Sleep Apnea

One of the everyday challenges of living with a rare disease such as achondroplasia is explaining the rare disease to others (whether your doctor, family, friends, or strangers).

What is something you wish others knew about achondroplasia? What is something you are just tired of explaining? Share in the comments below. ⬇️

#RareDisease #Caregiving #Parenting #Achondroplasia #Dwarfism #SkeletalDysplasia #ChronicPain #SleepApnea

Balancing self-care and daily responsibilities while living with achondroplasia can be challenging, especially when you're experiencing stress. How do you relieve stress as it relates to your condition? Let's share and help one another in the comments below. 💌

#RareDisease #Parenting #Caregiving #Dwarfism #Achondroplasia #SkeletalDysplasia #ChronicPain #SleepApnea

If you live with a rare disease, you may have found that having a “toolkit” (real or figurative) helps you better manage your health, especially on days when it’s difficult to remember what might make you feel better.

Whether it’s a list of coping strategies you have in your head, or a box of relaxing, distracting activities, a rare disease toolkit can come in handy. What do you have in yours? Share in the comments below.

#RareDisease #Parenting #Caregiving #Dwarfism #SkeletalDysplasia #Achondroplasia #ChronicPain #SleepApnea

The start of a new year can be a stressful time for all, but especially those living with a rare disease. We’ve rounded up 3 pieces to kick off 2023, which you can check out here:

📱 11 Tips for Making Medical and Insurance Calls Less Frustrating: themighty.com/topic/complex-regional-pain-syndrome/tips-call...

🩺 To the Parents Whose Children Have Been Diagnosed With a Rare Disease: themighty.com/topic/rare-disease/new-parent-child-rare-disease

✔️ 5 Reasons You Need a Rare Disease Community: themighty.com/topic/rare-disease/finding-rare-disease-community-helps

#RareDisease #Parenting #Caregiving #Achondroplasia #Dwarfism #SleepApnea #ChronicPain

Hi there! Welcome to Let’s Talk Achondroplasia, a safe and inclusive space for peer support and connection around achondroplasia. My name is Sav. I’m the group leader of Let’s Talk Achondroplasia and a member of The Mighty’s staff. I’m here to share information and resources related to achondroplasia, as well as ask questions about your experiences.

I’m so happy you’re here! Feel free to make a post introducing yourself and tell us about how ACH has affected you. You can share as much or as little of your story as you’d like — whatever feels right.

#RareDisease #Parenting #Caregiving #Achondroplasia #Dwarfism #SleepApnea #ChronicPain

One thing I know about the change in seasons is how the decreased number or light hours affects my sleep. For me, I realized that because it’s usually colder and dark in my room for majority of the day, I feel more inclined to take a nap or go to bed earlier even if I don’t fall asleep right away at night.

What about you? What are your sleep patterns like in the fall and winter months compared to spring and summer?

#Insomnia #ChronicPain #ChronicIllness #SleepApnea #Depression #BipolarDepression #Anxiety #MentalHealth #Disability #MultipleSclerosis #CheckInWithMe