nervepain

I really hesitate to make this post because I am not sure what help is available but it’s 1am and I still can’t sleep and I getting quite desperate.

I have a bad habit of not seeking medical help promptly because of doubts any thing can be done. Twice I have ignored very small black specks on my face only to have them diagnosed as skin cancers requiring significant surgery. This has resulted in rather obvious scars.

During Covid I ignored stomach pain only to have a life threatening aneurysm diagnosed on my liver that came close to being fatal.

In November I didn’t ignore symptoms in my leg, mainly because the pain was insane. I was diagnosed with acute compartment syndrome and was 8 hours away from having my leg amputated.

Now I am being kept awake most nights with shooting pain going down on the leg that was injured. I have tonight booked an appointment for the day I get back to Australia. I have no experience with nerve pain and I am hoping someone can give me wisdom on its treatment and ideally some hope that this is something that can be treated and not something I will have to put up with on a long basis.

I welcome any feedback. Thank you.

I’m finally getting the long suggested by docs but never approved by past insurance physical therapy in water. A first time experience with, long time needing and desired, hydrotherapy for me! It’s a big positive, filled with hope.

Yes, I’ve had physical therapy a few times over the years. But now, my body is in so much pain from nerve issues with extreme pain, burning and numbing in so much of the body. They feel like they are inflammed all of the time with constant internal vibrating tremors. It makes it very hard (near impossible) to exercise enough to stengthen whats left of my lower body. I hurt myself repeatedly trying to exercise.

I will be having therapy in a Hydroworx tank with adjustable temperature, thank god, cause hot water is excruciating now.

The tank has a treadmill, removable seat and grab bars for holding onto. A bit of anxiety inside with a whole bunch of gratefulness and excitement that I’m finally getting to access it along with the security of exercising with a therapist right there. I keep thinking, I really hope it cools and calms these constantly inflamed, burning nerves. I know, it’s a little much to hope for but as it is now, when the heat has me suffering real bad, sometimes I get into a cool shower and just sit there until it lowers my body temperature a bit and it feels better to my body for awhile. Hopefully, the tank will do that too along with some badly needed exercise strengthening and endurance. I’m excited! Thank you to my neurologist! Wish me luck folks, because I need it, lol 😂 #ChronicPain #hydroworx #nervepain #Undiagnosed #PhysicalTherapy

Most days I feel like I am an imposter in the chronic illness space. My bloods/xrays are not that ba, but bad enough to show somethings wrong. But then why the pain, fatique, brain fog, blackouts, nerve pain, stiffness. If I'm not that bad, why do I feel miserable? The thought that this can get worse is overbearing! I look normal, I'm generally a helpful, talkative, able human being. So I feel like an imposter. I feel like I am not sick enough and don't belong. I have to fight to get heard by my docters, my friends and family don't understand. I'm tired of explaining. I now know that I don't absorb medications, THIS SUCKS! All I want is to be pain free, have energy, sparkle and enjoy my life. I'm in limbo as I can do neither whole heartedly. I am not deathly ill, neither am I capable to have a normal everyday life without the constant reminder this is hard, this is painful, this is exhausting. So yes, I feel like an imposter.

Don't get me wrong, I am so incredibly greatful for the things I can do and that I am not gravely ill. I am so incredibly thankful that I am not as bad off as a lot of people on this platform. All I want is for my current symptoms to be treated so I can continue with a normal life.

So yes I have imposter syndrome and I don't know how to overcome that! Not healthy enough to belong, not ill enough either!

#ImposterSyndrome #PsoriaticArthritis #Spondyloarthritis #nervepain #ChronicDepression #PTSD #CPTSD #generalizedanxiety #InappropriateSinusTachycardia #AutonomicDysfunction #atrialfibrillation #costochondritus #discbulges #JointHypermobilitySyndrome

The theme for February's Mighty Art Room is process, so i thought I'd show something that is taken photos of at the time. It's quite old, but generally the way i most paint. From sketch to finished piece. This is one of the Fairy Godfather, which is my original character that I've written many books about and hope to publish one day when the health and pain stars align! This is a painting done digitally over a pencil sketch. I use a program called Painter which is very much like painting in real life, just less messy! 😅 I'm not very good with layers and things so yeah, but somehow it gets done.

Well off to finish chores so i can enjoy the olympics tonight! Yay! i hope everyone has as good a weekend as possible! #ChronicMigraineSyndrome #ChronicPain #ChronicIllness #Art #ArtTherapy #AnkylosingSpondylitis #SpinalStenosis #DoubleVision #cps #ComplexRegionalPainSyndrome #sciatica #nervepain #BipolarDepression #Asthma #Anxiety