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Unexplained Pain and Vitamin D

Yo! My Lupie people with chronic pain. A thought. Spoonies!

I have been dealing with a lot of unexplained excess pain lately. Yes, I have Lupus. Yes, I have fibromyalgia. All the constant pain still didn't make sense for a myriad of reasons. Mainly, because I have a pretty good idea of what my triggers are.

Finally, my doctor decided to check my Vitamin D levels even though I live in Southern California, already take a Vitamin D supplement, and walk most mornings for a couple of hours (with sunscreen and a hat). Nonetheless, my Vitamin D levels were super low.

He gave me a prescription level Vitamin D. In less than two weeks, I am feeling much better.

I don't care where you live or how active you are. If you are having lots of constant unexplained pain, consider having your Vitamin D levels checked, especially if you have Lupus.

No, I do not have stock in the company he wrote the script for. I am simply amazed at how this helped. It may be the answer for some.of you, too. Not all, obviously. We are a complex group.

I wish relief to you all.


Humor In Chaos

#Lupus #Fibromyalgia #vitamind #BloodTests #sunshine

Humor in Chaos | Sarah Hauer

Sarah Hauer is an author, novelist, lupus warrior, and blogger, and searcher for the Humor in Chaos.
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Nerve questions #ChronicIlless

Has anyone had a phlobotomist hit a nerve during a blood draw? . I think she hit my radial nerve and I'm worried it os damaged . I got blood work done about a week ago when she poked me it sent a crazy sharp pain down my arm and into my wrist and thumb, like couldn't move for a second. She moved the needle around and pressed on my arm helped alittle. I didn't think much about it but it has continued I can't straighten my arm without it send the pain to my hand and if I even gently press on where she drew the blood it sends the pain to my hand . I sent a message to my Dr but I have to wait for him to get back to me. #BloodTests #ChronicIllnessEDS #hypermobileehlers-DanlosSyndrome(hEDS)

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The Update No One Asked For

My dentist appointment was the day after my first appointment with my new Primary, so this is gonna be a two for one update.

The appointment with my new Primary went interestingly well! Although she thinks EDS is an autoimmune disease, she otherwise has a basic understanding of what's affected, what to look out for, and who to get in contact with. She's also hilarious, so that's an added bonus (I don't think I'd ever survive a doctor who doesn't fake laugh at my jokes in a pained way). She has me getting blood work done (today, actually), and I have a cardiologist appointment scheduled for some time in March! I'm a bit nervous, but I'm glad we're working on getting some answers.

As for the dentist, I was nervous and worried for genuinely nothing. Other than a cap that needs fixing and some mild cavities that will be filled, my teeth are pretty dang healthy!

#EhlersDanlosSyndrome #HypermobileTypeEDS #HEDS #BloodTests #Anxiety


Another symptom

The weight loss was bad enough. I’m now covered in bruises. No less than 25 on my legs (I counted 31 but some could be the same bruise just continued). I started noticing the bruising on Thursday, and it’s only increased since. My arms also have above the normal amount.

The worst part about the weekend was not being able to do anything and I stayed up late on Saturday worrying. And now that it’s almost Monday, I’m naturally wondering if worrying is overreacting because I have health anxiety.

At this point I will probably leave it because every other time I’ve had symptoms of something bad, it’s always been fine/ because of something less serious. I’m fed up of wasting the NHS’ time and money.

Besides, I don’t think they’ll retest my WBC count any time soon anyway. They have a test tube shortage and since they think the low count before was due to the antibiotics, it’s not going to be a priority to re-test (which I can absolutely understand).

My friend thinks they will because of my symptoms, but they can all be explained somewhat:

The weight loss; I’ve gone through a breakup, a move, an illness and I’ve worked a lot. Whilst I never lost weight when I had covid or worked a lot before, new stuff can happen I suppose.

The bruising: I’ve moved and I’ve also worked 4 days in a row. Even though I don’t recall such, I probably battered my legs a few times moving. And even though I don’t normally bruise because of such, I probably bruised from kneeling at work.

Here’s to hoping I do start putting on weight and the bruises start disappearing so I can wear my dress without leggings/ tights!

#WeightLoss #LowWBC #illness #bruise #BloodTests #symptoms #newsymptoms #HealthAnxiety #Anxiety #bruising

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Anxiety has evolved!

Last night I was at A&E. I had been having palpitations and was breathless. I was there for 7-8 hours and in that time had blood tests, another ECG and a chest x-ray, all of which came back fine.

So now I just have to accept it is anxiety. And that the attacks are every day and unpredictable. And I don’t even have to be anxious to get them. Fun times.

I slept all day when I got back. I was absolutely exhausted. Didn’t work for that reason.

#Anxiety #palpitations #breathlessness #AnxietyAttack #AnxietyAttacks #ER #EmergencyRoom #BloodTests


Tired and Frustrated

I saw the doctor today. Just as I had suspected- anxiety takes the blame, and my ankle swelling gets pushed to the side.

I’ve got blood tests and another ECG in a few weeks, but I already know how that’s going to go. I had both only 7 months ago, and they came back normal.

The ECG is over half a minute or so in the morning. I don’t get my episodes in the morning, so that’ll no doubt be normal. I do ECG’s on my watch and I don’t have AF, so I already know that.


I normally accept what the doctor says. But for this I just can’t. And I’m tired and frustrated.

Anxiety isn’t getting ready to go to sleep at 2am having relaxed for hours before, and then suddenly having chest pain which is only relieved by lying down.

Anxiety isn’t palpitations right in the middle of something calming.

Anxiety isn’t shaking at nighttime when I’m simply moving my muscles.

Anxiety isn’t swollen ankles.

I’ve had anxiety for over 10 years. I get all those when I am actually anxious and my mind is racing, not when I’m relaxing. And my breathing techniques work with anxiety, they don’t with this.

But who am I to tell a medical professional that it’s not just anxiety? It’s the most logical explanation, given I have 0 risk factors for any cardiac problems and every test comes back fine.

I suppose I’ll go for the blood test and ECG and then it’ll come back clear, I wait a few months and then this all happens again. Though next time, I don’t think I’ll bother doing anything about it. It’s a waste of time and money.

#ChestPain #frustrated #Doctors #Anxiety #tired #fedup #BloodTests #MentalHealth #herewegoagain #Swelling #Tremor #shaking #palpitations


Has anyone had their #Lamotrigine levels tested before? #BloodTests #BipolarDepression

my doctor just did a blood test for my Lamotrigine... i'm on 200mg 1day. it came back low but I have NO idea what that means... does that mean I'm growing tolerant?


Crossing my fingers for some answers

Had a doctors appointment today t address some new symptoms that have popped up. I’m more confident xhaisted than normal, getting dizzy spells, and having what seems like Reynauds Phenomenon. My doctor decided to pull blood to check thyroid levels, multiple inflammatory things, and for a bunch of other stuff. Hopefully I’ll hear back on results Monday. Hoping that I finally find some answers. 🤞🏻 waiting on my neurology appointment on the 19th to get answers on the Chronic Migraines. #Migraine #ChronicMigraines #ChiariMalformation #BloodTests #CheckInWithMe



Just called the #Doctors and the #BloodTests came back normal.

I’m glad that they’re normal, but frustrated that it means the #lightheadedness is something I’m just gonna have to deal with and there’s no answers for it.


Distractions from scanxiety??

Almost two weeks ago I had some thyroid testing done. It was posted last week on my health portal that I have a high T4 level and a rare antibody usually associated with type 1 diabetes. My doctor hasn’t responded to any of our calls or messages on what these results mean and where to go from here- any tips for coping would be appreciated because my anxiety is high😬😬 #Scanxiety #thyroid #BloodTests #helpme