chroniclyme

Create a new post for topic
Join the Conversation on
107 people
0 stories
11 posts
Explore Our Newsletters
What's New in
All
Stories
Posts
Videos
Latest
Trending
Post
See full photo

🥹✨Habemus Papam!!

Finally, after years of uncertainty, I have found the unwanted guest that is causing me quite a few management problems: it is Mrs. Borrelia Burgdorferi, a bacterium transmitted by infected ticks that causes Lyme Disease.

In Italy, in about 10 years, just over a thousand cases of this disease have been diagnosed, but the incidence could be higher considering that people still speak little and the differential diagnoses often leave something to be desired.

In fact, in 20% of cases the erythema migrans, which is the main symptom recognized by doctors, does not appear.

This can make diagnosis more difficult, and when the body can no longer handle the infection, I assure you that the symptoms can become strange and unpredictable!

My hope now is to finally find a specialist who can follow me on this journey, to check whether this cute arthropod has brought with it other bacteria and assess any damage.

Even if finding out so late makes everything longer and more complex, I'm relieved to finally be on the right path and not to have stopped in my search!

🌟 LESSON #1 : Don’t Give Your Power Away!#MightyTogether #malattiadilyme #borreliaburgdorferi #diagnositardiva #lymeawareness #chroniclyme #percorsodiguarigione Finalmente, dopo anni di incertezze, ho trovato l'ospite indesiderato che mi sta causando non pochi problemi di gestione: è la Sig.ra Borrelia Burgdorferi, un batterio trasmesso da zecche infette che provoca la Malattia di Lyme.

In Italia, in circa 10 anni, sono stati diagnosticati poco più di mille casi di questa malattia, ma l’incidenza potrebbe essere più alta considerato che se parla ancora poco e le diagnosi differenziali lasciano spesso a desiderare.

Nel 20% dei casi infatti l’eritema migrante, che è il principale sintomo riconosciuto dai medici, non compare.

Questo può rendere più difficile la diagnosi e, quando il corpo non riesce più a gestire l’infezione, vi assicuro che i sintomi possono diventare strani e imprevedibili!

La mia speranza adesso è di trovare finalmente uno specialista che possa seguirmi in questo percorso, per verificare se questo simpatico artropode ha portato con sé altri batteri e valutare gli eventuali danni.

Anche se scoprirlo così tardi rende tutto più lungo e complesso, sono sollevata di essere finalmente sulla strada giusta e di non essermi fermata nella ricerca!

🌟 LESSON #1 : Don’t Give Your Power Away!

(edited)
Most common user reactions 1 reaction
Post

I'm new here!

Hi! I'm here because I want to learn more about recent diagnosis for chronic Lyme & dysautonomia (still figuring out what) & treatment options. I do have other co/chronic illness as well.

#MightyTogether #Migraine #Dysautonomia #CeliacDisease #LymeDisease #chroniclyme #sibo #EBV

Most common user reactions 1 reaction 4 comments
Post

Looking for your thoughts

Do you think taking a Sea Moss supplement while having chronic Lyme disease can cause a herx reaction?? Have you experienced this? #LymeDisease #chroniclyme

Post
See full photo

I’m new to The Mighty

I’ve been trying to get out in the sun and fresh air to paint before the real cold settles in. Many days I don’t have the energy but a few days ago it was so nice out that I took out my water soluble crayons and played with them on my deck.

#Art #ArtTherapy #painting #distraction #DistractMe #Inspiration #ChronicFatigue #Fibromyalgia #IrritableBowelSyndromeIBS #chroniclyme #sibo #ChronicPain

16 comments
Post
See full photo

Experienced Beyond Age. #LymeDisease #chroniclyme #TraumaticBrainInjury #diabetic #braintumors #BrainAneurysm and so much more.

27, I am 27 years old amd feel that life has thrown more then enough my way. I walk the path of being chronically ill and the path of being a care taker. Never once when I was younger think that I would experience so many things in such a short time. I feel I have so many stories that just fall on deaf ears, the desire to help others has just grown more with each life event I encounter. I dont know if there is any other way to release these feelings than to help someone else on their journey when it starts at a young age.
It feels like I have no safe place to go and share my life experiences or how I am truly feeling in our society today.
Thank you for listening.

Post

Vaccine or don't vaccine? #COVID19

As the covid-19 vaccine hits the market, here in the UAE I know it won't be long until teachers are mandated to get the vaccine. It's early days still and I wish there was more insight on if this is recommended for #LymeDisease #chroniclyme patients... Thoughts?

2 comments
Post

Can anyone help me with Lyme rage? I desperately need help. Someone who understands and can give me ANY advice at all. I do not know of anyone 😓

#lyme #lymerage #ChronicIllness #chroniclyme #LymeDisease

9 comments
Post

If you only knew how strong I was. #LymeDisease

If you only knew how strong I was.

If you only knew how hard I tried every day.
If you only knew I cried every day.

If you only knew how sad I was.
If you only knew how bad it was.

If you only ever gave me chance to explain.
If you only ever really saw my true pain.

If you only weren't so narrow minded.
If you only cared we wouldn't be so divided.

If only you knew how strong I was.
If only you knew for how long I was.

If only you knew my day starts and ends in tears.
If only you knew I can't even count my fears.

If only you knew my kids are my world.
If only you knew I screamed till they whirled.

If only you knew I hurt those closest to me.
If only you knew I divert everything.

If only you knew I fake my smile.
If only you knew you're all in denial.

If only you knew my pain wasn't so small.
If only you knew you know nothing at all.

#lyme #chroniclyme #ChronicIllness #ChronicPain #Spoonie #LymeWarrior

5 comments
Post

So Damn Tired

My body is battered
And so damn tired.
My brain is scattered,
Jumbled and quagmired.
I can’t feel anything.
My heart is numb.
Still I’m stunned by every sting.
And pain makes me succumb—

To these visions of dread,
Voices howl in my head,
I shatter into a billion pieces.
I build colossal stone walls,
Brace for plummeting falls,
But the ache in my chest never ceases.
And the hurt never heals or decreases.  

#MySymptoms#chroniclyme #chroniclillness #Migraines #ChronicPain #Fibromyalgia #invisibledisease

2 comments
Post

Continuing to feel alone #chroniclyme #InvisibleIllness

I know there's a lot wrong with me physically right now. New things. Not supported as much as I'd like at home. I went to a Dr today and she blamed it on stress and I just felt so invalidated and angry. I need to be heard. I hate being sick for so long.
#CheckInWithMe

4 comments