Sleep Apnea

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Multiple Mental and Physical issues. Now narrowing down myself due to a decade of NHS not helping.

Hi guys,
This is my first post using this app so I'm not sure on the amount of activity and don't have the capacity to write out an entire story if it won't be read

The main things I'm seeking to talk to others about is:
Myoclonic jerks
Sleep apnea
Cervical spine curves
Unable to do anything physically demanding

Basically I know craniosynostosis can be linked to several genetic conditions and due to the sheer number of mental and physical disabilities or symptoms I have, I feel they must be related

I understand that I should not seek anyone to diagnose or try to verify my specific condition but maybe if I find someone who has a lot of similar struggles who has a genetic disorder, I can note it down as part of my plan to narrow down my health and then go back to Drs

I'm willing to write more in Comments

Thank you

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Share an important, informative, or memorable part of your achondroplasia journey.

Each of our health journeys are multifaceted, complex, and unique — but that doesn’t mean we’re alone in what we go through. Those shared experiences are what make us Mighty! 💪

If you feel comfortable, share a part of your achondroplasia journey that has stuck with you and made a lasting impact — no matter if it’s a positive or negative mark.

#RareDisease #Parenting #Caregiving #Achondroplasia #Dwarfism #ChronicPain #SleepApnea

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What’s My Name Again?

The brain fog struggle is real! There are also those annoying moments when you find yourself describing what car keys do, but can’t actually recall the word ‘keys’ in the moment 🤪

#DistractMe #ChronicFatigue #MyalgicEncephalomyelitis #Fibromyalgia #ChronicFatigueSyndrome #AdrenalInsufficiency #Lupus #LymeDisease #PosturalOrthostaticTachycardiaSyndrome #MyCondition #Headache #Migraine #Insomnia #SleepApnea

51 reactions 9 comments
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What’s a health goal you set but find it challenging to implement?

Making short-term — or even long-term — health goals can create a roadmap for you to follow when you’re looking to make decisions about your health. It’s not always easy, though, to implement every goal immediately — especially when you’re met with challenges or barriers. This can be anything from health limits and demands, limiting beliefs, finances, your living situation, or even circumstances that are out of your control. What’s a health goal you set but find it challenging to implement?

#RareDisease #Parenting #Caregiving #Achondroplasia #Dwarfism #SleepApnea #ChronicPain

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What’s your experience with dream journals or sleep diaries?

Mighties, I’m contemplating whether it would be beneficial for me (or not) to keep some record of my sleep — whether I specifically keep track of my dreams or about my sleep habits in general 🤔… TBD.

Has anyone have experience keeping a dream journal or sleep diary? If so, did you find it helpful?

#Insomnia #ChronicPain
#ChronicIllness #SleepApnea
#Depression #BipolarDepression
#Anxiety #MentalHealth #Disability #MultipleSclerosis #CheckInWithMe

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How has achondroplasia affected your dating and love life?

From body image and dating to maintaining personal relationships, we know achondroplasia can affect life in many different ways (both good and bad).

Whether it’s stigma, lack of public understanding, or the impact your condition has on your confidence and self-image, it can be challenging to navigate relationships of all kinds.

How has achondroplasia affected your ability to date and explore romantic relationships, if those are of interest to you? Let’s share and help one another in the comments below. 💌

#RareDisease #Parenting #Caregiving #Achondroplasia #Dwarfism #SleepApnea #ChronicPain