Chronic Fatigue

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Holiday Boundaries, Loving Self, and Chronic Illness!🎁

Hey, y’all! Maybe you’ve been invited to a holiday gathering, but you’re not up to going because of pain and illness.😩 Perhaps you would love to make your famous holiday candy but don’t have the energy. Or someone in your family may be graduating, but it would be too much on your body to attend the function.

For many of us living with chronic illnesses, scenarios like these are not uncommon. Although we may really want to participate in these fun festivities, we must also choose what is best for our bodies, which means putting ourselves first.

This is where setting up boundaries is in order. It’s making sure that you are cared for, that your needs are being met, ahead of others. It is choosing self over what Aunt Sally will say if you don’t show up. Sometimes not being involved is the loving and kind thing to do for oneself!💕

And you don’t always owe someone an excuse as to why you aren’t coming. You can say that you would love to attend but you won’t be available and send your love. And that’s a wrap!💥

Finally, I know that there can be some extra pressure to participate and do things during this busy holiday season, but you don’t always have to be there physically. You can be there in spirit and at the same time rest your body. Also, there will be other future opportunities in which you can participate. So put those boundaries in place and love on yourself! Wendy❤️ #ChronicFatigue #Fibromyalgia #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MultipleChemicalSensitivity #MentalHealth #Anxiety #Depression #ChronicEpsteinBarrVirus

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Today I am feeling more frustrated than anxious. I still have a cold down in my lungs but have no fever. Tomorrow, Monday, I am going to a clinic to have someone checking out my lungs. Hopefully it's not pnynomia, had that from January till June last year (2024). #TheMighty #CheerMeOn #Anxiety #ME #ChronicFatigue
🙏🙏🙏🙏🙏 🙋‍♀️ 💞💞💞💞💞

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I think we should approach some subjects in another place and time other than second semester on uni. #ChronicFatigue #MentalHealth

So I am in university, and doing it remotely for my own sanity and management of time. But I should be off worrying about it by now because I get my tests early and after answering them I send them to the accessibility team so they correct it. We have into the second block in this semester until the 12th, but I’ve sent my tests back almost a month ago, but I’ll have to wait the deadline hits so everyone submitted theirs and they correct our tests and give feedback. But that’s not the issue.
The issue is getting a very tight time on a project that’s “Sustainable Development and Social Impact”, and it’s a pain in the butt honestly.
The topic and idea are good, I’m not gonna lie. But forcing a very tight schedule to students that probably are more worried about other stuff being them remote or going to uni won’t help. I’m doing the project in spite when I do like going through the topics that are on “the table”. I’d love to develop something to help my community, but giving me 15 days to finish something is just a nightmare. Not only mentioning how my teacher loves putting photos around and me being blind, going through the page of the project tool and hearing “clickable, clickable, clickable, clickable…” for about a dozen or more times. Why you demand a project on helping communities if you don’t even make your tool accessible? Gee

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Motivation Monday

Sometimes it seems as if we wait until circumstances are perfectly balanced before we start something. In reality it's *always* the perfect time to start! How can you work on believing that this week and what's something you'd like to start this week?
#Addiction #AnorexiaNervosa #Agoraphobia #Anxiety #Agoraphobia #Autism #BorderlinePersonalityDisorder #MentalHealth #PTSD #Schizophrenia #Lupus #ChronicFatigue #Grief #ADHD #Depression #SuicidalThoughts

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Chronic Illness Trading Cards

I often joke that #ChronicIllness is like #Pokemon so I created a trading card game. I’ll be releasing them on Monday during #MonsterMonday on Facebook. I have #RheumatoidArthritis #Lupus and #sjogrens just to name a few! My first #symptom is #ChronicFatigue ! This is something I experience a lot and is one of my hardest symptoms! So many conditions experience #BrainFog so meet #BrainFogger - the first of many I’m releasing!

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The constant battle of chronic illness and bathing.

This was me last night realizing I still needed to shower and wash my hair. Thankfully my husband was able to wash my hair for me while I sat on the shower chair. It helps my POTS not flare up as much when I don’t have to raise up my arms at all. #ShoweringIsHard #Caregiving #PosturalOrthostaticTachycardiaSyndrome #POTS #ChronicFatigue #MentalHealth #ChronicIllness

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I went out of my apartment this morning after 10 days, both because I didn't have any errands to do and had a mini flu. I didn't know why I felt anxious then remembered I was going for annual car expection. It went well except the hand brake is not working. I am very glad that therevare not more things to get fixed. #Anxiety #MentalHealth #CheerMeOn #ChronicFatigue

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Why Am I Not Meeting My Expected Work Goals?

Hello everyone. I’m a 27-year-old male, diagnosed with Ankylosing Spondylitis nine years ago, and I’m currently on biologic treatment. Last year, I moved from India to Japan for my studies, and I’m now in graduate school. My coursework requires consistency and focus, but I often find myself finishing tasks late. Even when I feel motivated to start working, my body tells me to rest or sleep a bit more. I’m unsure whether this is due to my autoimmune condition or if I’m just being lazy. Has anyone experienced something similar? I would really appreciate any advice on how to cope with this. #AnkylosingSpondylitis #ChronicFatigue

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I just hate my emotions.

#Depression #ChronicFatigue #AutismSpectrumDisorder

I’ve been very upset lately, and sometimes I don’t think I have the right to be upset, because I get upset at the fact I’m smart, but I feel lonely with my mind. Even to the people that might pay some attention to my hyperfixations, I can’t talk to anyone about the greek alphabet, word morphology, other languages I’m learning, cultural shocks within books I read. I’m the person they’ll reach out when wanting to know a historic moment or nuance, but they won’t pay attention to all the history I have to share to make that moment contextual. I retain too much information in my brain, and it’s lonely.

We went to the beach the last two days, for a moment I wasn’t alone with my thoughts, with my loneliness, with my fatigue. I could hear the sea, feel the sand on my feet, the touch of the waves coming while I went into the sea. My mind was in peace, the nature, the inputs were enough to keep myself at ease, and I hate beaches mind you, I usually go for specific reasons and plan on being in the sea almost all the time. As soon as we packed and started heading home, I was again there, with my thoughts, with my knowledge, and nobody to share it to the extent I would feel excited sharing.

People want to have a high IQ, to have high abilities, I tell you that, that’s a curse most of the time, sometimes I wish I was ignorant, that global news wouldn’t affect my worries for example, that I wouldn’t see patterns in situations, I just wish I could relax sometimes, I just can’t, knowing too much is a pain, and if you want to share this pain, they say it’s patronising. I once told I’ve been bullied my entire life for being smart, I was invalidated, like it shouldn’t be such a problem to be bullied for a sharp mind.

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Does Anyone Else Experience Multiple Chemical Sensitivity?

Hey, friends.🌻 I took some medications and also smelled some strong odors today, and the combination of the two overwhelmed my body. So here I am with a bad headache. I took something that’s supposed to help with the headache, but it is not working.😣

I still insist on enjoying my night as much as I can and have checked some things off of my to-do list, while in the bed, as I get ready for Thanksgiving week.

Sometimes these headaches can last for days, so I’m a little anxious about that.😔 I just don’t need this right now! It’s challenging enough to make dishes and desserts from scratch when I don’t have a headache. Standing and holiday cooking drains the little energy I have, and is really hard on my body, legs, and feet. I know everything will work itself out, but I would really appreciate some support right now. Do you experience this multiple chemical sensitivity? ❤️‍🩹#ChronicFatigue #ChronicFatigueSyndrome #Fibromyalgia #MentalHealth #MultipleChemicalSensitivity

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