migraines with aura

Good Morning Mighty Family n Friends

Guess What

I think my nasty Migraine might have finally gone....
Whoop whoop...
❤❤❤❤❤😎
Only took a week. Been thinking it's been gone these passed few days. But just wanted to make sure it had, and wasn't gonna sneak back up on me. 😅
It's been raining 🌧⚡Thunder and lightening then sunny next day 🌞So wanted to make sure.
Still got nasty headaches, but that's just normal for my meds and facial conditions.

AND guess what number 2

My wonderful doctor after writing to the neurologist for the third time at my other local hospital. I only have an appointment in September.
A face to face one even.
That's another little dance time.
I've seen her before when I lived in that area.
She is really nice 👩‍⚕️saw her when she diagnosed me with trigeminal neuralgia.

So fingers crossed she can start to investigate these migraines and cluster headaches.

So as I can now see out of both eyes again, no double vision or blurry vision. I'm back on the Mighty.
I have missed you all so much. Gets lonely. But my lovely neighbour kept me company, and when she couldn't be there she'd drop off her little dog for a bit, to play with my 2 pups for a while.
Loved watching them all play. 🐕🐶🐾❤😅

Hope you are all ok. Do tell me what you are all up to.
Love n hugs Tj ❤🤗🧡😘🌞💚🐶 #RareDisease #MigrainesWithAura #TrigeminalNeuralgia #GlossopharyngealNeuralgia #SphincterOfOddiDysfunction #Anxiety #Hope #Love #Selfcare #Bekindtoyourself #Family #Friends #Depression #checkonyourneighbours #Arthritis #PsoriaticArthritis

Good Morning Mighty Family 🖐

'I really wish my human would have children'

I couldn't help but laugh at this and also think how adorable that puddy cat looks. Boy my cats would not let Me do that to them 😅😅😅😅😼😼😼
They'd be fur flying and claws out.

Hope it brings a smile to your face today what ever you are doing.
🖐🤗❤Love as always Tj from migraine bed 😎 🛌

#MigrainesWithAura #RareDiseases #Hope #PsoriaticArthritis #InflammatoryArthritis #Selfcare #Bekindtoyourself #ClusterHeadaches #CheckInWithMe #Positivity

Sitting waiting on yet another doctor today with a lovely migraine courtesy of the storm outside got me thinking. I had a very memorable first migraine. I inherited migraine syndrome from my mother and I was in primary when my first one started. It began with aura, which for me is usually big purple blotches over my vision and little floating white lights at the corners of my eyes.

I didn't know what was going on and got upset. I told a teacher I saw purple spots and she thought I was making it up - I had lots of imaginary friends and such - and ignored me and told me off until I really started to holler. Finally she broke down and called my father. He was at work, and by the time he arrived I was crying because I was dizzy and my head hurt. My dad, being a neurologist, knew very quickly what was wrong. He got onto the teacher for berating me and not calling him sooner.

I've had regular migraines of severe intensity ever since, but every aura takes me back to that first day, standing there pulling on the hem of my teacher's dress, begging to be heard. Often when trying to speak to doctors I get that same feeling of being looked down on or not listened to. I'm sure all of us chronically ill folks share in that experience, sadly. It took decades to get all of my conditions properly diagnosed, even with my father being a medical professional.

Do you remember your first migraine? How old were you? And how do you handle feeling unheard by medical professionals? #