Vitiligo

Hey. I’ll try to keep this short as it’s way too much if I go into details.
2 years ago began the start of the newest problems.
August 2024, they increased and got worst at a way faster rate.

Diagnosis:
Vitiligo
Recurrent staph/MRSA/cellulitis
Folliculitis/Eczema/Prurigo Nodularis
Anemia (most of my life)
Thickened endometrium
Hormone imbalances
Migraines
Spinal injuries
Mental health (ptsd/severe anxiety/depression)
Chronic swollen throat/tonsils/lymph nodes
Sinusitis
Chronic dry cough
Low BP
Recent deviated septum
Fatigue, malaise
Body aches/weakness
Carpal tunnel
Skin intolerance to hot/cold
Recurrent UTI’s
Fibromyalgia
Recurrent ear infections / ear staph
Eustachian tube dysfunction
Hearing loss
Uterine fibroids & cysts
Memory loss
ADHD
Severe Insomnia with nightmares
IBS/GERD
TMJ/Bruxism

Not yet diagnosed:
Raynauds (2 almost constantly blue toe nails, recently started in second, 1st has been present last two years off and on)
Chronic chills
Brittle nails
Hair loss (possibly medication related)

Recent testing:
A few genetic tests
Allergy testing
Several autoimmune panels

Current additional issues:
Oral thrush (due to long term antibiotic usage - close to four months now)
Ear pressure/fullness along with dark red/purple spot inside filled with liquid ? Also spots of white appearing pus that pop to drain
— can’t handle loud noise or cold air currently. Severe ear itching.
Eye itch and redness (not pink eye)
Muscle weakness and twitching - minimal long-term control in arm muscles

Pending:
Additional testing
Meeting hematology
CT of neck/throat/nose
Hysterectomy (paused until healthy)

Immediate Family history of:
Lupus (blood work shows low middle numbers not high enough to diagnose)
Celiac (ruled out by endo/colonoscopy)
Psoriasis
RA (ruled out by blood work)
Heart issues

All I can say is yes, I’m in pain. And yes, I’m exhausted. And frustrated. I’m not a crier and all I do is start crying all the time. I have 4 kids and I can’t be the best for them. I am failing everywhere in life and I just need to get this fixed or someone to finally step in and help because I can’t keep declining like this.

I am a veteran. I have little say in my health care. I can’t get a second opinion. Getting a rheumatologist seems to be impossible despite numerous doctors telling me I should see rheumatology. I’m feeling so defeated. If I could at least narrow things down it would help so much, so I could share my research with my doctors. I have several things on my list but I need to get a really good list. Please help if you can think of what may be causing all of this.

Thank you.

*** I would share many more pictures if I could 💕

#chronichealth #Pain #hurting #mother #Veteran #Desperate #pleaselisten #sick #someonegetmedrhouse #illeventakethegoofysidekickguy #ijustwanttofeelbetter #helpme #Genetics #hematology #labs #Skin #Dermatology #IBS #GERD #autoimmune #Disorder #PTSD #Fibro #Rheumatology

I’ve been living with vitiligo for a very long time. Four years ago I moved to Florida and since then it’s gotten so much worse. I really didn’t have too much loss of pigment on my face but now I do and I can’t deal with it. I used to get air brushed once a week and I was fine with that even when it faded. Now I’m so miserable and depressed over what I look like. I can’t get past these feelings about how I look. I can’t air brush in Florida it’s too hot and i basically sweat too much. I used tofeel as though I was pretty now I just feel like a freak. I wish I didn’t feel this way#Vitiligo

I have diagnosises of Fibromyalgia, reactive arthritis, psoriatic arthritis and small fiber neuropathy. Has anyone been diagnosised with these and one of the signs/symptoms was extremely dry skin and changes in skin tone/color on hands and feet. Also extreme sensistivity of hands and feet. I’m losing skin pigment in my feet. My toes are nearly white and it progresses up to just past the joints where they connect to my feet. It’s not Raynauds nor vitiligo. Drs can’t/won’t tell me if this is a result of one of my diagnosises. The loss of skin tone is causing me extreme anxiety. My hands are a lighter tone than my arms as well and i jusried to these areas don’t cause bleeding. I’m wondering if it’s a circulation issue . I am afraid I’m going to have to get my feet and hands removed if i can’t figure out it is soon (i know i sound crazy). Has any one experienced the loss of skin tone, bleeding, pain in feet and hands. Drs keep telling me it’s normal but it’s NOT normal for me compared to before i was sick.