heatintolerance

Hey friends, it’s been awhile but I need your help. It is now summer where I live and I am severely struggling. I go outside in the heat for 5 minutes and I feel awful the rest of the day. I feel really dizzy and nauseous and my ears start ringing. My feet also have a fun habit of turning purple. I’ve been drinking a ton of water and I wear compression socks occasionally but it barely makes a dent in helping my symptoms. Sometimes I think the compression socks make the heat worse. Any tips on handling the summer? Any and all advice is welcome!
#PosturalOrthostaticTachycardiaSyndrome #Heat #ChronicIllness #Spoonie #SpoonieProblems #help #Advice #heatintolerance #bloodpooling #circulation #Summer #compressionsocks
#chronic #heatintolerance #Summer

So tomorrow I get to take a 999 mile trip from Georgia to Wisconsin. I'll get that extra 1 in there to make it even.

Anyone else absolutely hate long drive? My body aches so bad afterwards. Any tips for surviving? #ChronicPain #Endometriosis #diffuseAMPS #Fibromyaliga #InterstitialCystitis #HashimotosThyroiditis #heatintolerance #RoadTrip

Has anyone tried this device? The #embrwave Apparently it’s a “personal thermostat”. It can cool you down or even warm you up with the push of a button. It is real pricey, around $300. It sounds real gimmicky to me but as someone who suffers from #Fibromyaliga with pretty intense #heatintolerance where I can even be too warm here in the Chicago winters. This is something I want to try but the price tag is holding me back.

In Buffalo, it was 94 this past week!! WHAT is going on?!

For the past couple of years due to lupus and NCS I was unable to spend 15+ minutes outside if it was anything over 74 degrees...

Until this year.

I spent an entire afternoon soaking up the sun, laying by the pool, playing tennis (horrible at it, btw), and didn't feel like passing out, vomiting, itchy skin or get a heat rash!

Here are some things that have helped immensely.

1. ThermApparel cooling vest. This is a local, very sma business (Rochester, NY) that received a grant at RIT to create something that helps those with MS who can't stand outside in the heat.
I did a video review on this actually so you can see exactly what it looks like and how it feels on Lupus Health Shops YouTube channel.
Benefits:
🔵It can be covered by insurance because it's considered a DME and it's under the $500 threshold which means a doctor's note should be enough proof for approval.
🔵It prevents nausea, headache, and heat stroke symptoms
🔵The cooling packs can easily be refrozen in as little as 20-30 minutes if placed in a cooler, fridge, or ontop of the A/C fan in your car.
🔵it's unisex fit and is super thin and comfy
🔵It's worn under your shirt so that noone sees it on.
🔵You don't feel cold(common misconception)

Those that found it helpful:
Lupus
MS
Fibro
NCS
POTS
Anyone who doesn't want to drop sweat bullets doing outdoor activities like mowing the lawn.

Cooling scarf: This is another wonderful idea and it's way cheaper.
Benefits:
🔵Cools you down
🔵Can be re-wet anywhere as long as you have access to water
🔵Way more affordable
🔵stylish
🔵 You don't feel wet (common misconception)

Those that found it helpful:
Lupus
Thyroid issues
MS
POTS
Anyone who's hiking or doing outdoor activities

I don't have a specific brand because I prefer the incognito vest, but there are a few nice ones on Etsy to help support small and local business!

Diet change:
This is actually one of my biggest preventative factors for so many of my health issues, but it did take me months to figure out what's best for my bodytype. Just because I went "Paleo" doesn't mean it worked. I had to tailor it to me and then it reallllly kicked in. We're all different and it's best to work with a functional practioner to help.

Oh before I forget - drinking electrolytes first thing in the AM with a giant glass of water helps hydrate you. Another for when you'll be outside.

🔵Nuun, Go Ultima, Drip are all good ones!
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#MultipleSclerosis
#Fibromyalgia
#NeurocardiogenicSyncope
#LupusDiagnosis
#heatintolerance
#Spooniehack
#Parenting
#ChronicFatigue
#Lupus
#LivingWithPOTS
#PosturalOrthostaticTachycardiaSyndrome

One of the worst things about this time of year is the heat. Dysautonomia, NCS, and ITS always make sure they rear their ugly little heads when it comes to the heat. Luckily, I found a cooling vest. Hopefully this will give me the freedom to actually be outdoors this summer and not die every time I go outside, or spend the rest of the day asleep after just going grocery shopping from the heat terrorizing me. When the walk from the car into target causes you to pass out, it’s way too much. So here’s to hoping I can enjoy summer. And these 100 degree days before the 1st of June. And all the naps I’ve taken to combat this.