Arthritis

Hi, my name is 2648. I'm here because
I have Sjogren's, arthritis and migraines.#MightyTogether

Hi, my name is Chronic2. I'm here because, I’m Blessed that God has given me another Beautiful day to experience life. I suffer from decades of migraines too & feel for you. I think a lot more research needs to be done Re: Migraines & Ehlers Danlos. There are 13 different types of: EDS, & there seems to be a lot of the same symptoms listed for both diagnoses. It’s not until more recently that a few good Dr’s have thought outside the box & realized, that when their patient has been diagnosed with Several Symptoms of: Migraines, CSF Leaks out of my nose (3 failed attempts to seal it), TMJD, Fibromyalgia, COPD( never smoked or drank), cardiac issues, Peripheral Vascular Disease, a detached & convoluted large intestine, GERD, Schatzkes Ring, IBS, Carpal & Tarsal Tunnel Syndrome, Arthritis, Double Jointed & hyperextension of joints, neck, shoulders, back, hips, knees, elbows, ankles, hands & feet pain, Arachnoiditis, RLS, & a whole lot of Pain, etc.
I am wondering if there’s anyone with Ehlers that can relate to me? Did you ever have a DNA test done to confirm your Diagnosis? I am 63 now & it’s taken up until now for, not my PCP, but for my Cardiologist to suspect EDS. (I also have SVT, A-Fib., Mobitz, Paroxymal contractions, a bovine chest, & Bicuspid Heart). My Cardiologist recently did a DNA test on me that came up with these Results: an Unknown Significant Variant gene marker called, p.R440H (c.1319G>A) in the COL1A2gene. He told me that he did not know exactly what that means, & said he wanted me to see a Geneticist. When I asked him who he recommends? He said, that he did Not know of any, or where to refer me? I’m Thankful he did the test, but thought to myself? Then why did he know to do the test, if he didn’t know how to Interpret it? I went home & googled, Geneticists near me. My Dr was right And the nearest one that came up is in California!
I happen to live in Illinois. It’s a Long trip from home. Anyone have any ideas on this? Unfortunately, I guess we have to be our own Patient Advocates these days more than ever! It Appears to be an, out of the ordinary box that Drs apparently can make money charging for, but can’t deliver! It’s so frustrating sometimes. Feels like it’s better to leave the box unopened on a shelf! Have to see my Neuro. Dr. for 31 Botox shots to Treat my Shattering Migraine! Thanks for letting me vent! Thank you & have a Wonderful day. Sincerely

#MightyTogether #Migraine #Fibromyalgia

Hello everyone. I decided to write here because arthritis has been part of my life for many years, and it’s a daily challenge I’m still learning to manage. It started with stiffness and pain in my joints, especially in the mornings, and over time it became harder to ignore. Simple things like walking, working with my hands, or even resting properly began to hurt. I’ve tried different approaches, exercises, and lifestyle changes, but flare-ups still come and go, affecting both my body and mood.

A while ago, I came across a gel called Artodip, which I later ordered from this site: progearph.org/deu/joints/artodip-gel. I didn’t expect miracles, but after using it consistently, I noticed some relief—less stiffness, easier movement, and much more comfort during the day. I understand it’s not a cure and doesn’t replace proper treatment, but for me it became a helpful addition to my routine.

I’d like to ask others who live with arthritis: what helps you most in the long run? Has anyone tried Artodip gel, and what was your experience? Are there habits, exercises, or daily routines that truly make a difference? Any advice would be greatly appreciated.

#Arthritis

Has anyone had experience with a pain pump. I am scheduled to get one implanted but a little nervous about it as many meds just do not help me. #AnkylosingSpondylitis #Arthritis #RheumatoidArthritis

I have posted about this before but this is with new insights. Because of heavy lifting when moving the woodpile, I restarted an old groin injury. This much isn't new but what follows is. It also kick started arthritis in my hands which went into spasm several times in the evening. Also getting up in the morning my spine seemed to flex and catch nerves there. Plus an old nerve injury in my left leg flared up again as did ancient bone injuries in my feet, making it painful and difficult to move for a few minutes every now and then. Also my hips itch like mad and (unexpectedly) I keep having problems with static discharge (shocks in my spine and sparks nipping across from my fingers to the metal radiators). Who knew one act would have this many repercussions?

Hi, my name is Plum123. I've been diagnosed with fibromyalgia and osteo arthritis in both knees

#MightyTogether #Fibromyalgia

my everything hurts the arthritis+ Cerebral palsy bad combo
#Osteoarthritis