I'm new here!
Hi, my name is Mis4Me. I'm here because a friend with different issues shared this site, and it caught my Interest.
Hi, my name is Mis4Me. I'm here because a friend with different issues shared this site, and it caught my Interest.
👋 all I have been a part of the mighty since early 2017 when I was diagnosed with Chiari Malformation type 1 and Syringomylia. Rheumatoid, and hyper Thyroid issues run in the family along with other autoimmune disorders, dupitrins contractions and planter fashitis (pretty thats mispelked). We also have Mental health or personality disorders as well.
I didn't ever really come on here till now. After having my son in 2021 I developed severe postpartum depression. It eventually disappeared on its own kinda, it just lessened to depression.I was battleing addiction that had started because of my Chiari diagnosis and decompression surgery. In summer of 2022 i got clean and stayed clean. I went to a psychologist who was in the company of my rehab/general therapist. I was diagnosed with general anxiety, social anxiety, depression, bipolar, and having borderline personality disorder traits. I have recently VERY recently got away from trauma and abuse. I am almost 💯sure I have C-PTSD. Are there other forms of trauma bonding, abuse, PTSD out there what are common symptoms? I have something really weird going on and I dont even know how to really explain it . It i don't know if it's a symptoms concerning my Chiari and surgery site or if its a mental, psychological issue from the trauma. Any similar backgrounds out there? Even not general answers would be appreciated as well. Thnx everyone.
#ArnoldChiariMalformation , #ChiariMalformation , #Syringomyelia #autoimmune Disorders #MentalHealth #BorderlinePersonalityDisorderBPD #DepressiveDisorders #BipolarDepression #ComplexPosttraumaticStressDisorder #behavioralhealth #Trauma #symptoms #DissociativeIdentityDisorder #BorderlinePersonalityDisorder #PTSD #mental #Anxiety #BipolarDisorder ##Nightmares #MoodDisorders #SocialAnxiety #OtherMentalHealth #neuro
Hi, my name is RecreatedByGravity. I'm here because I want to live this life to the best of my ability.
#MightyTogether #Dysautonomia #FunctionalMovementDisorder #SubstanceUseDisorders #ChiariMalformation
Hi, my name is UnremarkableMe. I've been diagnosed with EDS & Chiari Malformation, POTS, MCAS it has taken best part of 15 years, finally being diagnosed, only to face a different issue…. get treatment. Navigating this is nothing short of unbelievable but here I am looking for change
#MightyTogether #ehlers-DanlosSyndrome #ChiariMalformation
Hi, my name is chevy3052. I'm here for
chiari malformation support.
Hi, my name is chronicallychaotic24. I've been diagnosed with Chiari Malformation Type 1 (already had decompression surgery in February), Hypermobile Ehlers-Danlos Syndrome and Postural Orthostatic Tachycardia Syndrome.
Exhausted trying to get a diagnosis of hEDS.
But now I'm under pressure because my two sons show symptoms. One is Autistic, one is pending assessment. And me? After seeing all the paperwork I realise I'm an undiagnosed autistic adult at 46.
This is on top of, my sister's Chiari Malformation, my late Father's Ankylosing Spondylitis, my Fibromyalgia (supposedly), Hypermobility etc.
Having a hell of a week. As I got full records from the doctor to check over for insurance, and I was diagnosed with CFS & Hypermobility Syndrome in 2000 - the doctor NEVER divulged it to me.
#AnkylosingSpondylitis #Pacemaker #Fibromyalgia #MastCellActivationDisorder #ChiariMalformation #CeliacDisease
Hi, my name is MC72. I'm here because
Everyday tasks
There are so many everyday things people take for granted that people with chronic illnesses or other disabilities cannot do.
For example:
Being able to get out of bed in the morning
Eating without pain
Pain-free days
Standing and walking
Being able to work
Maintaining friendships
Being able to exercise
Being independent
These are the simple things so many people take for granted each and every day, so when you think life is hard, remember it could be so much worse ❤️
#RareDisease #EhlersDanlosSociety #EhlersDanlosSyndrome #ChronicFatigueSyndrome #ComplexRegionalPainSyndrome #PTSD #ChiariMalformation #ChronicFatigue #ChronicIllness #MentalHealth