Join the Conversation on
402 people
0 stories
179 posts
About Vitiligo
Explore Our Newsletters
What's New in Vitiligo
See full photo

Skin changes/Symptoms: #Fibro #reactivearthritis #PsoriaticArthritis #SmallFiberNeuropathy

I have diagnosises of Fibromyalgia, reactive arthritis, psoriatic arthritis and small fiber neuropathy. Has anyone been diagnosised with these and one of the signs/symptoms was extremely dry skin and changes in skin tone/color on hands and feet. Also extreme sensistivity of hands and feet. I’m losing skin pigment in my feet. My toes are nearly white and it progresses up to just past the joints where they connect to my feet. It’s not Raynauds nor vitiligo. Drs can’t/won’t tell me if this is a result of one of my diagnosises. The loss of skin tone is causing me extreme anxiety. My hands are a lighter tone than my arms as well and i jusried to these areas don’t cause bleeding. I’m wondering if it’s a circulation issue . I am afraid I’m going to have to get my feet and hands removed if i can’t figure out it is soon (i know i sound crazy). Has any one experienced the loss of skin tone, bleeding, pain in feet and hands. Drs keep telling me it’s normal but it’s NOT normal for me compared to before i was sick.

See full photo

Proud of my Spoonie daughter #Spoonies #Spooniefamily #Vitiligo #AutoimmuneDiseases #IdiopathicAngioedema #AutoimmuneUrticaria #ADHD

This is to my teenage daughter who is smart, creative, Native Indigenous strong AND has Vitiligo ☮️.

❌Do not leave comments about creams, make-up and miracle cures etc. The Creator made my strong daughter to be her own individual person.❌
I also give absolutely *ZERO CARES* what anyone else does to COVER UP to fit in with society...don’t attempt to tell me about it.

1 comment

Summer time heat and humidity

It breaks my heart that I can't go out and play with my grand kids, I was always outside and going camping or fishing, I went to my grand sons baseball tournament for the day and it took me down completely for two weeks and I'm really not back to half of my self, well my new self. Adjusting to this has been life altering and I struggle every day. Having vitiligo doesn't help either. But I wake up every day wondering what my adventure is going to be like. Thanks for being there Mighty worriers

1 comment