hospitalstay

There may have been a post about this and I missed this because I'm a bit new but it looks like I'm going to have to go into the hospital, and it's not my first time but I just thought maybe you guys had some ideas that I haven't thought of. Here's what I thought of:

Bringing list of medications and diagnoses and surgeries and list of your doctors, especially if have to go to ER. Bring a small notebook to write down what doctors tell you and when you've received medication because usually my memory sucks. Comfy blanket and/or pillow Loose sweat pants packed Comfy (decent-looking) underwear packed A loose comfortable robe packed Bring a picture of family and/or pets Bring your phone with all your music and headphones (I usually can't sleep). It also has phone numbers of people you may want to call and not remember their number Bring another book to write or journal Bring a book (or magazines) Bring a coloring book and crayons Whatever art supplies you enjoy that you can make portable, or that travels easily When it's morning, and you can't sleep anymore open the drapes to let in the sunlight in, helps you to feel a little more like a normal person. Ask a nurse whenever it's possible to shower. The showers are crappy and it's a pain if you have an IV that they have to disconnect, etc.; but that little bit of water that you can wash yourself in and dry off with horrible towels will also make you feel better and more like a normal person.

This is all I could come up with to try to make life a little better when I have to go to the hospital, thought maybe some of ideas could help someone else, but I appreciate all thoughts to improve on my ideas or new ones that I can't think of. Thank you so much!

#hospitalstay #comforthospital #ideas4hospital

#CysticFibrosis #hospitalstay #antibiotics #PiccLine #Breatheeasy.
just wanted to vent a little bit about how my hospital is going (not that anyone cares too much lol). so basically I’ve always been on the same meds for MRSA and Pseudemonous; vancomycin, tobramycin, and ceftazadime, and usually by now I’m feeling a bit better but I don’t??? oh yeah and I also tested positive for mycobacterium in August so they don’t know if that’s what’s causing my symptoms. I’ve just had a super bad wheeze and was coughing up blood over the weekend and ever since then I’ve sounded way way worse. also note that ventolin doesn’t work for me at all so they don’t believe it’s Asthma of any kind. I’m a little worried because I have PFTs tomorrow so I really, really hope they haven’t dropped or I’m going to be spending a few more weeks after next week here.
another thing that bugs me a bit is that I’m on another ward this time because I’m growing mycobacterium so I needed to go into a negative pressure room and I’ve just found a bunch of differences that have bothered me a bit. no one comes to clean my room anymore which is pretty odd because they did everyday when I was on the “less infectious” floor with the MRSA and pseudomonas. also I found that the nurses really aren’t as educated with cf and I always tell them that I take creon right before I eat anything and it’s not like a strict time I must take them, but they don’t really listen to me. since I’ve been here vitals and everything has been good but they still come in every hour to check of oxygen is working when I’m not even on oxygen. so kinda weird and different, also not hating on nurses AT ALL! I’m so grateful and thankful for the hard work they put in and probably wouldn’t be where I am today.
a little off topic but last night somehow all my dressing came off of my picc line? and it was just exposed cause it doesn’t have sutures or anything to keep it from falling out. luckily I realized and woke up and it didn’t fall out but I’m just worried about possible infection as i accidentally touched it when it was dark in the middle of the night and was definitely breathing on it.
anyway that was kinda a long rant but I wanted to let it out :)

After 21 hours of labor I gave birth to the most beautiful baby boy who came a week and a day earlier than my projected due date. Elated and ecstatic and soaring high on the highest of highs and happiness 15 hours later I plummeted into the deepest darkest hell hole after finding out that my baby boy had a congenital esophagus defect that would require immediate surgery at another hospital in the area. That day I was a complete mess of emotions and could barely talk about the reality I was about to face. After a successful surgery and amazing recovery progress each day my little baby boy really made a terrific come back and his heath had been restored to what it would have been without had this major health issue not been present. After 10 days in the NICU and 2 days recovering from child birth I stayed strong and felt amazing about coming home. I spoke to a pregnancy- mom- post partum-specialist therapist 4 times during my stay and my baby's stay to make sure I was checking in on myself felt emotionally sound and had been practicing self-care. Everything felt amazing - I was SUPER excited - and we were discharged yesterday. However tonight I am feeling the weight of the entire process and having emotional moments I feel like I might break down again like I did the day I found out about his condition just because it's all still hitting me now like the after-effects of going through the whole process and seeing him go through procedure after procedure. I thank god and everyone who prayed for us that baby boy pulled through like a champ but the emotional weight of the NICU stay really has me upset the second day of being home as a family. I'm well-aware of post partum depression and have gotten early help with that to do my best to prevent and be aware of any depressed thoughts or emotions. I think my emotions today are validated as we wind down and process everything we went through... but I can't help but wonder why I am not jumping for joy to be home like I was yesterday. Feeling disconnected with my partner today too and on little sleep with newborn feedings and diaper changes all night none of this helps. If anyone can relate or offer advice or any words/thoughts it would be greatly appreciated. #NewBorn #hospitalstay #emotional #Anxiety #Depression #Crying