Vitiligo

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    Skin changes/Symptoms: #Fibro #reactivearthritis #PsoriaticArthritis #SmallFiberNeuropathy

    I have diagnosises of Fibromyalgia, reactive arthritis, psoriatic arthritis and small fiber neuropathy. Has anyone been diagnosised with these and one of the signs/symptoms was extremely dry skin and changes in skin tone/color on hands and feet. Also extreme sensistivity of hands and feet. I’m losing skin pigment in my feet. My toes are nearly white and it progresses up to just past the joints where they connect to my feet. It’s not Raynauds nor vitiligo. Drs can’t/won’t tell me if this is a result of one of my diagnosises. The loss of skin tone is causing me extreme anxiety. My hands are a lighter tone than my arms as well and i jusried to these areas don’t cause bleeding. I’m wondering if it’s a circulation issue . I am afraid I’m going to have to get my feet and hands removed if i can’t figure out it is soon (i know i sound crazy). Has any one experienced the loss of skin tone, bleeding, pain in feet and hands. Drs keep telling me it’s normal but it’s NOT normal for me compared to before i was sick.

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    Proud of my Spoonie daughter #Spoonies #Spooniefamily #Vitiligo #AutoimmuneDiseases #IdiopathicAngioedema #AutoimmuneUrticaria #ADHD

    This is to my teenage daughter who is smart, creative, Native Indigenous strong AND has Vitiligo ☮️.

    ❌Do not leave comments about creams, make-up and miracle cures etc. The Creator made my strong daughter to be her own individual person.❌
    I also give absolutely *ZERO CARES* what anyone else does to COVER UP to fit in with society...don’t attempt to tell me about it.

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    Summer time heat and humidity

    It breaks my heart that I can't go out and play with my grand kids, I was always outside and going camping or fishing, I went to my grand sons baseball tournament for the day and it took me down completely for two weeks and I'm really not back to half of my self, well my new self. Adjusting to this has been life altering and I struggle every day. Having vitiligo doesn't help either. But I wake up every day wondering what my adventure is going to be like. Thanks for being there Mighty worriers

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    Hindsight

    I think the scariest thought is not that I have to live with chronic illness now, but that I can trace my symptoms back years and never noticed it. Perhaps I never wanted to notice it.

    My life’s purpose was the hustle - to get good grades, be the best, get a good job, and work hard to pay my parents back for the tremendous sacrifices they have made for us. Everyone struggles from time to time. I’d get over it.

    Noble? Perhaps. But it’s true that you can’t help others when you are running on empty. And I got to the point where I had not only run out of gas but I’d jumped out of the car and started pushing it up the hill only to keep going.

    A passing statement uttered by my doctor has made me pause and kept me up at nights. I was lamenting how suddenly all of this occurred to me, what I had possibly done wrong, and was there anything I could do to fix it. If it began suddenly, it meant that there was a beginning, a reason; and reasons have answers and all beginnings have an end — don’t they?

    “If you think back, you might see that you’ve had issues all along.”

    I did. He was right. But I forgot them for a reason. I avoided them purposefully, ignored them faithfully. Because I didn’t want to live a life focused on the struggle. Not then, and not now.

    As I lie awake again tonight, completely exhausted and unable to sleep, I’m brought back again to those words. And the memories I had eagerly attempted to erase mock me. I should’ve seen this coming. If I had just taken better care of myself, maybe I could have defied my genetics, my fate.

    But then, I realize that I have the last laugh. Because I am here; in spite of the pain, in spite of my past, and in spite of my problems.

    I am here and I am stronger than ever.

    I am mighty.

    #iammighty #AutoimmuneImmunodeficiency #AutoimmunePancreatitis #ExocrinePancreaticInsufficiency #ChronicPancreatitis #PrimaryImmunodeficiency #sjogrens #ChronicIllness #ChronicPain #CheerMeOn #Vitiligo #CrohnsDisease #CeliacDisease