Chronic Fatigue

Hi, my name is EnvelopingNightjar0. I'm here because I have rheumatoid arthiris, atopic dermatitis, chronic fatigue, FND and NES

#MightyTogether #Depression #MultipleSclerosis #Fibromyalgia

Day 8 – The Reality of EDS and HSD. You may struggle with pain, fatigue, or many other symptoms due to EDS or HSD – What do your symptoms really feel like?

I would like to make a special mention of chronic fatigue, which makes me feel 10 times older than I am.

Then the great winner of the competition for the worst symptoms is pain. Pain can count on various true allies: incompetent doctors or denying my pain. It took me 10 years to have something that relieved at least part of my pain and made me understand that it existed and had a devastating impact on me: electrotherapy with TENS type devices. Not counting the time I learned during a tooth surgery that I was resistant to local anaesthesia. I hate dental surgeons.

Then we have discomfort and clumsiness which are particularly annoying, in the third position.

In the category of symptoms as well boring, there are: joint instability, fragile skin, dysautomia, anxiety, problems related to autism, headaches, gastrointestinal problems.

Thank you for reading. See you tomorrow

#EhlersDanlosSyndrome #MightyTogether

Day 5 – What You See vs. What You Don’t: Share the realities of living with EDS or HSD

It’s a daily adventure. Fatigue, awkwardness, pain, brain fog and more are symptoms that vary enormously from day to day. Sometimes just getting out of bed is a challenge so college is sometimes just unbearable. The fact that I have to use a cane now helps a lot to make people understand that I have a disability before it was just hell in public transport. People see that I am young and therefore that I am at worst depressed => I have perpetual dark circles because of chronic fatigue. However, I have a medical history that would make some people cry. People do not see our reality as sick but like to judge. Sometimes, even I discover new facets of the reality of living with an HSD. To say that the specialist told me it was different from EDS. I find it very similar.

#EhlersDanlosSyndrome #MightyTogether