Back Pain

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Now that I have had a chance to digest yesterday...

Transportation said it was on the way. We had a live map showing where he was. Then it said he arrived but the map showed 10 minutes away. So we went outside and no car was here. We looked at the map again and it said ride has started.
So I called my insurance company and got hung up on 3x. Then we called back and explained everything and the guy was super nice. He wasn't able to fix it but he elevated the call to 2nd level.
She was able to order us a new ride. It looked like we would be 15 minutes late so I called my doctor. The lady who answered the phone said "thank you for calling, this is Tina, can I put you on hold for a moment?" And I replied "of course Tina" and she recognized my voice and said "oh gosh who is this?" And I said "it's Nox, hi Hun". She got excited to hear me and she asked if something was wrong. I said we might be late and she said no worries she's got me.
When we showed up Tina said she checked me in already. She's so nice. So we sat and watched the TV in the waiting room for 10 minutes.
They called me back and took my vitals and I had to do a finger stick to check my BG. It was perfect. My BP was high but low enough for them. So I got taken back for the procedure.
I laid on a medical bed with a cutout for my head. I've been on it before for cortisone injections. So I exchanged pleasantries and laid on the bed. They strapped my legs in place. They explained I was gonna feel a cold spray, I did, then "big poke" which holy hell big poke! And they did it 6 times! I may have invented new ways to use the word fuck.
She said I did great. I count "did great" as didn't bite the nice doctor and her nurse. I really like my pain specialist. She's always happy to see me. And her nurse is super nice. She has a necklace with her grandmothers rings and cross.
Now it's been just over 26 hours after the injections and I don't feel much pain but every so often I get a sharp stabby pain in my left SI. This procedure, at most, will last 2 weeks. It's a test to see if the pain will respond to the nerve block.
#BackPain #Nerveblock

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Good morning

I've got my nerve block procedure this morning. We're getting picked up in about an hour. I don't feel good at all. My back from base of my skull to my tail bone hurts so much. I feel like I got kicked. I took my morning insulin and I ate a croissant for breakfast.
My BG should be fine when I get there cuz it's currently in the 220s. I went last week and my BG was 12pts too high. I don't know what to do about my BP being high. I've got my giant water bottle full of sugar free juice. I just took a few hydroxyzine to calm me down.
This procedure is a test . It's temporary. It's gonna show us if the pain is in that area. It'll last less than 2 weeks. I'm just hoping it works.
#BackPain #spinalepidurallipomatosis

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Today was rough

My head has been ouchy most of the day but about an hour ago I took a ubrelvy and a Norco. Now my head feels better and my back and hips don't hurt! It's so rare that I don't have any pain like right now.
Did I post about my A1c yesterday? I'm gonna operate on the assumption I didn't. The last time my A1c was checked it was .2pts away from 12. Yeah everyone freaked out. But the last time was about a year ago. So this week we checked it and it was down to 9.2! I've been trying to eat healthier but I'm depressed and craving sweets and baked goods. I actually was planning to get the ingredients for white chocolate cranberry biscotti. I haven't done any baking in a few years. But I don't see me having any trouble getting back into it. I've also been planning to get back into sewing plushies. It's been 7 years since I last sewed anything more than fixing Pauley's pants but it didn't stay together cuz I didn't sew it good enough.
I have at least 10 boxes of fabric and I just gotta go through the boxes and find the good stuff. I know I have some gorgeous black lace that I used over some shiny teal for a dress corset on a black bunny with teal dreads. I used teal yarn for the hair and I braided each strand by hand. It was a really involved plushie for sure. There's a link to my deviant art page on my profile if you're interested in seeing my art and crafts, some leather work, and if you've got a deviant art page of your own I posted a little softcore erotica about me and my partner going to a park to play fetch and run around in my puppy gear. It would be so much fun.
My tongue hurts and I don't know why. It might be from eating some pickled asparagus and artichoke salad for lunch. But now I don't want to eat dinner.
Pauley is very cranky. I asked her if she was mad at me and she said no. I think she's got a headache and she said she took meds already. I dunno.
My eyes hurt a lot but my migraine is gone. I'm really depressed. I'm listening to oingo boingo again. Danny Elfman has such a sexy voice. I asked my caseworker who took me out today if she has ever listened to oingo boingo and she said she has never heard of it. I explained how Danny did all of the music for Tim Burton's films. She said she'd check it out.
My back pain came back. Because of course.

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So much for Pride

Good early morning all. Writing before all the crews get here. Yesterday was a day of loss Pride when I went into Home Depot to pick up a few things. Prior to my “accident “ I was in great shape physically and mentally ( not bragging by all means ) but what I was looking for happened to be on the lowest shelf. So I got down on my hands and knees looking for the right size. When I went to get up I couldn’t. Between torn meniscus in both knees, undiagnosed low back pain and of course the neck, I physically could NOT get up. A young man noticed my predicament and came over and asked me if he could help me. I didn’t turn him down. Needless to say I was embarrassed, but what hurt the most was my pride. Pride for all of us can be a bad thing. As I would have told anyone here don’t let your pride get in the way of your true self. Today is yet another painful day so I’ll take it easier but it’s time to schedule some doctor appointments which I hate with a passion. For all our “spinal pain patients “ following a spinal fusion. There’s what’s called adjacent disk disease which puts the stress point on the verabrae above or below the fusion site. Domino affect unfortunately. Spinal surgeons don’t tell you this. When you look up the rating for a surgeon and they have a 98% success rate, the only word for a successful spinal surgery is “ stabilization “ It does not take into account the nerves etc. Pain is a constant reminder. I hope everyone here is having a great day and think “POSITIVE “ thoughts. Don’t let your Pride get in your way!……David

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Sigh

Pauley keeps yelling at me for having greasy hands. She yelled at me for putting one fingerprint on her bag of salami. I'm sitting here trying to schedule my rides for all of my appointments over the next month. I'm actually struggling with -vaguely gestures to all of me- and I don't know how long I'm gonna be able to handle it on my own. I'm stressed out cuz Pauley is going out of town for a convention next month. It's not a big deal, except for the fact she's going to be with her QPP and she has said some nasty stuff about me over the last few years. We went to the movies with her and her husband a few months ago. It went well. I don't hate her, I don't know her well enough.
I think I'm hungry but I have a bad migraine.
Pauley is asleep on the couch next to me and I was just minding my own business and my darling stupidhead let loose a very loud fart. I jumped and I might have yelped in fright. She thought it was hilarious. Then she went back to sleep.
My neck kinda hurts. I don't know if it's cuz of my eye disease or cuz I didn't wear my glasses this week. I finally put them on and my vision is utter shit. My eyes are blurry and I see double. I wish today would go faster.
I'm in so much pain and I need to call my doctor's office to schedule an appointment with my Opthalmologist surgeon and with my headache specialist. I need to get both of them to communicate with each other so we can work together. I'm so glad I have Pauley to help me talk to my doctors at my appointments.
I'm hungry and thirsty and Pauley is asleep still. I gotta go figure out what to make. Popcorn chicken or broccoli in some Alfredo sauce. And my migraine is at 8.5 right now. I can feel it in my eyes and I can feel it in my hands. I don't understand how my eye surgeon said I'm not a candidate for the surgery. She didn't really say what her reasoning is.
I gotta get my doctors to communicate with each other so we can coordinate the right care. I'm so tired of this constant migraine. The constant nausea and dizziness are not easy to ignore. I have some 8mg zofran but they haven't worked lately. I need a break from the constant migraine and GI distress and hips and back pain.
Time for...oh. it's too late for going out for dinner.
I guess I gotta go make food for dinner. But Pauley is very asleep. I feel like if I try to make Alfredo broccoli she's gonna wake up and be upset with me for cooking for myself. But my hunger is stronger than my fear of Pauley being a cranky pants.

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Pain

I’ve had continuous (24×7) pain for about 8 years.

Pain is deep, non-focal and present simultaneously in the front (upper abdomen/lower chest), both flanks, and upper–mid back.
MRI findings are non-explanatory.
NSAIDs, muscle relaxants, and pregabalin have given zero relief.

Because of this, my studies and daily functioning have been on hold for years.

I’m not looking for a diagnosis.
I want to know if others here have had long-standing, MRI-negative, constant pain like this,
and what approaches (pain rehab, central/nociplastic pain management, etc.) actually helped over time. #ChronicFatigueSyndrome #BackPain #ChronicPain

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Mama didn’t tell me there’d be days like this…#AnkylosingSpondylitis #Fibromyalgia #ChronicFatigue #Depression

Hurting in every joint. Swollen fingers and toes. Random tears. Back pain that gets better with movement, but you lack the strength to leave bed. And a little 8 year old girl who needs mommy.

And the tears and guilt that follow that last sentence.

I never knew that AS, Fibro, depression/anxiety could all work together to create the (not so) perfect storm.

New rheumatologist tomorrow. Here’s to hoping that a set of fresh eyes will help me. I just don’t have much strength left.

(edited)
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I'm new here!

Hi, my name is Jacqui2025. I'm here because I have chronic back pain and Complex Regional Pain Syndrome in my left hand. It is making me very depressed and I would like to learn how other people with chronic pain manage.

#MightyTogether

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I was hangry. I want cheese fries or poutine at the local bar and poutinary, Liberty bar. So I walked into my kitchen and looked in my freezer. Tater tots. Ok that's a start. I looked in the fridge and found shredded cheese, guacamole and salsa. I'm still disappointed I didn't grab the sour cream. But I smooshed the tots and mixed it with delicious things. Oh it was so yummy!
I've got a full tummy, my blankie, Lux Alba, and my music on Spotify keeping me feeling good. Of course now I have to go back to the kitchen for more juice cuz I drank a whole bottle of coffee in about 10 minutes and forgot it was for taking my evening meds. Whoops. In my defense I got very excited for coffee and I haven't gotten excited for much lately.
My neck really hurts right now. The X-ray from 2 years ago showed some unpleasant snafus including my last vertebrae under my skull has calcified to my skull. I didn't even know that was possible. And the spot under my skull where my optic nerves cross each other has narrowed. None of my eye doctors can give me any real answer about what it means.
My eyes are really hurting. My vision has been trashed since I woke up. Double vision and the left eye keeps fogging up. I gotta call to schedule an appointment with my ophthalmic surgeon cuz I asked my ophthalmologist's nurse about scheduling to talk about the pain and she said he doesn't deal with eye pain, I just gotta go back to the surgeon and tell her what's happening. Fun times.
How's your night going?
#bilateralintermittentexotropia
#BackPain #FemoralAcetabularImpingement
#spinalepidurallipomatosis