Cyclic Vomiting Syndrome

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Cyclic Vomiting Syndrome
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Anyone heard of this woman??

Hi everyone! My name is Amy and I was recently diagnosed with #BorderlinePersonalityDisorder . Just like when I was FINALLY diagnosed with #CyclicVomitingSyndrome it’s weirdly refreshing and freeing just to have a name to put on the thing that has controlled my life and destroyed my relationships. I found this site by accident. I am in healthcare, so I am an research (peer reviewed, empirical, stories, videos…whatever will help me understand) so I typically end up spending hours going down multiple rabbit holes.
I doing this, I ran across videos from a lady named AJ Mahari. WOW! If I didn’t hate who I was and what I did to those I love before, I surely did after watching some of her stuff!! I realize her videos are more directed towards the partners of those with BPD, but she is brutal and so off course on several things. The two videos that stopped me in my tracks (because all of the research and articles I read say the exact opposite, and I know what I feel) discuss that 1) “Borderlines Don't Cant & Won’t Love You or Attach To You”, and 2) “ Loving a Borderline Is Impossible”. Well if my inner demons weren’t screaming already, they certainly were after seeing and hearing her video. Has anyone else “experienced” her? #BorderlinePersonalityDisorder #CyclicVomitingSyndrome #Depression #Anxiety

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Experienced yet confused

I have suffered from depression and anxiety for as long as I can remember. I also have seizures and Cyclic Vomiting Syndrome, PTSD, been told I was bipolar by a shrink I have sought help and now take medications to help. Even though I myself for the most part can handle myself I have recently found out my 16yr old son is so depressed he is suicidal. I knew he was depressed I guess I didn’t realize how depressed he really was. I got him to see a counselor but they only meet for 30 min every 2-3 weeks. I don’t feel like it’s enough am I wrong? He doesn’t want to take meds. Should I make him? Should I have my Pastor counsel as well? Can anyone please give me any advice? It would be much appreciated. Any ideas or advice anything would help. I’m so worried and it’s making my anxiety and depression worse but I would never tell him that. Does anyone have any ideas that could also help me? I’ve seen about drawing or coloring, reading, and writing. Does anyone find that these things help for themselves or for teens? Again any advice or ideas would be so great. Thanks in advance.

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Disability shaming again?! Ugh👎🏼 #Disability #InvisibleDisability #ChronicPain #ChronicIllness

Have you guys seen this story making its rounds in the news, TMZ and NY Post? A young man in Australia was at a McDonald’s, in a handicapped parking spot with his placard displayed and had an elderly woman confront him to ask if that was his placard and If he legitimately needed that spot. He then gets out of his car and shows his prosthetic leg… She claimed she had “the right” to ask him if it was his placard or not and if he needed it. What are your thoughts? 💭
How many have had this happen to them or a friend? 🙋🏼‍♀️ Where someone assumes and questions the validity of your handicapped placard and the need of a spot or the need of a mobility aid? ♿️
I know I have, being a young person having a placard and mobility aid I’ve gotten so many dirty looks and head shakes. It use to bother me more when it happened to me but usually I’m in too much pain to care!!! 🤣🤷🏼‍♀️ What infuriates me is when this happens to others in our disabled community. Haven’t we come further as a society with our education to know that not all disabilities are visible?! This can be so damaging to us. I figured until someone has limped a mile in my walker and in our place, they don’t have the right to question our validity. Just my hot take 🙌🏼♿️ We are stronger and mightier together, wishing the best week for you all ❤️🙏🏼 #ChronicPain #ChronicIllness #BackPain #MastCellActivationDisorder #RheumatoidArthritis #sciatica #Migraine possible #ComplexRegionalPainSyndrome #Costochondritis #SpinalFusion #Anxiety #Insomnia #CyclicVomitingSyndrome


Advice for trying not to eat when you throw everything up? #Gastroparesis #ChronicIllness #CyclicVomitingSyndrome #ChronicPain

I’m not able to eat at all without throwing up and in turn being in excruciating pain after. I get cravings and get hungry like everyone else, so I just give in and eat knowing i will regret it. Does anyone have advice or tips for ignoring wanting to eat/ignoring the cravings or trying your best not to eat?
#Gastroparesis #ChronicIllness


How can I get rid of heavy periods and pms?

Every time it's the same. My periods and my pms are always heavy and cause many side effects like, pain, cramps, nausea, dizziness, exhaustion, and sometimes passing out. Another problem is that I often have it twice a month and that hormonal medication doesn't work well and causes uncomfortable side effects. How can I get rid of it? #Dysmenorrhea #Period #Periods #NauseaAndVomiting #CyclicVomitingSyndrome #PMS #exhaustion #Passingout


Easy Food Recommendations?

I’m on TPN because I have an undiagnosed Stomach Disorder that my Doctors are still trying to figure out.
The thing is that I try not to eat as I get severe pain from it and I throw up every single thing I even try to eat because I can’t hold it down.
Does anyone have any recommendations for foods that are easy to come back up?
#TPN #ChronicIllness #Food #Gastroparesis #ChronicPain #Advice #Recommendations #CyclicVomitingSyndrome #Other