EDS-HT

Hello, everyone. Hope you are all well. This is the first question I will be posting, as I just joined. I am excited to be here and speak with others who suffer with EDS.

I sprained my ankle about three months ago, had some hairline fractures on foot, tore ligament, tendon, other damage that wasn’t noticed, I’m sure. I had to use a chair for two months. This past month it seems I can walk some days but I’m very stiff in the mornings. Then if I do actually walk as frequently as one would in a day around the house, next day I have to stay in bed. I read it could take up to six months to heal but my ankle keeps dislocating because for a short while I whore the heavy boot urgent care prescribed. Only made things worse. #ChronicIllnessEDS #sprained ankle #Elhers #EDSHT #HypermobileTypeEDS

Pain. Most of us have it. I imagine everyone in their lives have some form of pain. I have many physical health issues and a few mental ones to add to them.
When pain is bad enough that I have to scrabble around to find some form of relief. Usual painkillers, done. Top up paracetamol, done. Top up codeine, done. And still, my leg is spasming enough that it feels like it's valiantly attempting to squeeze the pain out, thus making it worse.
What do I do?
What can I tell myself?
Sometimes the 'painkillers' don't kill the pain they just sit there ignoring the agony and being a bit useless.
All I can do is rest. Sleep won't happen and relaxation has decided to leave for the evening. Tomorrow may be better, or it may be worse. I don't know.
I will rest. Let myself just be with all my aches and pains and hope that tomorrow is better.
Just remember that tomorrow might always see an improvement even if it's the tiniest thing in the world.
I am celebrating my sisters birthday tomorrow, fish and chips and a good, trashy film just to annoy her OH. I will smile and be my chatty and rather odd self and all the while that pain will be my companion. The companion that sometimes gives me sleep or allows the medication to work and sometimes keeps me up writing this into the Mighty message system.
I am going to try and sleep. You all should too. Rest is good for the companion even if it grumbles about it.
Goodnight folks. #EDSHT #Pain #PainManagement #PainKillers #MyalgicEncephalomyelitis #Fibromyalgia

Hi, today I found out the hard way that to my sister in law I'm available every day all day and have no fixed appointments. They had planned to come over to celebrate Christmas together, but the day she suggested, I'm in pain clinic. To bad. Then they have to celebrate without me. And I have to arrange someone to bring me back home after therapy because I'm not allowed to drive. The other option was today, but than I'd have to cancel physical therapy (which I definitely need today after conducting Saturday) but to her that's no problem. Well...she doesn't have to feel my body. So I phoned that it was on a too short notice (1 hour ago) and that I can't skip according to their constantly changing wishes. I kind of pitty my mother and twin brother. Typical for her: that's the way I've planned it so that's the way it's going to be no matter it is inconvenient to someone else. Everybody has to be d according to her wishes. When I've studied long enough, I'll give her a psychological diagnosis 😈. Sorry for complaining. I just had to spill my guts.