Hi, my name is Dawnr629. I want to learn more about living with chronic conditions.
Here are just a few of them. #MightyTogether #Anxiety #Depression #PTSD #Crohn #EDS #CoronaryHeartDisease #PeripheralNeuropathy #Lupus #ChronicPancreatitis
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In the hospital again. This time I have pancreatitis! I need surgery they said because a bile duct is blocked off, but the surgery can't happen without an endoscopy. The endoscopy is scheduled for freaking September! They're trying so hard to rush it. If they don't I'm just gonna keep ending up here in the hospital. They admitted me this time. I was glad to have my hospital go bag made and ready this time.
The things wrapped around my legs are for blood flow so I don't get a clot. #AutonomicDysfunction #ChronicPancreatitis #Hospital
Hi, my name is TaliaW. I'm here because
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Hi everyone. I used to be on here but I can’t remember my login or the email I used so I am starting a new one. I am mom to two young adults with cystic fibrosis and other health issues. I have RA and other conditions as well. I had to change my career due to the risk of COVID and my son’s transplant not to mention the kids CF in general. I am an esthetician and makeup artist so I touch people’s faces for a living. So during the pandemic I started thinking what I can do now since I am 50+ and worked cosmetics since I was 17. I have always dreamed of working as a travel planner/advisor/agent. I travelled a lot as a kid due to my dad’s work and I picked up the travel bug while I was still in diapers. I found out that due to the pandemic people are relying more on travel advisors more than ever. Then I wanted to narrow down my specialty/niche. I figured it out, I hope. I have had to figure a lot of things out traveling with my kids, especially our son. Meds galore, some refrigerated, vest compression machines(2),, nebulizers, nebs, feed pump, supplemental feed, tubing, feed bags, plenty of snacks traveling, wheelchairs and fluid at all times. I had to research hospitals in London when we went on my son’s make-a-wish so we would know where to go just in case. A plan A plan B Plan c just in case. Then for my sons transplant which we had to relocate for and my daughter’s make-a-wish. These experiences taught me so much, not to mention seeing what my fellow moms would do in order to travel. So have decided to help chronically ill and special needs travelers and their caregivers. Everyone deserves the opportunity to explore this beautiful World and I would feel honored to help facilitate this. I started my business several months ago and found out there is a great need for this. I have been learning so much and have been working with some clients already, some with challenges and also some great family, leisure & luxury trips. I am so glad I made this change. I guess a few good things have come from the pandemic. I have decided to not charge my clients for medical travel advice. I hope to help as many people as I can.
#Travel #travelagent #specialneedstravel #medicaltravel #sunflowerlanyard #InvisibleIllness #ChronicIllness #CysticFibrosis #Transplant #pancreatitis #ChronicPancreatitis #tubefeeds

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I've been recovering from a car accident I have abdominal wall denervation and a crushed vertebrae and three herniated discs. I talked morphine every day. I have anxiety and depression. I live and care for my Downs syndrome daughter as well as my 82 year old mother who has pancreatitis the beginning of dementia and has just been diagnosed with lung cancer. She is coughing up blood. My mother smoked all her life and I have tried everything to slow and stop her from smoking and she won't. It breaks my heart every day to see this so I stay in my basement most days I need help I can't cope anymore. How can I stop her from smoking ??
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Hi, my name is KittlE. I’m new to The Mighty and look forward to sharing my story.
#Crohn 'sDisease
Hi, my name is Mike1958. I'm here because
#MightyTogether #Anxiety #Depression #Migraine #PTSD also end stage liver disease , polycystic kidney disease , chronic pancreatitis , osteoporosis and beaten by cops for videoing
I welcome my first 2 members to the group! I am sorry I haven't been active on here as much as I used to be. I received shocking news from my Diabetes Specialist about 4 weeks ago that he wants my pancreas removed right away! I have been scared as I already live without my stomach and without my colon. Although, I do admit that I AM JUST SUFFERING DAILY NOW WITH THE CHRONIC PANCREATITIS IF I EAT! The pain is unbelievable!
I did, however, get an appointment at the Mayo Clinic in October wanting another opinion. How are you doing?
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