Temporomandibular Joint Disorders

Hey. I’ll try to keep this short as it’s way too much if I go into details.
2 years ago began the start of the newest problems.
August 2024, they increased and got worst at a way faster rate.

Diagnosis:
Vitiligo
Recurrent staph/MRSA/cellulitis
Folliculitis/Eczema/Prurigo Nodularis
Anemia (most of my life)
Thickened endometrium
Hormone imbalances
Migraines
Spinal injuries
Mental health (ptsd/severe anxiety/depression)
Chronic swollen throat/tonsils/lymph nodes
Sinusitis
Chronic dry cough
Low BP
Recent deviated septum
Fatigue, malaise
Body aches/weakness
Carpal tunnel
Skin intolerance to hot/cold
Recurrent UTI’s
Fibromyalgia
Recurrent ear infections / ear staph
Eustachian tube dysfunction
Hearing loss
Uterine fibroids & cysts
Memory loss
ADHD
Severe Insomnia with nightmares
IBS/GERD
TMJ/Bruxism

Not yet diagnosed:
Raynauds (2 almost constantly blue toe nails, recently started in second, 1st has been present last two years off and on)
Chronic chills
Brittle nails
Hair loss (possibly medication related)

Recent testing:
A few genetic tests
Allergy testing
Several autoimmune panels

Current additional issues:
Oral thrush (due to long term antibiotic usage - close to four months now)
Ear pressure/fullness along with dark red/purple spot inside filled with liquid ? Also spots of white appearing pus that pop to drain
— can’t handle loud noise or cold air currently. Severe ear itching.
Eye itch and redness (not pink eye)
Muscle weakness and twitching - minimal long-term control in arm muscles

Pending:
Additional testing
Meeting hematology
CT of neck/throat/nose
Hysterectomy (paused until healthy)

Immediate Family history of:
Lupus (blood work shows low middle numbers not high enough to diagnose)
Celiac (ruled out by endo/colonoscopy)
Psoriasis
RA (ruled out by blood work)
Heart issues

All I can say is yes, I’m in pain. And yes, I’m exhausted. And frustrated. I’m not a crier and all I do is start crying all the time. I have 4 kids and I can’t be the best for them. I am failing everywhere in life and I just need to get this fixed or someone to finally step in and help because I can’t keep declining like this.

I am a veteran. I have little say in my health care. I can’t get a second opinion. Getting a rheumatologist seems to be impossible despite numerous doctors telling me I should see rheumatology. I’m feeling so defeated. If I could at least narrow things down it would help so much, so I could share my research with my doctors. I have several things on my list but I need to get a really good list. Please help if you can think of what may be causing all of this.

Thank you.

*** I would share many more pictures if I could 💕

#chronichealth #Pain #hurting #mother #Veteran #Desperate #pleaselisten #sick #someonegetmedrhouse #illeventakethegoofysidekickguy #ijustwanttofeelbetter #helpme #Genetics #hematology #labs #Skin #Dermatology #IBS #GERD #autoimmune #Disorder #PTSD #Fibro #Rheumatology

I'm getting a cortisone injection in my jaw. I've got bad TMJ and we think it's causing my migraines but we don't know for sure. So we're trying an experiment.

My partner is going with me to the appointment. The doctor I'm seeing is her doctor also. He's decided since he's struggling with being paid for his service he's going to charge his patients to have him as their doctor and I can't afford his fee. But he's still going to do my injections and procedures. I just gotta see the other providers for meds refills. So annoying. And I had medical trauma so it was a big deal to find a doctor I could trust. He's been my doctor for about 8 years.

My tummy really hurts. I ate too much. I've got bubble guts again. If bad for me foods are bad for me, why must they be delicious?

I'm sitting with my partner playing online while she tweezes her legs. I suggested we get some gorilla tape and she wasn't exactly onboard. She always shoots down my ideas.

So the injection is tomorrow, Thursday I have therapy, and Friday I'm going on an adventure with my BHH nutritionist. We're going to my favorite donut shop at 9am. I'm gonna treat myself to half a dozen of my favorite donuts. Then we're going to Aldi for groceries. If we have time I want to stop at trader Joe's for some lavender blueberry almond milk so I can make one of my favorite tea. It's a blueberry rooibos tea. I want to introduce my partner to good tea.

Then on Sunday we're going out with my QPP to go to the cookie crawl event. After that I'm hoping to go get bubble tea and lunch. It's supposed to be my birthday party but I didn't get anything for the party. So it's an adventure day with my people. It'll be nice. I didn't get to go to the cider mill this year but the place with the cookies has a store with all of the yummy treats from the mill. So maybe I'll get me some cider donuts!

I feel awful. I've been staying up too late just so I can spend time with her but she spends hours each day plucking her leg hair out. She has horrible OCD and she's on meds for it but clearly it's not working. And when she's not plucking out hair she's busy working on her computer. So I don't get much quality time with her and she never wants to go out. I haven't been out for fun activities in 4 months. I've got cabin fever. I want to go explore my city's downtown.

Pain just spiked to 7. Fun times. My tummy is making horrible scary sounds.

#Relationships #tummyache #adventures

On the left side of my back. My left side of my tummy hurts so much too. I took half of a Norco maybe 20 minutes ago. I really need to get a heating pad. It'll really help me with the pain.

I need to call my doctor office to schedule an appointment for cortisone injections in my hips. He also wants to do injection in my jaw cuz I have bad TMJ and we're gonna see if it's causing the migraine.

#TemporomandibularJointDisorders #ChronicPain