The one who we see first causes more confidence. It also helps our appointment go much smoother and we leave feeling uplifted. Have a story that can help those putting their offices together appropriately?
This is a love letter to all the 53 million family caregivers out there. XOXO HZ
Dear “Invisible Army”,
As we approach National Family Caregiver Month I want you to know I am here for you.
I am your advocate, defender, and non-judgemental friend you may lean on.
I hear your secret cries in the shower, cars, and bathroom stalls alone.
I understand the frustration and sadness of what was and what is.
I see YOU when you are in the shadows and behind the scenes making sure your loved ones have the spotlight as you find your light fading.
All 53 million of you.
I feel your isolation, pain, guilt, shame, and loss of self.
I share in your triumph of having 15 minutes alone.
I grant you grace when you are barely treading water.
I will emphasize self-compassion for you are only human.
I will breathe with you when the doctor brushes you off, because how could you who are on the clock 24/7 and deal with crisis after crisis on a daily basis possibly know what is going on with your loved one when you didn’t choose to go into this field.
I will advocate for you when work questions “Again? Didn’t something just happen?” Yes, I will say with you and say yes it did just happen and it will happen again and again and thank you for the support and shared understanding.
I will not apologize anymore with you for the chaos that is ours and embrace it.
I hand you my voice to advocate for yourself.
I give permission to you to start putting boundaries so you may find your joy again.
I empower you to dig into your trauma and acknowledge your grief.
I will hold this safe space for you to begin your forgiveness journey of self and others.
I gift you light and love to fill the cracks of your broken heart and spirit so you may begin to rebuild both to become stronger and greater.
I laugh with you at the healing power of dark humor.
I will challenge you to find the beauty in this brutal life we lead.
I will gladly conduct this hot mess express and advance us into the light.
I want you to know I am here for you.
I am your advocate, defender, and non-judgemental friend you may lean on.
Love,
One of Fifty-three million.
#Disability #thanksgiving2018 #caring #agere #seniorcare #Dementia #seniorliving #griefsupport #SafeSpace #socialworker #ageregression #families #sfwlittlespace #ddlb #patient #littlespacecommunity #firstaid #Caregiving #babycore #Caregivers #patientcare #elderlycare #assistedliving #eldercare #alzheimersawareness #ageregressioncommunity #ageregressionsfw #onlinecounselling #homehealthcare #Caregiversupport #nationalfamilycaregiver
#RareDisease Adult Care "As a sick kid who has successfully become a sick adult and reached the fourth decade of her life, I get the impression that my medical team sees their job as done." #lifelong #patient themighty.com/2019/08/beta-thalassemia-transitioning-to-adult-care
This statement is masterful.
"I think sometimes when you have been broken and hurting for so long, over and over, you become this master of hiding the pain because it’s exhausting, and you don’t want people to think you’re broken. But there comes a time when you hide it so well, that after so long people will assume you’ve stopped suffering."
#ChronicPain #patient #longterm #Life
Read Article: tinyurl.com/y5topso2
We shared an outstanding article from The Mighty today, about Rare Disease and Mental Health. It's on our page, here > www.facebook.com/KlippelFeilSyndromeFreedom
Whether you've got a runny nose, a broken bone, an STD, or cancer....know this; you are being hugged by the angels of life at every moment. Regardless of who you are, you ARE loved and you matter in this world. Your pains, hurts, tears, they all matter. I am sorry that you are in a position of illness today but hang in there, sweetheart. You have the strength to get through anything and you will! Whether you're here on this earth for 1 second or 1 century, you mean something to this universe...tomorrow will be another day, just keep fighting and never give up. May love surround you today and forever. Big hugs
#Support
#patient
#patientlywaiting
#sick #doctorsoffice #illnesses #sickandtired #youareloved #Never alone #coldandflu #sickchildren #Cancer #std #brokenbones #scaredofdoctors #strength #youarestrongerthanyouthink
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