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Ok so this isn’t REALLY a life hack...

BUT - it’s the best piece of advice I was ever given.

If you or your loved one that you are a caregiver for, have a disorder that doctors can be unfamiliar with, take notes.

I was told as a KID helping my grandparents to learn EVERYTHING about the disorder and always advocate for yourself and your loved one. I’m talking drug interactions, symptoms, side effects, possible surgeries and other options, anything and everything my friends.

This has SAVED my grandfather (before he passed last year) numerous times. I’ll give an example: My grandfather was a quadriplegic. He had gastroparesis because of it. His intestines don’t just push food around etc leading to multiple GI issues such as incontinence and constipation. He was presenting with textbook symptoms of gall bladder issues, well, except for PAIN the most obvious one. Why? Because it’s paralyzed in that area. He can’t feel it. So he went in and out of the ER three times. The third time I went with my grandparents there. Now I am not a doctor, but at this point I’m feeling like I should go back to school. I basically demand to know what “protocol” they’re following because they refuse to do an ultrasound. I explain that he has classic symptoms aside from pain because paralysis. After a LOT of arguing I got the ultrasound I asked for. His gall bladder had gangrene. I got an apology from the surgeon on staff and he used my grandfathers case as an example moving forward.

#Caregiving #CaregiversCorner #advocate


Up at about this time every night, wishing there were others to talk to, that just want to talk, care, etc.

I just need support

Not start a conversation of with where u from, or just say Hi, How r u, etc?

#no Shame
#chronic Pain


Maybe I'm destined to be lonely, wishing I others to talk to abiut the pain, loneliness I'm suffering, people say the mighty is the best App

Looking for support, care, friendship, yes, I love myself, so don't start off with that, don't tell me I need counsoling, I just need someone who is gonna listen, be here for me when the days r hard, which r daily.

I have
Congenital Hydrocephalus,
Retinaopathy of Prematurity
Chronic Knee, Ankle, Shoulder, Wrist Pain
2 L5 S1 Discectomies
Essential Tremors
Possible Neuropathy
Possible RA
Carpal Tunnel Syndrome
De Quarveins Tenosyvitis
Pulled Groin

I just need someone who wants to walk this journey with me, stay the course, realizing, it's not gonna get better, that is as positive as I can be.

Don't try to change, just be here me



Any advice for someone who will be helping take care of an elderly woman with diabetes and declining health?

I have never been a care giver of any sort. And to be honest I don't know that Ill be any good at it. Ive never seen my self as the caregiving type.
But my mother in laws health is declining. She's in her 70s, out of shape, diabetic and she is in the midst of having appointments made to test things like memory. She did the clock test so far and that didnt go well. Last night she wasnt feeling well so we decided to bring her to our place so we could keep an eye on her. But she started feeling worst so the ambulance took her to the hospital. They havent told us much. But as far as we know shes doing ok. (High sugar, fever, chest pain, nausea) We think she was having an panic attack and also has an infection. Shes been getting UTIs lately. And she also doesnt do well taking xare of her diabetic needs. Shes also been having trouble with basic needs also so we feel she would do best with us until a room opens up for her. Any help or care givers advice? Also any advice on getting her into a nice home would be great.

#Anxiety #Depression #Epilepsy #BorderlinePersonalityDisorder #SchizoaffectiveDisorder #ObsessiveCompulsiveDisorder #Caregiving #CaregiversCorner