Join the Conversation on
56 people
0 stories
9 posts
Explore Our Newsletters
What's New in

Tired and Frustrated

I saw the doctor today. Just as I had suspected- anxiety takes the blame, and my ankle swelling gets pushed to the side.

I’ve got blood tests and another ECG in a few weeks, but I already know how that’s going to go. I had both only 7 months ago, and they came back normal.

The ECG is over half a minute or so in the morning. I don’t get my episodes in the morning, so that’ll no doubt be normal. I do ECG’s on my watch and I don’t have AF, so I already know that.


I normally accept what the doctor says. But for this I just can’t. And I’m tired and frustrated.

Anxiety isn’t getting ready to go to sleep at 2am having relaxed for hours before, and then suddenly having chest pain which is only relieved by lying down.

Anxiety isn’t palpitations right in the middle of something calming.

Anxiety isn’t shaking at nighttime when I’m simply moving my muscles.

Anxiety isn’t swollen ankles.

I’ve had anxiety for over 10 years. I get all those when I am actually anxious and my mind is racing, not when I’m relaxing. And my breathing techniques work with anxiety, they don’t with this.

But who am I to tell a medical professional that it’s not just anxiety? It’s the most logical explanation, given I have 0 risk factors for any cardiac problems and every test comes back fine.

I suppose I’ll go for the blood test and ECG and then it’ll come back clear, I wait a few months and then this all happens again. Though next time, I don’t think I’ll bother doing anything about it. It’s a waste of time and money.

#ChestPain #frustrated #Doctors #Anxiety #tired #fedup #BloodTests #MentalHealth #herewegoagain #Swelling #Tremor #shaking #palpitations


Uphill battle

Well today I actually woke up not feeling so rough so I got up, had my meal with my meds and fortisip. Just as I was finishing my meal, I felt overwhelmed with #nausea , #shaking and I had #heart palpitations.

I called 111 and they did an assessment over the phone and then I got a call back 40 minutes later. Again, another assessment and they sent out an ambulance.

Long story short, I may have the start of an #Infection because I have the start of a #Fever and also the other symptoms mentioned earlier. They said if my temperature gets higher then to call again, so have ordered a new thermometer as the one I used read 36.9, whereas theirs read 37.5.

They also said that being on codeine may have caused the sudden episode of illness earlier and said I could discontinue it if I wished to (and I have chosen to do so as I’d rather be in pain than that ill).

So it’s a bit of an uphill battle at the moment but hopefully things will settle down in time for my follow up appointment as they won’t let me go to it if I manage to have a fever (which is obviously fair enough).

1 comment

Recovering sucks

Well a massive thing has happened in my life since I last updated: I had my #Surgery (three days ago).

The day after it was originally cancelled, I had a call that gave me a new date and it went ahead! I had to have a #COVID19 test and MRSA test 2 days beforehand which both came back negative which was good.

So I went in on Wednesday and had to stay overnight at the hospital with this cold gel thing on my mouth which has left me with sores.

I got some reactions to the anaesthesia which included #lightheadedness , #Confusion and #shaking which weren’t fun but I got through it and managed to get discharged the next day.

While I was at the hospital, I was on the maximum #Painrelief I could be apparently and they were constantly putting stuff in my cannula (which wasn’t fun because it hurt my hand and made going to the toilet etc difficult as they didn’t initially put it on something I could wheel around).

Speaking of cannulas, I had one in BOTH hands. They had to try twice with the one in my right hand (they got it in the second time) but when I woke up, I had one in my left hand too and they never used the one in the right hand aside from maybe in the surgery (and they refused to remove it until the day after the surgery. Got some lovely bruising now).

Anyways, I’m on a few different #medications now and getting all sorts of #SideEffects such as #heartpalpatations , getting too warm (not a temperature but higher than my normal 36.4~ as reached 37.2), again lightheadedness and shaking and also #nausea which sucks.

Will all be worth it in the long run though, just suffering at the moment and did break down yesterday at being frustrated about not being able to do much and struggling with energy for simple tasks such as eating or even sitting up. Got back up though about half an hour after feeling sorry for myself with the mindset of “I can either sit here feeling sorry for myself, or I can do stuff”.

1 comment

Shaking/Vibrating upon waking

Does anyone else with Fibromyalgia experience an odd shaking/vibration upon waking? It’s been happening more and more lately. I have to lay with my eyes closed and breathe through it before I can even consider moving at all. Insight would be greatly appreciated. #Fibromyaliga #shaking #vibration #Sleep

1 comment

Well yes, but actually no

Still a bit of a strange time. My #Heartrate has stabilised and is actually lower than it has been for a few months now.

#Dizziness (well #lightheadedness ) is fluctuating. At the moment it’s pretty bad. I’m walking around my room in the dark like a drunk person which I’ve never had the issue of before.

I also had one of my episodes of #shaking and #weakness yesterday. Last week I ate sugar and it went away (my body was telling me I was hungry even though I had had my normal meals), but this time it only worked for a little bit. Still better than nothing I guess.

#ChronicPain #Flareup fun today so yay


I am a fool

I am a fool. Why you ask? Well I was doing great today. I woke up and got dressed. I even put on makeup for the first time in weeks. I had a banana and took my medicine. I went outside on the front porch and read...for 3 and 1/2 hours. I kept hydrated and had a small snack. I came in the house and helped my sister decorate cupcakes. I was doing really great. Then I took my dog on a really long walk. That was a mistake. Halfway through my walk I realize that I haven’t eaten anything all day besides a banana and a couple of pretzels. I finally get home and I am shaking so bad, my brain is foggy and I can barely open my eyes. Lessons learned from this? Know your limits. Keep up on hydration and make sure to eat. Be gentle with yourself.
#PosturalOrthostaticTachycardiaSyndrome #LivingWithPOTS #ChronicIllness #shaking #lowbloodsugar #Headache #tired #Walk #knowyourlimits #hungry #Forgetfulness


Why was my hand full on shaking? #shaking #MyalgicEncephalomyelitis

I woke up about half an hour ago to my hand shaking like I was holding a vibratory (sorry - I couldn’t think of anything else!!).
This is a new thing for me, I have twitches and jerks but never have I had my hand do this before.
Does anyone know what it might be? I’m phoning my dr up later but goodness knows when I’ll get an appointment!


Searing mental isolation, anguish, questioning

(I'm afraid that posting my thoughts would plant toxic seeds in reader's minds. Mighty we might be, but also great at composting, collecting all of the rot and waste and stench, creating dark messes fertile for the vicious flower.) #CheckInWithMe #SuicidalIdeation #Depression #Anxiety #discontinuationsyndrome #MentalIllness #afraid #hopeless #distortedthinking #corebeliefs #CBT #shaking