Autonomic Dysfunction

Join the Conversation on
Autonomic Dysfunction
6K people
0 stories
514 posts
  • About Autonomic Dysfunction
  • Explore Our Newsletters
  • What's New in Autonomic Dysfunction


    Hey, I’m new. I’m Amy and I struggle with P.O.T.S, spd, c-ptsd, and anxiety. I am currently trying to figure out how to manage my P.O.T.S with the summer heat. Any advice? #PosturalOrthostaticTachycardiaSyndrome #AutonomicDysfunction

    1 reaction 3 comments

    New here!

    Hi! I’m new here. I downloaded the app about a year ago, but never used it. I am not a big fan of anything social media related or adjacent. Lol. But…I decided this would be good. I’m still trying to figure it out and how to use it. Haha. I’m sure I’ll get there…eventually.

    #PosturalOrthostaticTachycardiaSyndrome #AutonomicDysfunction #EhlersDanlosSyndrome #CommonVariableImmuneDeficiency #MastCellActivationDisorder #chronicmigraine #ADHD #longcovid #Asthma #SystemicLupusErythematosus #RheumatoidArthritis

    5 reactions 2 comments

    Managing summer heat

    I’m more new to my diagnosis, but I’ve had symptoms for a loooong time. Any potsies have tips for the summer heat? I live in the Midwest so the heat isn’t too horrible but I’m really bad with heat sensitivity and sudden temperature changes. #PosturalOrthostaticTachycardiaSyndrome #LivingWithPOTS #AutonomicDysfunction

    8 reactions 4 comments
    See full photo

    It's me, hi, I'm the problem, it's me!

    I often find that no matter what I’m going through there’s a Swift song “taylored” to what I’m going through (yes I did a Taylor Swift pun, because I’m punstoppable—sorry, not sorry 😜)

    But today I really feel like the Anti-Hero because I publicly declared feeling a bit better here, then I did some things, which quickly became too many things, and now I’m crashing big time. It’s true, I have this thing where I get older but just never wiser but in my defence; when it comes to chronic illness, hope is a back biting beast.

    More times than I care to remember or could possibly count, I start to feel better and try to do some muggle sh*t, like trying to live a normal life and stuff—then the rubber band snaps back, and hits me in face. It’s like when Steve Martin’s character from Father of The Bride says “It was like that old joke, "All those who think they have it made take one step forward... not so fast George Banks!"

    So for the moment, I’m taking two steps backward, and Midnights have become my afternoons again. I’m spending some time with darkness my old friend. Fortunately I’m quite comfortable with the Sound of Silence.

    #MyCondition #AutonomicDysfunction #AutonomicNeuropathy #Dysautonomia #DistractMe #ChronicIllness #ChronicFatigue #MyalgicEncephalomyelitis #MightyMusic

    11 reactions 1 comment
    See full photo


    does anyone know if the medline wheelchairs are easy for the user to push themselves?? like when ur sitting in the chair can u push the wheels or do u need someone to move u?? #AutonomicDysfunction #Dysautonomia #Wheelchair #MobilityAids

    1 reaction 1 comment