Would y’all in the #EhlersDanlosSyndrome community say this is hyper mobile? I’m working with my doctors to get an hEDS diagnosis. I have several hyper mobile joints as well as passing the Beighton Scale. Multiple other systemic issues as well - been diagnosed with POTS, Interstitial Cystitis, IBS and more. #EDS #JointHypermobilitySyndrome 🦓🦓🦓
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It's that time of the week! Tell me three things you're thankful for 👇
And take what you need from the tips.
#Addiction #Anorexia #Agoraphobia #Anxiety #AutismSpectrum #ADHD #BorderlinePersonalityDisorder #BipolarDisorder #MentalHealth #PTSD #Schizophrenia #Lupus #CeliacDisease #InterstitialCystitis #Grief #AutonomicDysfunction #SjogrensSyndrome #Cancers #Suicide #Selfharm #Trauma
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Some "To Don'ts". Which one are you taking?
#AutismSpectrum #Agoraphobia #AnorexiaNervosa #Anxiety #Addiction #BipolarDisorder #BackPain #MentalHealth #ChronicFatigueSyndrome #CeliacDisease #Cancers #ChronicIllness #InflammatoryBowelDiseaseIBD #InterstitialCystitis #ADHD #EatingDisorder #Lupus #Grief #Schizophrenia #PTSD #JointHypermobilitySyndrome #MoodDisorders #NarcissisticPersonalityDisorder
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There is no worse feeling then people being mad at you for being sick.
#Endometriosis #Depression #MentalHealth #InterstitialCystitis
1 reaction Hi, my name is WhinnyNinny8325. I'm here because I experience pain on a daily basis because I have a chronic illness that doctors do not give pain medications for. It has been bad for 4 years and I have spent thousands of dollars on meds, herbal supplements and doctors that has not got me anywhere. I have lost hope of ever finding anything that will help. I have pelvic pain due to Interstitial Cystitis. This condition is so complicated that it is different for everyone, different causes, different treatments to help different people, sometimes multiple treatments to help one person, etc..... I have multiple bladder issues, everything but incontinence. It has taken over my whole existence. Making it difficult to do anything, enjoy anything, or even barely function most of the time.
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I got my CWD (Children with Diabetes) award for 25 years of type 1 diabetes! Just wanted to share this milestone. It was weirdly emotional to get the medal in the mail and be recognized for one of my hardest invisible battles. 💙
And no, I did not eat too much sugar as a kid. It was a total coincidence being diagnosed on Halloween! Type 1 diabetes is an autoimmune disease. 👍
*Been asked that question soooo much* 😅
#DiabetesType1
#Fibromyalgia
#ChronicFatigue
#PolycysticOvarySyndrome
#InterstitialCystitis
#ADHD
#Depression
#Undiagnosed
#GastroesophagealRefluxDisease
#IrritableBowelSyndromeIBS
#Gastroparesis
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Does anyone have IC as an added diagnosis to Fibo? My urologist thought it was part of my auto immune issues but my rheumatologist seems to think it's more closer linked to Sjogrens.
Any thoughts would be helpful. Thank you!
#Fibromyalgia #InterstitialCystitis
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How can we work on keeping our cup half full? What things on the list would be helpful for you? Let us know how you plan to keep your cup more full in the comments!
#PTSD #Addiction #MentalHealth #Anxiety #BorderlinePersonalityDisorder #BipolarDisorder #ADHD #ChronicFatigueSyndrome #Lupus #Endometriosis #Cancers #AnorexiaNervosa #Depression #MajorDepressiveDisorder #EhlersDanlosSyndrome #InterstitialCystitis
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Hi, my name is Kwinkles. I'm here because I have had enough sitting in silence and want to find a community of support.
#MightyTogether #Fibromyalgia #BipolarDisorder #PTSD #ADHD #hashimoto 'sThyroiditis#PosturalOrthostaticTachycardiaSyndrome #Anxiety #Depression #Migraine #InterstitialCystitis
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Hi there,
I am new here a single parent and have Diabetes type 2
Severe fatty enlarged liver
Psoriatic arthritis
Ehlers Danlos Syndrome
Chronic pain
Complex regional pain Syndrome right arm
Mild pots syndrome
Fibromyalgia
Interstitial cystitis
C5/c6 disc replacement
Endometriosis
Hemiplegic migraines
Anxiety
Depression
Medical PTSD
Complex PTSD
I'm really looking for anyone who can relate to being so unwell and parenting. My partner also has BPD and is putting me through hell I'm thinking of leaving him. So I'm really struggling in my own and so isolated and lonely 🪷🪷
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