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MarvelousFlamingo02
 • 
@marvelousflamingo02
RestlessLegsSyndrome 1mo
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Stealing sleep

I have to steal sleep sometimes because my pain won't let me sleep "when I'm supposed to". I'm definitely over it, of dealing with all the health conditions I have but onward I will always go. It is just one of those nights where I didn't sleep. Now it's morning and eventually I'll knock out. Until then, my body is driving me nuts with multiple types of pains in multiple spots on/in my body. Starting with a bad headache all the way to my legs suffering a minor RLS flare and my foot having strong nerve pains,.etc.a flare up from an old injury. When I have multiple pains and when they're a certain level or higher, it prevents me from sleeping...even being still in bed. I can't stop moving and twitching and trying to be restful but I am restless. 😮‍💨😮‍💨😮‍💨😮‍💨😵‍💫😵‍💫😵‍💫😵‍💫 #RestlessLegsSyndrome #ChronicFatigueSyndrome #ChronicPain #nothingtohelpthepain #handlingitsolo #nobueno #Painsomnia

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thewelshzebra
 • 
@thewelshzebra
Painsomnia 1mo

3:21 am

Could really do with the sleep, need all rhe extra help i can get with visiting my brother for his birthday tomorrow. Send helps #Painsomnia

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LauraScardigno
 • 
@laurascardigno
Insomnia 2y
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Insomnia, Painsomnia…. morphing into a vampire 🥱 ?

Arghhhhhh, it’s 4:31 am and I’m sitting here watching mindless tv. Law and Order SVU to be exact. Trying to summons those sheep that you apparently were told to count. Does anyone remember that? What was that all about? Lol, hope everyone else was able to sleep. FYI I am completely jealous if that is the case 😮 #Insomnia #Painsomnia #MultipleHealthChallenges #Gastroparesis #mightycontributor

(edited)
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Tropicmanic
 • 
@tropicmanic
Painsomnia 2y

Painsomnia strikes

It’s 6am ish where I live and been taking meds for pain and insomnia but nothing is working. I’m in agony. I’m really exhausted but my back muscles wouldn’t stop aching and spasming. Anyone out there? Idk what else to do. This happens all too often and i feel defeated. #Painsomnia #Insomnia #fibroflare #BrainFog #ChronicFatigue #Pain #MyalgicEncephalomyelitis

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ChronicMagnificence
 • 
@chronicmagnificence
The Bendy Bunch 2y

Pain Management

Hey, everybody! I've been having a lot of widespread pain lately. It feels more like connective tissue pain/damage than my normal joint, nerve, and muscle pain. My usual pain management techniques haven't been giving me much relief. Does anyone have any suggestions for things I could try? I'm having a really hard time sleeping so I'm getting a little desperate. #EhlersDanlosSyndrome #ChronicPain #Painsomnia

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Kails
 • 
@kaylajohnston54
ChronicIllness 2y
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Kails
 • 
@kaylajohnston54
Up All Night 2y

Just one of those nights

What’s worse than insomnia? Painsomnia.

Anyone else up and want to talk? Send me a message , let’s be friends :)

) #Insomnia #Painsomnia #Cantsleep #Gastroparesis #EhlersDanlosSyndrome #IntestinalPseudoOnbstruction #PulmonaryHypertension

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Karianne M
 • 
@fibrospoon
Fibromyalgia Friends 2y

#Painsomnia Fibro

Guys I need suggestions my nightime pain has been absolutely ridiculous lately. What do you do to help? I cannot handle anymore its so hard #Fibromyalgia

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Rachel Langer
 • 
@rachlanger
2y
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3AM Heating Pad Date #Painsomnia #Hypermobility #Endometriosis #EhlersDanlosSyndrome #HEDS #Arthritis

The upside to having painsomnia at 3AM is that you have 8 different heating pad/devices to choose from. The downside is everything else.

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Ellie
 • 
@ellie001
Up All Night 3y

Post surgery struggles

I had a #venogram on Thursday to address #nutcrackersyndrome and #MayThurnersSyndrome . Compression was found in both my renal and my iliac. My iliac was stented for the third time. This recovery has been brutal. The pain is horrible. I cannot get in a comfortable position. I’m just frustrated. I woke up at 3am in a full #PanicAttack l am grateful my boyfriend was with me and helped me through it. But I haven’t at a decent night of #Sleep in days. I hate #Painsomnia . I Like to have soft blankets and lots of pillows and stuffed animals around me when I feel like this. How do y’all find comfort?

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