dpdr

Hi everyone! I am currently working on a web app designed with people experiencing dissociation in mind. I've noticed there aren't many resources for dissociation, and I want to help change that.

I want to make it as comprehensible as possible, since ideally someone experiencing dissociation wouldn't need to use multiple apps, but just this one on a daily basis. I am trying to gather as much feedback regarding this as possible, both from people with lived experience and from some experts.

Some features that will likely be included include a resources section, a trigger report feature, symptoms tracking, grounding exercises, a journal (that could be either a parts journal or a regular journal depending on the person's needs and preferences), among others.

Could you please share your thoughts and ideas on this with me? I would love to hear from more people what is actually needed and helpful! Thanks in advance!

#Dissociation #DID #Dissociative #DissociativeIdentityDisorder #dpdr #DissociativeEpisode #DissociativeDisorder #DissociativeFugue #dissociativeamnesia

Hi everyone! I hope this is suited for this group. I am currently on the very early stages of developing a web app for people experiencing dissociative symptoms in any form. I've noticed there aren't many resources for dissociation in this form, and I want to help change that.

The idea would be to make it as comprehensible as possible, since ideally someone experiencing dissociation wouldn't need to use multiple apps, but just this one. I am trying to gather as much feedback regarding this as possible, both from people with lived experience and from some experts.

Although it wouldn't be exclusively for DID, it would be meant to be suitable for someone with DID (for example, specifically for DID I am thinking about including features to keep a record of your parts and a journal feature that can be a parts journal if the user chooses that option).

Of course, grounding exercises, symptoms tracking, and so on, would also be included, even though this could be more general.

Could you please share your thoughts and ideas on this with me? I would love to hear from more people what is actually needed and helpful! Thanks in advance!#Dissociation #DID #Dissociative #DissociativeIdentityDisorder #dpdr #DissociativeEpisode #DissociativeDisorder #DissociativeFugue #dissociativeamnesia

Hi everyone,
I am currently working on a web app to help people living with dissociative symptoms. I am still on very early stages of this development, and I would love to hear from you what you feel that could be useful! What do you think you need the most that could be in the form of a website?
It is possible that, if it shows useful, a mobile app version will also be built later, but for now I don't have resources or enough knowledge on mobile development yet.
Thanks in advance for your inputs!

#MightyTogether #Dissociation #dpdr #DID #DissociativeDisorder #DissociativeIdentityDisorder #DissociativeEpisode #DissociativeFugue #dissociativedisorders #dissociativeamnesia

Hey guys,
I’m a little nervous to post this because I haven’t heard of anyone else with this specific symptom and because I also struggle with OCD/anxiety, it makes me feel like I’m going crazy. I’ve also been diagnosed with depression and DPDR. So the weird symptom is that when I feel really stressed sometimes I feel like there’s a little me observing myself from the inside (specifically the left side) of my brain. It kind of feel like my consciousness has moved to the side and that I’m a small version of myself operating a robot (aka my body). But because I also have OCD, I become hyper focused on this symptom and when my anxiety is bad I can convince myself that I’m crazy or losing my mind or schizophrenic. It really freaks me out. But I’ve never lost touch with reality I just feel really weird and frustrated. I’d love to hear some feedback and to see if anyone else has ever felt this way? It would mean a lot to me to know I’m not alone in this. Thanks for reading 🙂 #dpdr #weirdsymptoms #OCD #Depression #Depersonalization #Derealization #feelalone

.I'm really confused cause I don't really know if I have DPDR or something else... sinds almost 3 months after a shock event in my life I'm started feeling like my house.my work place my street my family, friends and every single place I visited before strange and first time I went there and also my memories and everything in my life like doesn't happened and also music i loved and every detail in my life...myself my personality like not myself anymore... and also that i feel that everything around me is weird and like im not living in life and environment around me like trees and everything so strange! It's like I forget what normal is and who I was as a person before..
And also related my sensation of weather and environment and seasons?
And when I talk it's not seem like me
And my head like it's not mine
Feeling like I'm not here... #dpdr

Having paranoid schizoaffective, ive taken to calling my paranoia the jabberwocky, because it has no shape, its just a big scary thing with teeth and claws that i cant describe. And in the end it gets its cumuppance, i like to think so anyway. And even though lately ive been struggling with depersonalization/ derealization sometimes just one sometimes all at once. And actually coming to the conclusion that reality is just consensus philosophically. I still feel like im on this crazy amazing ride, its interesting and scary and im always curious whats next, and theres even small moments of joy here an there, ive been getting more of those as time goes on thankfully. Ill have my ups an downs, sure. But i will manage, everyday i try an strengthen my turn around. To be like water. To learn wisdom and knowledge and try to be cross consistent, taking whatever i can use. Its fun and interesting. I guess all im saying is im glad ive found purpose for myself, in making the most of figuring out this wonderland were all in. Its a depthless treasure all the bizarre strangeness life offers sometimes. And i like that. #AliceInWonderland #Paranoia #dpdr #schizoaffective

#CheckInWithMe

Having some strong existential thoughts and really struggling. Living inside my brain feels completely unsafe lately, in part due to #Trauma symptoms and in part due to withdrawal from a psych med that is having a negative impact on my physical health, but that was apparently numbing me out an awful lot. I’m almost 50% off of it. Now I feel everything at 11 out of 10, or at least what I thought was a 10 before. Then when the feelings get overwhelming I snap into dissociation or #dpdr type symptoms from the #ComplexPosttraumaticStressDisorder
I have no control over this.

So here are my existential questions.
What are the primary things that keep you able to keep yourself safe, as in, what prevents you from harming or killing yourself? Looking for concrete reasons or even philosophical or spiritual/theological ones. It makes no difference to me what (if any) religious tradition you follow.

Those of you that believe in God, any type of God will suffice, do you believe that S/He actually loves us and does anything to protect us? Do you ever get mad at Him/Her or even yell at God? I am personally unable to conceive of God as a reliable parental figure or as an infinite being who even cares what happens to humans.

Especially if you have strong tendencies toward #Dissociation

What happened to you during antipsychotics withdrawal or while you were tapering down?

I’m having to go off Trilafon (perphenazine) pretty fast (down by 4mg every 2 weeks) because I don’t need it and the med is causing unwanted hormonal changes.

It’s been determined that my “psychotic break” in 2007 was actually dissociation (kind of in the #Derealization or #dpdr realm). I didn’t feel like anything was real and when you’ve never heard of dissociation it can make you afraid you’re losing your mind and seek help for psychosis instead of the actual problem.

Now I’m down to 16mg per day down from 24mg originally. When I was on 24mg and even 20mg I experienced strong derealization anytime trauma was approached. For me, derealization looks like completely dissociating to the point that nothing, myself or anyone/anything else is real and being completely mute. Now that I’m down to 16mg for the past 2 weeks (probably going down to 12mg today) I’ve been experiencing #Depersonalization more frequently (for me, that looks like I can talk/type/move with difficulty but I’ve completely retreated emotionally and can’t connect with anyone and if you call me by name I will say “she’s gone”. I can feel cold/pressure/pain but I don’t respond to it.)

Depersonalization lasts a lot longer like many hours or days. Derealization used to be so severe that I could barely move and would curl up in a ball but it would only last maybe 4 hours.

I’ve also heard of polyvagal theory. So maybe there’s some explanation there.

Anyway what happened to you if you were treated with antipsychotics and actually did NOT have a psychotic disorder or bipolar, but actually had CPTSD and/or a dissociative disorder. If you eventually tapered down what happened then? If you have dissociative tendencies did your dissociation change in any way as you went off those meds? How long did it last or was it permanent? Looking for people’s experiences and/or any helpful resources. Thanks!

I am flighting since almost 20 years. From my pain, my feelings, people. From myself.
I have survived a Trauma when i was six years old. I have been in clinics since over 10 years. Now, it is only possible to go there for stabilization for 6-8 weeks.
I have somebody from psychiatric care Who comes three times a week and another Person Who visits me for helping me one time a week
I always want to flight. From here to there and back. My past is a huge Horror and i dont want to live like this anymore, it is so stressful, i dont make decisions and let other work for me. I have Problems with playing moneygames and i am insolvent. My parents are in sorrow and i Play the game further and further.
This is so dick and i am ashamed as hell.
Tomorrow i have the possibility to talk to someone in a Trauma specialized clinic but i am afraid about the fact it is a Trauma clinic and that i am not stable enough to work on that.
I really dont know what to do. Please Help me.