I’m new here!
Hi, my name is Lina4all. I'm here because I have multiple food allergies and some autoimmune disorders and I am looking for natural solutions. The medical community has nothing for me.
Hi, my name is Lina4all. I'm here because I have multiple food allergies and some autoimmune disorders and I am looking for natural solutions. The medical community has nothing for me.
I'm wondering if anyone has found a feeding tube product that is GRAIN free , SOY free, and DAIRY free ?
I am currently at Stanford and they have put in a NJ but then tried to give me a product with brown rice in it which I am allergic to . They have now properly documented my food allergies are now working to find a product that I can tolerate but are having no luck. What we are finding is everything that is dairy, soy and gluten free has brown rice or corn in it and I can't tolerate any grains.
I'm starting to loose hope that I'm ever going to get nutrition in me .I've been dehidrated and slowly starving for over a year and a half and I just want to give up. All of my medical team was very aware of my food allergies and did not do their research to find a product before advising me to get this tube placed so now, 3 days into my NJ with no nutrition and I feel like it is all up to me to figure out. So I'm reaching out to all my wonderful Mightys to ask for help in his task . Thank you all 💞
Three underlying causes for CFS can be hypothalamus and/or pituitary and/or adrenal dysfunction. The hypothalamus talks to the pituitary gland which tells the adrenal glands to make cortisol, described here www.hopkinsmedicine.org/health/conditions-and-diseases/adrenal-glands. I haven’t tested my hypothalamus so I won’t cover it here. I do have pituitary and adrenal dysfunction.
Patients do blood and urine cortisol level tests to determine adrenal function. This article, The Role of Cortisol in Adrenal Dysfunction | Holtorf Medical Group describes what cortisol does. I also just read about saliva testing for this. I regularly have a blood test done that determines my cortisol levels.
The articles Adrenal Dysfunction - Holtorf Medical Group Adrenal Dysfunction and Chronic Fatigue Syndrome - Holtorf M... and mosscenterforintegrativemedicine.com/conditions-diagnosis/fa... discuss symptoms, testing, and treatment from two different medical facilities, Holtorf Medical Group in California and Georgia, and Moss Center for Integrative Medicine in California.
I’ll let you read those articles and jump into treatment. I think two things prevent the treatment of CFS/ME. The first is a lack of knowledge of and/or access to CFS/ME specialists, who I define as doctors who know the underlying causes of CFS/ME and treat them, or at least tell you where you need to go to get that treatment if they can’t provide all of it. The second is a lack of funds to see specialists, get testing done, and pay for treatment.
As a result, I’m going to start with treatment you can do at home without having to pay for testing or medicine or supplements, beginning with two things that can negatively impact your adrenal glands, diet and stress.
Here are some diets to keep in mind with adrenal dysfunction and CFS/ME. Seventy percent of CFS patients have Fibromyalgia, so you can choose this diet Fibromyalgia Diet: What to Eat, What to Avoid - Holtorf Medical Group The Integrative Medicine article above specified another diet for fatigue. I don’t have Fibromyalgia, but do have another autoimmune condition and immune deficiency. I was told by my Holtorf Medical Group doctors to eat lean meats and vegetables, and avoid sugar, caffeine, alcohol, and gluten. I am allowed to eat small amounts of Stevia. These diets do have similarities. It’s important to know your food allergies as well and avoid those.
Reducing stress will also help alleviate adrenal issues. This article suggest some ways to do this, Why Do Stress and Adrenals Go Hand In Hand? - Holtorf Medical Group although pushing beyond your physical abilities is a definite no.
Just diet and stress reduction don’t necessarily solve all of your adrenal issues. Correct testing can tell you which hormones you may need to supplement. I would be remiss if I didn’t include this article on adrenal glands and Fibromyalgia as well, Adrenal Dysfunction and Fibromyalgia - Holtorf Medical Group which lists the hormones that can be affected.
And don’t forget that adrenal issues may point to hypothalamus and/or pituitary dysfunction. The pituitary gland controls hormones. An MRI of my pituitary gland showed that I have to go to an endocrinologist to narrow my diagnosis down to one of two possible problems, a mini tumor or Rathke cleft cyst. I do take supplements and compounded medication for hormone issues.
Best wishes to all of you with CFS/ME.
This reminds me of the time “Baby Kangaroo Tribbiani” got a thesaurus 🙈
#DistractMe #ThriverThursday #Endometriosis #PolycysticOvarySyndrome #ChronicIllness #ChronicFatigue #ChronicPain #MyalgicEncephalomyelitis #Fibromyalgia #AdrenalInsufficiency #Headache #FoodAllergies #Migraine #MyCondition
I think the kids would definitely TP my house if I actually did this 😂
#DistractMe #CheerMeOn #Spoonie #ChronicFatigue #ChronicIllness #MyalgicEncephalomyelitis #HypothyroidismUnderactiveThyroidDisease #MultipleChemicalSensitivity #FoodAllergies #MyCondition #Halloween #Meme #MakeMeLaugh #Fun #LaughOutLoud
Has anyone in America lived in a prefabricated home/double wide trailer/manufactured home? (I’m not sure if they have them in other countries, but if they do, please share your experience too!)
I need to buy a house. But I might only be able to afford one of these type of homes.
Have any of you Mighty disabled folks bought one? What was your experience like? Do you regret it? How is it specifically with regards to disability and illness? Also any insight with regards to mold? I have mold toxicity and am extra sensitive.
#MultipleChemicalSensitivity
#ADHD
#Anxiety
#FoodAllergies
#Gastroparesis
#Migraine
#PosturalOrthostaticTachycardiaSyndrome
#LymeDisease
#Autism
#ADHDInGirls
#SensoryProcessingDisorder
#EhlersDanlosSyndrome
#MastCellActivationDisorder
#ObsessiveCompulsiveDisorder
#PTSD
#c -PTSD
#rejection sensitivity dysphoria
#Depression
#Trauma
#Loneliness
#Asthma
#ChronicIllness
#Disability
Hi, my name is Weluvmomma. I've been diagnosed with MCAS back in January, after a yr of labs and back n forth trips to my allergist office. however I suffer with chronic fatigue and chronic pain throughout the day. and a handful of antihistamines daily this is just insane. for 18 yrs I suffered from CHRONIC hives that were a head to toe. still waiting to hear from a GI specialist as I have more GI issues then I’d care to admit. most recently my doctor put me on cromolyn(before meals) but who can remember that before eating. food allergies are short, corn(this is in EVERYTHING even otc meds, I have to have my allerga compounded just cuz of corn byproducts), raspberries,kidney beans, hazelnut/ filbert, and oysters. the rest is a fork ton of environmental allergies. I live in the PNW we are the evergreen state for a reason and I’m allergic to most of the trees here . anyone else?
Hi, my name is Kimmy85. I'm here because I have discovered a hive like rash on my legs this week. Never seen before. Skin is usually blemish free. I don't have any food allergies that I know of .Just finished a course of antibiotics,maybe this is the cause . Can anyone shine any light.
A dietary restriction means the person has limitations to certain foods which they cannot or will not eat. There are many reasons for dietary constraints and they differ from person to person. Some of the more common ones include dietary restrictions based on a medical condition such as a food allergy, sensitivity or disease management. Other restrictions are based on religious practice while some are based on personal lifestyle choices.
Food allergies or sensitivities, religious practices, and ideological beliefs are some of the main reasons people rely on specific diets or follow dietary restrictions.
While some restrictions are meant to prevent life threatening events, others speak to your guest’s personal and moral beliefs. Either way, they’re equally important.
Dietary restrictions are certain foods or ingredients that a person can’t or won’t eat. In the U.S, 40% of the population follows nutritional rules of some kind. They can be adopted by choice or recommended for medical purposes.
You can refer to this: