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Dizzy from doctors 🥼

Hey. I’ll try to keep this short as it’s way too much if I go into details.
2 years ago began the start of the newest problems.
August 2024, they increased and got worst at a way faster rate.

Diagnosis:
Vitiligo
Recurrent staph/MRSA/cellulitis
Folliculitis/Eczema/Prurigo Nodularis
Anemia (most of my life)
Thickened endometrium
Hormone imbalances
Migraines
Spinal injuries
Mental health (ptsd/severe anxiety/depression)
Chronic swollen throat/tonsils/lymph nodes
Sinusitis
Chronic dry cough
Low BP
Recent deviated septum
Fatigue, malaise
Body aches/weakness
Carpal tunnel
Skin intolerance to hot/cold
Recurrent UTI’s
Fibromyalgia
Recurrent ear infections / ear staph
Eustachian tube dysfunction
Hearing loss
Uterine fibroids & cysts
Memory loss
ADHD
Severe Insomnia with nightmares
IBS/GERD
TMJ/Bruxism

Not yet diagnosed:
Raynauds (2 almost constantly blue toe nails, recently started in second, 1st has been present last two years off and on)
Chronic chills
Brittle nails
Hair loss (possibly medication related)

Recent testing:
A few genetic tests
Allergy testing
Several autoimmune panels

Current additional issues:
Oral thrush (due to long term antibiotic usage - close to four months now)
Ear pressure/fullness along with dark red/purple spot inside filled with liquid ? Also spots of white appearing pus that pop to drain
— can’t handle loud noise or cold air currently. Severe ear itching.
Eye itch and redness (not pink eye)
Muscle weakness and twitching - minimal long-term control in arm muscles

Pending:
Additional testing
Meeting hematology
CT of neck/throat/nose
Hysterectomy (paused until healthy)

Immediate Family history of:
Lupus (blood work shows low middle numbers not high enough to diagnose)
Celiac (ruled out by endo/colonoscopy)
Psoriasis
RA (ruled out by blood work)
Heart issues

All I can say is yes, I’m in pain. And yes, I’m exhausted. And frustrated. I’m not a crier and all I do is start crying all the time. I have 4 kids and I can’t be the best for them. I am failing everywhere in life and I just need to get this fixed or someone to finally step in and help because I can’t keep declining like this.

I am a veteran. I have little say in my health care. I can’t get a second opinion. Getting a rheumatologist seems to be impossible despite numerous doctors telling me I should see rheumatology. I’m feeling so defeated. If I could at least narrow things down it would help so much, so I could share my research with my doctors. I have several things on my list but I need to get a really good list. Please help if you can think of what may be causing all of this.

Thank you.

*** I would share many more pictures if I could 💕

#chronichealth #Pain #hurting #mother #Veteran #Desperate #pleaselisten #sick #someonegetmedrhouse #illeventakethegoofysidekickguy #ijustwanttofeelbetter #helpme #Genetics #hematology #labs #Skin #Dermatology #IBS #GERD #autoimmune #Disorder #PTSD #Fibro #Rheumatology

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To the Veterans #ThankYou

I recently saw a viral body cam clip of a veteran on the side of the road, on the phone with the VA Suicide Hotline. The veteran was sobbing as he explains that he's on the phone line and can't afford the ambulance that the police officer is trying to send for help.

What broke me the most was that all the veteran asked for at the end of the clip was a hug.

I am not a veteran.

But I do know what it feels like to be sobbing on the side of the road, ready to end it all. I do know what it feels like to be on the phone with Suicide Hotline as my last resort.

So to the Veterans- my heart aches for you.

I am sorry that our country has failed you as you continue to fight for us. I'm sorry if the war didn't stop when you came home.

To my friends battling mental illness day in and day out- keep fighting. I know how hopeless it feels to be on that phone line. I know how it feels to want to run to the cop and say "Please, can I have a hug?"

To family members of veterans and those battling mental illness- remember to hug your loved ones tight, and tell them you love them often.

It does make a difference. It could save a life.

#Bipolar1Disorder #Veteran #PTSD

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#MyalgicEncephalomyelitis #Fibromyalgia #Veteran Parking Permit

I am a 90% disabled veteran with a few different chronic conditions.
I have had them for years like 14 yrs one and 10 years the others. Anywho I decided to put in for a parking permit. It has to be signed by your doctor. My real doctor of 10 years left the Veterans Health administration during the quarantine. I have a new Doctor I sent her the parking permit request for her signature. She emailed me this :
“Good morning,
Based on what I am seeing that you marked (on the permit application) ” and the chart (medical record) I am confused. What is your condition that warrants this placard?”
So seeing that email 📧 triggered me it doesn’t take much when it comes to my invisible and having to explain and validate my symptoms cause they are invisible I’m over it especially when it comes to medical providers . Needless to say I guess I had to educate her (a whole doctor) the nicest way I could. Smh 🤦🏻‍♀️ beyond frustrated. Oh yea my signed parking permit application is now ready for pick up.

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Hi from the shadows

I've been on this app a lot, always just reading, never posting.

I'm sure I'm not alone, but I joined this app and others like it to try and find distraction from the crazy world that's in between my ears. The place that the bad version of me lives, and he's trying everything to bring me down.

I'm slowly but surely trying to break the patterns of behaviour I've found myself in over the last several decades. I'm just thankful I've found things like this app to keep me stepping forward despite the inner voice trying to drag me back.

I don't know if I will be of any help, but I'm promising to start posting and commenting more in the future. In the shadows is what my head wants and that's got to stop.

Anyway...only came on to say hi 🙃🙈 have a great Easter everyone.

#UK #Undiagnosed #BPD #PTSD #Veteran #HappyEaster #Recovery

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#Crisis not suicide# phone number#Group #Caregiver #Burnout #Veteran #PTSD #tbi#Caregiver #Bipolar A NON SUICIDE HOTLINE #Text ?

I may possibly need to talk to someone , understanding.listen to me. But no privacy. I am afraid if I start that I won't be able to put myself back togetee
Don't give me suggestions how example do his meds different. Vent .Sob .I am so tired. He is able to do , help but lazy.
Finances.

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A New Mental Health Paradigm! #Veteran mentor

watched PBS Milwaukee10/36 and found Dr. Daniel Amen talking about Change your Brain, Change your Life!
What if doctors and psychiatrist s took a positive, a holistic approach to Brain Health, instead of the negative labeling, and "branding As
Defective," Mental Health patients as all being mentally Ill.
As a VETERAN, on the ARMY team,
Few service members want to volunteer to be a defective or Ill
"Patient", which the parent organization, (or organism) culls
That defect because there is a
("0 Defect)" military mentality.
If you're experiencing depression,
Or Anxiety, who volunteers to be Labeled as a Mental illness, or Patient. Millions are having Anxiety
Or depression today; as well as Corona Death? Physical and Mental
"Distress" ...comments??