. I know if I can’t figure out a way to get more comfortable in bed at night so I can rest then there’s no way I’ll make it through all that.

So what do you do to make yourself as comfortable as possible in bed? What brands of pillows do you recommend? Is there a tea you drink?

I have a cooling memory foam topper on my pillow top mattress. I use Sertra cooling pillows and cooling/moisture wicking sheets (my stupid #Diabetes makes my sugars drop in my sleep and I get soaking wet cold sweats nightly). I also have a wedge pillow I use sometimes for extra support. I’m a side sleeper because of my asthma but the #Fibromyalgia and #Bursitis make that really hard so I have to switch sides constantly because of the pain. Also chronic #sinusitis acting up for the win. Constantly have a #Migraine too.


Being “sick” sick… sucks!

Us chronically ill folks have enough to deal with, but then we go and catch something and get “sick” on top of our normal sick and quite frankly, it’s not fair. I already had enough extras on my plate with chemo side effects this weekend and then fevers with a sinus/cold thing happened. Don’t think it’s Covid, I’m fully vaccinated and avoid people and peopley places, it started out as my usual sinus crap and then snowballed because chemo lowering my white blood cells. I feel like if you’re chronically ill you should get a free pass from being “sick” sick with all this extra unnecessary yuck.

I find it amusing how I can handle level 10 pain like a champ, go on about my day with zero energy and crippling fatigue and not complain. But the second I get the sniffles, I want my mommy and some soup, lol.

I hope everyone else is doing well!
#ChronicIllness #sick #CommonCold #sinusitis #Spoonie


Fibromyalgia pain

This morning the Fibro pain has again reared its ugly head- I hate when it starts my day,instead of ending my day( tho that's not nice to be hurting at bedtime,either!). Guess it's the below freezing temperature that's got it going. Don't you( those with fibro) just hate it when the fibro takes over even Before the day starts? It over comes the arthritis,the swollen feet & lower legs,the fitful sleep from the nite,and tired mind from having to deal with it & everything else on a daily basis. Even the pretty sunrise this morning gets hit. Big Sigh. Oh well,such is life when you are used to hurting All Over from an Invisible Disease. #Fibromyalgia ,#RA ,#oa ,#PTSD ,#GAD ,#Bipolar 2,#GERD ,#Insomnia ,#high Blood Pressure,#Allergies to most Everything,#sinusitis chronic,#Teeth problems( likely from meds been on for so long, dentist),#"covering" how I really am feeling,#bad dreams that carry over into the day,#restlessness ,#So many Meds,#dry Eye Syndrome,#Dermatitis -chronic,#Headaches ,Short term memory loss left over from ECT treatments,#Fibro Brain Fog,#sad ,#Overeating when illnesses take over too much,##Poor Self-Image,#Stagnant motivation,#chronic Talking to Myself-even Out Loud,#Talking & writing too much,#worry ,#Thinking of others instead of me,#people Pleaser,#Procrastination ,#Poor money management,#Ignoring important signs & Symptoms.


Needing surgery on my sinuses septum deviated and no sinuses up in my head explains why I can’t breathe right and my own dr didn’t even find this out

I definitely want a new ent I’m needing better care who can offer advice? I don’t want to keep getting repeated sinus and bronchial infections. And also don’t want to take nasal sprays. Any advice for me should I change ents?if this guy couldn’t even find a deviated septum and no sinuses up top? #PTSD #sinussurgery #sinusitis #sinusitis #sinusitus #sinusproblems #ent #Bipolar2Disorder #BipolarDepression #BipolarDisorder #BorderlinePersonalityDisorder #Anxiety #ObsessiveCompulsiveDisorder #CPTSD #PolycysticOvarySyndrome #Anxiety #GastroesophagealRefluxDisease #GeneralizedAnxietyDisorder #BorderlineStigma #Upallnight #CheckInWithMe #MightyQuestions #TheMightyTakeaway #TheMighty #HashimotosThyroiditis #HypothyroidismUnderactiveThyroidDisease #DBT #Friends #Love #DatingWithAChronicIllness #lonely #self #Selflove #Yoga #Meditation #Art #Photography #Music #Reading #Writing #Sports #Nature #Healthyeating #Exercise #AnxietyDoesntKnockFirst #Sleep #FibroFog #Fibromyalgia #FibromyalgiaDiagnosis #FibromyalgiaAwarenessDay

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This is only place I feel safe venting my mom back story is a very emotionally and mentally abusive person when I had all my health problems last year

and almost died twice she visited in hospitalr barely present knitting or on her phone. I cut contact with her since Jan because I could no longer deal with her verbal or emotional abuse. My stepfather apparently abused my step siblings growing up and he never did that to me but he did physically when I was 13 throw the book cases on wall above my bed on top of me in an angry rage. So back in feb his ex wife passed away my mom decided to secretly get a Catholic Church wedding in July to my step dad never inviting me or taminmy youngest sister or sister er twin. So a month ago I needed help going for my upper gi so I ask her to help bring me. The last 3 weeks I’ve gotten together on Friday with her today she’s being a jerk getting in my face scary screaming at me about her made up lies in her delusional mind. She’s talked bad about me and my I’m dealing with her being a 💩and to be horrid denies my stepfather ever abused me as a kid. Gaslighting me. And she wonders why I’m so upset or why I go so many months cutting her off it’s because of her behavior.she stresses me out makes me anxious and upset. I can’t give her power over anymore.i need support friendship advice and words of comfort? #PTSD #CPTSD #CPTSDinrelationships #BipolarDisorder #BipolarDepression #Bipolar2Disorder #HashimotosThyroiditis #BorderlinePersonalityDisorder #BorderlineStigma #PinchedNerve #acute chronic sinusitis #sinusitis #Survivor #sad #ADHD #HypothyroidismUnderactiveThyroidDisease #Anxiety #DatingWithAChronicIllness #CheckInWithMe #TheMightyTakeaway #TheMighty #Pledge2EndBullying #MightyQuestions #Flareup #Upallnight #Humor #Music #Yoga #Art #Photography #Sports #Aspergers #AspergersSyndrome #Love #ChronicPain


Pain relief recommendations please!

I’ve been in the midst of a nasty flare up for over a week now and nothing seems to be helping. I have seronegative spondyloarthropathy, chronic sinusitis, chronic migraines, tension headaches, endometriosis, neuropathy, and suspected IBS & everything is flaring up at once. The extreme pain and the nausea are really tough. Does anyone have any pain relief recommendations? Preferably ones without medication, but all recommendations are appreciated!! Thanks in advance.

#ChronicIllness #ChronicPain #Spoonie #Pain #Painrelief #Migraine #sinusitis #Seronegativespondyloarthropathy #Spondyloarthritis #nervepain #Headache #Neuropathy #IrritableBowelSyndromeIBS



I am a chronic asthmatic and have other health issues as well. I can manage my asthma most of the time by taking my daily medications. I am feeling very annoyed right now, because all the pharmacies in my town have no supplies left of my daily asthma medication because of the run on them by panic stricken people, who would most likely never have to use it! Due to my age and health issues I have been self isolating as much as possible, only leaving my home to get food or medicines. Now my situation has just became far more serious, pitting me at an even higher risk level! Panic has never solved any problem, just creates more difficulties. It is so sad to see so many people not caring that their irresponsible actions may create a serious life or death situation for others!
#Asthma #panic #Complex health issues #Migraine #Neuropathy #Arthritis #diverticular disease #Anxiety #Depression #sinusitis #Allergies