Chiari Malformation

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    Neurological Manifestations Of Sjogren’s

    Sjogren’s is manifesting neurologically for me. Working along with my Chiari Malformation (hind brain herniation), I struggle with peripheral neuropathy, degenerative disc disease, and Tarlov cysts. If you suspect this is happening to you, the info in this article may help.

    www.rheumatologyadvisor.com/home/general-rheumatology/expert...

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    Big, scary medical decisions

    I was told by the neurosurgeon this week that I need spinal surgery for my scoliosis. It’s progressed in the past 6 years and he’s recommended I have T2-L5 done at a hospital 8 hours away from home. I’ve been in pain management for the last 4 years and tried many solutions to living with the curves and daily pain. I’m told it’ll be harder to recover the longer I wait, but I’m scared to move forward. #MarfanSyndrome #Scoliosis #ChronicPain #Migraines #duralectasia #ChiariMalformation

    4 comments
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    I'm new here!

    Hi, my name is 1dirobb1. I'm undiagnosed and soon to visit my neurologist. I have a 3mm cerebellar tonsil ectopia. #MightyTogether #ChiariMalformation

    4 comments
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    Newly diagnosed

    Even those I hate labelling it's great to know that I've not just been feeling rather crappy and in pain just because!!
    #ChiariMalformation

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    I'm new here!

    Hi, my name is Gigi4hugo. I'm here because

    #MightyTogether #ChiariMalformation

    3 comments