Chiari Malformation

Hi, my name is RecreatedByGravity. I'm here because I want to live this life to the best of my ability.

#MightyTogether #Dysautonomia #FunctionalMovementDisorder #SubstanceUseDisorders #ChiariMalformation

Hi, my name is UnremarkableMe. I've been diagnosed with EDS & Chiari Malformation, POTS, MCAS it has taken best part of 15 years, finally being diagnosed, only to face a different issue…. get treatment. Navigating this is nothing short of unbelievable but here I am looking for change

#MightyTogether #ehlers-DanlosSyndrome #ChiariMalformation

Hi, my name is AlexCA. I'm here because Chiari Malformation.

#MightyTogether

Hi, my name is chevy3052. I'm here for
chiari malformation support.

Hi, my name is chronicallychaotic24. I've been diagnosed with Chiari Malformation Type 1 (already had decompression surgery in February), Hypermobile Ehlers-Danlos Syndrome and Postural Orthostatic Tachycardia Syndrome.

#MightyTogether

Exhausted trying to get a diagnosis of hEDS.

But now I'm under pressure because my two sons show symptoms. One is Autistic, one is pending assessment. And me? After seeing all the paperwork I realise I'm an undiagnosed autistic adult at 46.

This is on top of, my sister's Chiari Malformation, my late Father's Ankylosing Spondylitis, my Fibromyalgia (supposedly), Hypermobility etc.

Having a hell of a week. As I got full records from the doctor to check over for insurance, and I was diagnosed with CFS & Hypermobility Syndrome in 2000 - the doctor NEVER divulged it to me.

#AnkylosingSpondylitis #Pacemaker #Fibromyalgia #MastCellActivationDisorder #ChiariMalformation #CeliacDisease

Hi, my name is MC72. I'm here because

#MightyTogether #Migraine #ChiariMalformation

Hi, my name is Ljharrison91. I'm here because

#MightyTogether #Fibromyalgia #Bipolar2Disorder #Migraine #EatingDisorder #AnorexiaNervosa #BulimiaNervosa #OrthorexiaNervosa #OCD #Asthma #PTSD #ComplexPTSD #GastroesophagealRefluxDisease #IrritableBowelSyndromeIBS #Gastroparesis #EhlersDanlosSyndrome #MastCellActivationDisorder #PosturalOrthostaticTachycardiaSyndrome #Hypoglycemia #MajorDepressiveDisorder #SocialAnxiety #GeneralizedAnxietyDisorder #AutismSpectrumDisorder #ADHD #Alpha1AntitrypsinDeficiency #ChronicPain #ChronicIllness #RestlessLegsSyndrome #NeuropathyHereditary #TemporomandibularJointDisorders #Bursitis #OccipitalNeuralgia #TrigeminalNeuralgia #ChiariMalformation #Dystonia

Hi, my name is EES041214. I'm here because

#MightyTogether #Depression #Anxiety #Migraine #ADHD #PTSD #EhlersDanlosSyndrome #ChiariMalformation #DegenerativeDiscDisease #Epilepsy #OccipitalNeuralgia #Dystonia #PosturalHypotension #TemporomandibularJointDisorders