Autonomic Dysfunction

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Raising Awareness for Small Fiber Neuropathy

I'm Matt, and I just started the SFN Foundation to help people with small fiber neuropathy. This condition causes real pain and makes daily life hard, but many patients can't find good information or connect with others who understand.

I know how hard it is to feel alone when dealing with a rare condition as I have small fiber neuropathy. That's why we created our foundation to give patients and families the clear, helpful resources they need and to support research that could lead to better treatments.

Please help spread the word if you feel inclined and feel free to check out the website here: sfn-foundation.org

#ChronicPain #AutonomicDysfunction #Neuropathy #SmallFiberNeuropathy #Dysautonomia #MultipleSclerosis #POTS #Lupus #SjogrensSyndrome #MentalHealth #MastCellActivationDisorder

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Zen 🧘‍♀️

Went home unbelievably nauseous with a migraine since I opened my eyes and I’ve been having a heck of a couple weeks. Yet getting to enjoy this - zen - my GSD girls - nature - a book - quite . Did I mention it’s 75 with a slight breeze blue sky’s and suns out. Ideal for me. #MixedConnectiveTissueDiseaseMCTD #MentalHealth #RheumatoidArthritis #AutonomicDysfunction #ADHD #Anxiety #ChronicFatigue #RaynaudsPhenomenon

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Mirror

Better at giving good advice than taking it. How can I naturally give sound advice , but I have a hard time using my own advice to help myself . Why do my words tend to help others but it just goes in and out a ear when it comes to me. #depresison #MentalHealth #AutonomicDysfunction #MixedConnectiveTissueDiseaseMCTD #RaynaudsPhenomenon #RheumatoidArthritis #Anxiety

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Off Switch

Anyone know where the off switch is ?! Brain just keeps going and going it’s Friday afternoon (530pm) and I’m still wound tight - sitting out in nature for the last hour on my swing . Trying to settle . Where is that dang switch ? #MentalHealth #Anxiety #MixedConnectiveTissueDiseaseMCTD #RaynaudsPhenomenon #RheumatoidArthritis #AutonomicDysfunction

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Lane Issues

Guidence needed: how to handle when someone asks you to stay in your lane when the only reason you feel a compulsion to act is because someone else is falling flat on there responsabies. So you agree shrink yourself (which triggers a childhood traums of always having to be presentable and on your A game but blend into the background and try not to be noticed) . As you watch things catch fire because your not stepping in to fix it. I know i am at fault - what to do. In my head its helping and being a team player.
There head im over stepping. Yet when i step back im just asked a million questions and being asked to give them validation on there decision. Its dumb. Why do i need to shrink myself - to make them feel valid but still have to hold there hand. If i decline im being petty and moody. What people don’t see is I’ve already shrunk myself due to medical I am not at the full capacity I once used to be. Sorry a bit off topic from your great post I read - #MixedConnectiveTissueDiseaseMCTD #RaynaudsPhenomenon #RheumatoidArthritis #MentalHealth #AutonomicDysfunction #Anxiety #ChronicFatigue

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Cracked

Feeling …. Exactly that nothing . Have an inevitable cloud that’s been hanging around for the last couple of years. Getting harder to see the light in the lining. Stuck. Social life is non existent. Relationship is like a rock stuck in a stream. Work is driving me insane- not the work load but the people. Major communication issues in the place and my personality with my drive does not function well in the environment. Therapy helps some but spend more time talking about others than my own issues. Processing and handling things is an extreme high and I get worked up or it’s no existent and I’ve lost the ability to care. Body is the same , different days different pains . #MentalHealth #MixedConnectiveTissueDiseaseMCTD #RaynaudsPhenomenon #AutonomicDysfunction #ChronicFatigue #Anxiety #DepressiveDisorders #RheumatoidArthritis

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Story of the Week: What are your favorite go-to items or products that help you manage your chronic illness?

Managing a chronic illness can be both challenging and costly — from doctor’s visits to treatments, medications, and surgeries. That’s why finding the right products, items, or services that ease uncomfortable symptoms, reduce stress, or bring even a moment of comfort can make such a difference.

What’s been most helpful for you in managing your chronic illness?

Share with us in the comments below!

📚 Looking for recommendations and insights? Check out today’s Story of the Week here: 27 Items People Have Splurged on to Help Them Manage Their C...

#ChronicPain #ChronicIllness #MentalHealth #Disability #Caregiving #RareDisease #Migraine #Stroke #CardiovascularDisease #AutonomicDysfunction #PosturalOrthostaticTachycardiaSyndrome #Spoonie #Lupus #Endometriosis #Cancer #Anxiety #PTSD #CheckInWithMe

27 Items People Have Splurged on to Help Them Manage Their Chronic Illness

"It gives me a chance to have quality of life." 
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