painwarrior

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I'm new here!

Hi, my name is BeautifulPain. I'm here because I have Neuromyeltis Optica (NMOSD) Family of Multiple Sclerosis & MOG, I was misdiagnosed so many times and for a long time with Fibromyalgia, for almost 8+/- years my Neurologist said, I have lesions behind my left eye on my brain, neck and spinal cord, It's a rare Disease its affects your whole nervous system & I am in Chronic Pain everyday (It drives me insane) affects my sight and my mobility, I have brain fogg & fatigue every day, I have flare ups and bad days and relapses that cause then new lesions but I cope I have to, I still work as a Hairstylist full time, and I have a 2 year old and a wife, would be great if we can create more awareness for Neuromyeltis Optica, I receive IV treatments and my chronic medication, anyone out there with Neuromyelitis Optica?

#MightyTogether #MultipleSclerosis #createawareness #NeuromyelitisOptica #painwarrior #RareDisease #ChronicFatigue #BrainFog

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Distraction through Art

I took up drawing and painting when I was forced to retire due to CRPS. It is a great way to distract myself. Any other Warrior Artists out there?? Show me some of your work! #ComplexRegionalPainSyndrome #painwarrior #ArtTherapy

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#ChronicPain and my dreams

I started working out back in August. I love it. It’s fun to work out. It’s fun to see myself get stronger.

I’m lucky. My chronic pain isn’t nearly as bad as a lot of others have it. I’m still able to lift weights and run. Most movements feel good or at the very least don’t feel worse.

But I have a permanent injury in my left shoulder. So movements that involve my shoulder or pecs can cause flare ups.

The pain is annoying. But the worse thing is that I don’t know if I’ll achieve my dreams. I want to get really good at weightlifting and be super fit. What if my body limits me?

I know I’m lucky to even be able to work out with chronic pain. But I hate the idea that my body could limit me or stop me.

#ChronicPain #painwarrior #CheckInWithMe

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Bilateral knee swelling

Do any of the bendybunch have swellings on both knees that are identical? I constantly twist and or sprain my knees ( and ankles) but just wondering if I am alone with this anomaly as my doctor is puzzled and rheumatology appointment and musculoskeletal appointment are still not forthcoming after 2 years. I am hyper mobile in most of my joints but hips knees and ankles are the worst. ( my visual artistic approach to explaining took over 🙈 🎨) #EDS #bendy #Swelling #knees #Pain #ChronicPain #painwarrior #autoimmune

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WHAT is insomnia?Im in a stage IV cancer.I rarely sleep more than three hours , in the quiet if the night that’s when my memories of when I used to hike the trails around Lake Tahoe, or when I could
Work, meeting children that needed help and guidance, I wake up missing my old life. Usually it’s the pain at night in my bones that does nothing to allow for me sleep.
My Doctor has my Insomnia listed as A Mental Disorder. Is it? Or is it a side effect of chronic pain from metestatic breast cancer? #painwarrior #MetastaticBreastCancer # #Insomniac #I need sleep 😴

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Why is it people can't except me for me??
Why do they keep shoving positivity down my throat, I'm chronically ill and in pain daily, they say u aren't ur pain or ur illness.

If I'm to negative, u may walk away, every one else has.

I'm not gonna sugar coat, usually there isn't a good day in my life.

My own mother called me a Horrible House because I fell asleep at her house one day.

I've been called a Debbie Downer and Burden.

People say well they can't experience what we go through well they can have compassion, care, love, ***NOW U ALL KNOW WHY I COME HERE SO MUCH.

I don't need counsoling.

I'm tired of people shoving God down my throat.

I'm tired of people saying, well, if u had a little bit more Faith, if u loved God a little more, etc.

Really???

U wanna come trade places

People say well hope can't lie in people, maybe God sent people to be there for me just to listen being an ear to hear, like the mighty.

I love coming here, but, not finding it very supportive.

Lord, if people can't handle my bad days which r EVERY SINGLE DAY, then I definately don't want them here on my good days, which r rare.

#chatspace
#no Shame
#upallnight
#distractme
#painwarrior
#Painwarriors
#painsuffers
#CheerMeOn
#Pain
#friendships
#friendshipstruggles
#Painsomnia
#lonely
#Lonliness
#ChronicPain
#ChronicIllness
#CheckInWithMe
#EssentialTremors
#no Support
#Nosupportsystem
#DebbieDowner
#Burden
#Christianity

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I wish all of us with Chronic Pain had a cure for everything we go through.

I'm 36yrs old, it takes me longer to do things, if I can do them at all, it is 1:40am in Kentucky (USA), got woken up with Chest pain, maybe broke a rib from coughing, Groin, Essential Tremors, u all r amazing to be so supportive going through ur all stuff.

Everytime I love I moan and groan, the tremors wear me out, but, I'm so thankful, I have somewhere to come where people love, care and support me on a regular basis.

It takes me at least 45mins to an hour to get ready for bed, then I may get 45mins to an hour of sleep, then I either just wake up with Tremors, or weak up with Tremors, either moaning, groaning, screaming in pain, almost, if not every night.

I don't come here often, most times, I just try and handle it on my own, but, when u r just laying tremoring, u think everything is good, then,a,pain shoots through a random part of ur body, u thank God u were laying down, cause some of the pain doubles u over.

I won't keep u all, thanks for listening

#UpAllight
#Pain
#Painsomnia
#hurt
#GroinPull
#Nosupportsystem
#chronic Pain
#chronic illness
#friendless
#CheckInWithMe
#Lonliness
#lonely
#EssentialTremor
#CheerMeOn
#painwarrior

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Second Day of Flare! #fibroflare

So this is very unexpected flare. I've doing well for me or so I thought. This flare has hit me like a ten tonne truck. I feel exhausted from lack of sleep, my body feels like its on fire, pain levels are spiking and my stomach hates me! So not a good day. Yesterday was awful but I still got up, walked my dogs, sorted my children (one is an adult) out and did my job. Sometimes I just want to fully rest with no guilt. ##Mumguilt #FibroLife #painwarrior #tired #mybodyisonfire

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Uniquely Prepared for Self-Isolation & Social Distancing

It's interesting that I feel a tiny bit of relief in a time like this. I've been practicing self-isolation and social distancing for 5.0.0.5 years now due to chronic illness and chronic pain. That makes me uniquely prepared for an event like this. I'm experiencing so much pain and fatigue, and of course loneliness, but I know I got this. And that gives me a small sense of comfort. I'm not gonna freak out because this is not all new to me. There are always positives to take away from negative experiences. Even in such a grim times. You can find a way to cope.♡
#ChronicIllness #ChronicPain #painwarrior #Isolation #Homebound #SocialDistancing

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