Scoliosis

#AmplifiedMusculoskeletalPainSyndrome #Arthritis #Asthma #Anxiety #bedbound #BoneSplints #ChronicFatigueSyndrome #CheckInWithMe #ChronicPain #ChronicIllness #ComplexRegionalPainSyndrome #Depression #Disability #DistractMe #EhlersDanlosSyndrome #Endometriosis #Depression #Disability #DistractMe #EhlersDanlosSyndrome #Endometriosis #Fibromyalgia #GastroesophagealRefluxDisease #HypothyroidismUnderactiveThyroidDisease #Insomnia #Lupus #Lymphedema #MentalHealth #MemoryLoss #MightyPets #MightyTogether #Migraine #PosturalOrthostaticTachycardiaSyndrome #Psoriasis #PsoriaticArthritis #PTSD #PanicAttack #PanicAttacks #plantarfasciitis #RareDisease #RheumatoidArthritis #SuicidalThoughts #Scoliosis #sciatica #ShinSplints

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1bellanizza

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@1bellanizza

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I’ve had chronic pain now for 2 1/2 years and in the first year it was extremely painful only but it’s time has gone on. It’s moved into my brain in that the way I think the way I look at things is so different. I keep myself distracted as best I can with my golden retrievers and birds and they does diminish a slightly. This is about a significant scoliosis as well.

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AmplifiedMusculoskeletalPainSyndrome 1d

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❤️❤️

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#AmplifiedMusculoskeletalPainSyndrome #Arthritis #Asthma #Anxiety #bedbound #BoneSplints #ChronicFatigueSyndrome #CheckInWithMe #ChronicPain #ChronicIllness #ComplexRegionalPainSyndrome #RareDisease #RheumatoidArthritis #SuicidalThoughts #Scoliosis #sciatica #ShinSplints #Depression #Disability #DistractMe #EhlersDanlosSyndrome #Endometriosis #Fibromyalgia #GastroesophagealRefluxDisease #Grief #HypothyroidismUnderactiveThyroidDisease #Insomnia #Lupus #Lymphedema #MentalHealth #MemoryLoss #MightyPets #MightyTogether #Migraine #JuvenileRheumatoidArthritis #PosturalOrthostaticTachycardiaSyndrome #Psoriasis #PTSD #PsoriaticArthritis #PanicAttack #PanicAttacks #Psychosis #plantarfasciitis

AmplifiedMusculoskeletalPainSyndrome 1d

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Another Rosie pic for your Monday! Because everyone deserves a Rosie pic to start their day 😉 See how she sticks her whole nose in the rose? Lol

I would feel the same way....except on the days when she wakes me up with her grumbles about my sleeping late 😂 and yes they literally sound like a tiny frustrated person is trying to politely grumble someone awake 🤣

She is a Very talkative pup! Her sassy grunts of unhappiness if we don't pay her as much attention as she wants are the funniest things!

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#AmplifiedMusculoskeletalPainSyndrome #Arthritis Asthma #Anxiety #bedbound #BoneSplints #ChronicFatigueSyndrome #CheckInWithMe #ChronicPain #ChronicIllness #ComplexRegionalPainSyndrome #Depression #Disability #DistractMe #EhlersDanlosSyndrome #Endometriosis #Fibromyalgia #GastroesophagealRefluxDisease #Grief #HypothyroidismUnderactiveThyroidDisease #Insomnia #Lupus #Lymphedema #MentalHealth #MightyPets #MightyTogether #Migraine #PosturalOrthostaticTachycardiaSyndrome #PTSD #Psoriasis #PsoriaticArthritis #plantarfasciitis #PanicAttack #PanicAttacks #RareDisease #RheumatoidArthritis #JuvenileRheumatoidArthritis #SuicidalThoughts #Scoliosis #sciatica #ShinSplints

AmplifiedMusculoskeletalPainSyndrome 2d

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Roses for Rosie ❤️💕❤️💕

When I named her I had no idea how much she loves flowers and roses. She is drawn to them and always has to smell them each time. It lightens my soul each time.

The previous owners of our property planted 7 red rose bushes and they thrive year round! It is a wonderful to see 🌹

Enjoy this Rosie pic with her namesake ❤️

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48 reactions • 12 comments

#AmplifiedMusculoskeletalPainSyndrome #Arthritis #Asthma #Anxiety #bedbound #BoneSplints #ChronicFatigueSyndrome #CheckInWithMe #ChronicPain #ChronicIllness #ComplexRegionalPainSyndrome #Depression #Disability #DistractMe #EhlersDanlosSyndrome #Endometriosis #Fibromyalgia #GastroesophagealRefluxDisease #Grief #HypothyroidismUnderactiveThyroidDisease #Headache #Insomnia #Lupus #Lymphedema #MightyTogether #MentalHealth #MemoryLoss #Migraine #CheerMeOn #RareDisease #SuicidalThoughts #Scoliosis #ShinSplints #musclespasms #PosturalOrthostaticTachycardiaSyndrome #Psoriasis #PTSD #plantarfasciitis #PanicAttacks #PanicAttack #PsoriaticArthritis #Psychosis #RheumatoidArthritis

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Rebecca8170

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@rebecca8170

My scoliosis Journey

Hi there all my name is Rebecca I have lived with scoliosis since I was 15 years old and now I am 24 years old.

My scoliosis Journey is this year and my boyfriend is going to help me out with my rehabilitation and all that. My motto is always keep on fighting. I was at Fraser high school when I had my scoliosis check ups on my spine.

My scoliosis surgery date is on the 13/03/2020 two more weeks till my back surgery

On the 13/03/2020 l got my back done and I was in four rooms intervene care then high dependent unit then M6 room 12 then OPR2 room 12

This is the day I came home from my second home and I had loads of support from my parents and my boyfriend and my second home staff members. I was home from my second home on 25/03/2020

I was home before my twentyfifth birthday. (my lockdown birthday)

My scoliosis was just a normal thing that I got used to but now my new back is my new life now.

I was reminded to the hospital on 20/5/2020 I am only here for my rehabilitation program for a week

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AmplifiedMusculoskeletalPainSyndrome 5d

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Deep breaths 💖

Take a moment and think of how you would treat your best friend on their worst day.

Now treat yourself like that 💕💕💕

You Are Worth Time and Care! You Are Worthy of help! You deserve contentment and joy! Happiness is for you!!

Please take care of yourself ❤️
You know your struggles and troubles best- you also know your favorite things in life 😉
Plan some good things you can look forward to each day, each week, and each month.

Looking forward to life and living is easier when you are excited for something good you know is in the future.

Gentle hugs ✨️ You are Mightier than you realize!

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17 reactions • 5 comments

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#AmplifiedMusculoskeletalPainSyndrome #Arthritis #Asthma #Anxiety #bedbound #ChronicFatigueSyndrome #CheckInWithMe #ChronicPain #ChronicIllness #BoneSplints #ComplexRegionalPainSyndrome #Depression #Disability #DistractMe #EhlersDanlosSyndrome #Endometriosis #Fibromyalgia #GastroesophagealRefluxDisease #Grief #HypothyroidismUnderactiveThyroidDisease #Headache #PosturalOrthostaticTachycardiaSyndrome #Insomnia #Lupus #Lymphedema #MightyTogether #MentalHealth #MemoryLoss #Migraine #CheerMeOn #PTSD #Psoriasis #PanicAttacks #PanicAttack #Psoriasis #PsoriaticArthritis #plantarfasciitis #RareDisease #RheumatoidArthritis #AnkylosingSpondylitis #SuicidalThoughts #Scoliosis #ShinSplints #Upallnight #musclespasms

AmplifiedMusculoskeletalPainSyndrome 5d

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We all have these times in our lives. Many are no doubt in this same place right now too.

I was there for almost 2 decades. Not including the 13 years I suffered in pain, alone before. I found peace in my religion as I purposely put one foot in front of the other, often not literally as my body quit on me in ways no doctor understood.

Finally a two months ago I got a rheumatologist who understood and was intelligent and not just guessing. And he wasn't going to give up like the rest of them. And then I finally got a pain doctor who wasn't terrified of medicine and at long last I got the REAL dose I needed. It has been such a long time coming!

So trust that life has things in store that others say will never happen. Trust! Have faith! Dare to dream and hope!
Become the exception, someone who doesn't settle and fight on for that happiness!

When I first found this forum I posted about how I was in so much pain I wanted to die. And in a response from a friend, one who I looked up to and still do, he said: what if tomorrow they come up with a treatment or cure for your condition?? Wouldn't you wish you held on until then?

Life is better when we hope. We live better when we hope!
Don't settle dear Mighty friends. Things will improve, you just have to give time, time.

In the scriptures there is a story of a man who suffers unable to walk for 38years. And then Christ heals him.
I can't help but think how very hard it would be so long ago to exist like that. Nowadays we have running water, toilets, walk-in showers and baths with hot water. We have refrigerators and food that we can buy pre-sliced. We have cars and various Taxi options. We have online shopping and dollar stores! And snack foods that stay good for a long while.

Even in bad health and struggles, we are very blessed. Think of your ancestors who no doubt had problems that you have but no name to put to it, perhaps like yourself. The world is more understanding even if they don't truly understand it all.

You, dear Mighty friend, have good things that pass your way. Open your eyes to them! Allow them to carry you on your way as time passes and even better things at last find you as you so very much deserve ✨️
Hold on! ❤️ each day brings you ever closer ❤️

11 reactions • 1 comment

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#AmplifiedMusculoskeletalPainSyndrome #Arthritis #Asthma #Anxiety #ChronicFatigueSyndrome #CheckInWithMe #ChronicPain #ChronicIllness #ComplexRegionalPainSyndrome #bedbound #Depression #Disability #DistractMe #EhlersDanlosSyndrome #Endometriosis #Fibromyalgia #GastroesophagealRefluxDisease #HypothyroidismUnderactiveThyroidDisease #Insomnia #Grief #Lupus #Lymphedema #MightyTogether #MentalHealth #MemoryLoss #PosturalOrthostaticTachycardiaSyndrome #Psoriasis #PTSD #Psoriasis #PsoriaticArthritis #PanicAttack #PanicAttacks #plantarfasciitis #RareDisease #SuicidalThoughts #RheumatoidArthritis #Scoliosis #ShinSplints

AmplifiedMusculoskeletalPainSyndrome 5d

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When I had to face going through constant excruciating pain, I was only 13, and then 15 when I had to go through waist-down reconstruction surgery.

Obviously it dramatically affected everything. And a year after I began experiencing early arthritis among a few other things. EDS I have always had and I faced horrible pain all the time though I thought it was normal. I always got compliments and awe for my strength though I didn't know any other way to be.

I came across this quote and it gave me new strength to pull from. While going through almost two years in a wheelchair I had lots of panic attacks with a terrible fear that I would never walk again.

No one knew how to help me. All the adults around had never faced anything slightly like my surgery or pain of trouble walking or even physical therapy after school.

I was the one that brought that singular understanding. And as the years followed I am the one people talk to when a decade or so later those adults or kids I knew and know now start to face challenges that involve health.

I have also been able to bring a strong understanding to kids who went on to become doctors who actually care!

And all this because I recognized that life brings unexpected challenges, but that doesn't mean we have to be hunched over struggling to handle it. We can stand up and choose to choose these challenges because we understand them and get help in handling these burdens bad health brings.
We don't have to fight alone.

Raise your voice! Fight for that better life and proper help and care!

Fight to better yourself as you bide your time, being ready for when good things come your way.

Have the Audacity to Hope!

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