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3:21 am
Could really do with the sleep, need all rhe extra help i can get with visiting my brother for his birthday tomorrow. Send helps #Painsomnia
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Insomnia, Painsomnia…. morphing into a vampire 🥱 ?
Arghhhhhh, it’s 4:31 am and I’m sitting here watching mindless tv. Law and Order SVU to be exact. Trying to summons those sheep that you apparently were told to count. Does anyone remember that? What was that all about? Lol, hope everyone else was able to sleep. FYI I am completely jealous if that is the case 😮 #Insomnia #Painsomnia #MultipleHealthChallenges #Gastroparesis #mightycontributor
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Painsomnia strikes
It’s 6am ish where I live and been taking meds for pain and insomnia but nothing is working. I’m in agony. I’m really exhausted but my back muscles wouldn’t stop aching and spasming. Anyone out there? Idk what else to do. This happens all too often and i feel defeated. #Painsomnia #Insomnia #fibroflare #BrainFog #ChronicFatigue #Pain #MyalgicEncephalomyelitis
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Pain Management
Hey, everybody! I've been having a lot of widespread pain lately. It feels more like connective tissue pain/damage than my normal joint, nerve, and muscle pain. My usual pain management techniques haven't been giving me much relief. Does anyone have any suggestions for things I could try? I'm having a really hard time sleeping so I'm getting a little desperate. #EhlersDanlosSyndrome #ChronicPain #Painsomnia
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Can’t sleep
Night time is probably the worst. Anyone else up? Let’s talk! :)
#ChronicIllness #SpoonieProblems #Spoonie #Gastroparesis #EhlersDanlosSyndrome #MastCellActivationDisorder #ChronicIntestinalPseudoobstruction #PulmonaryHypertension #PulmonaryArterialHypertension #Painsomnia
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Just one of those nights
What’s worse than insomnia? Painsomnia.
Anyone else up and want to talk? Send me a message , let’s be friends :)
) #Insomnia #Painsomnia #Cantsleep #Gastroparesis #EhlersDanlosSyndrome #IntestinalPseudoOnbstruction #PulmonaryHypertension
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#Painsomnia Fibro
Guys I need suggestions my nightime pain has been absolutely ridiculous lately. What do you do to help? I cannot handle anymore its so hard #Fibromyalgia
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3AM Heating Pad Date #Painsomnia #Hypermobility #Endometriosis #EhlersDanlosSyndrome #HEDS #Arthritis
The upside to having painsomnia at 3AM is that you have 8 different heating pad/devices to choose from. The downside is everything else.
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Post surgery struggles
I had a #venogram on Thursday to address #nutcrackersyndrome and #MayThurnersSyndrome . Compression was found in both my renal and my iliac. My iliac was stented for the third time. This recovery has been brutal. The pain is horrible. I cannot get in a comfortable position. I’m just frustrated. I woke up at 3am in a full #PanicAttack l am grateful my boyfriend was with me and helped me through it. But I haven’t at a decent night of #Sleep in days. I hate #Painsomnia . I Like to have soft blankets and lots of pillows and stuffed animals around me when I feel like this. How do y’all find comfort?
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What is one thing that you love about summertime?
☀️Summertime shady decks/cool nighttimes☀️
Having fibro can make temperature control an issue. Too hot, too cold, most days I feel like a mixed bag between Princess and the Oea and Goldilocks. Everything ’bothers’ and temperatures need to be ’just right’.
I have always enjoyed the sun and It’s life giving properties. I have managed to get a little sun on my skin while out, and be out on my shady deck enjoying my flower pots. I have a thick foam cushion loveseat which has made sitting out there enjoyable. This summer there have been some cool rainbows also. Sharing from my deck;)
Having painsomnia, gets me up at 3 or 4 am. By then the temperature drops and it’s comfortable to be out, so I go sit on the deck to watch the night sky, and hang with the fruit bats that like to do flybys over my head.
#Fibromyalgia #Painsomnia #Summer #RAINBOWS #Joy #ChronicHeadaches
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