Suffering from lower back pain today again
I'm suffering from lower back pain again today. Anybody else in my position?
Hi Guys, I'm a disabled teenager and I've had a lot of experiences with people calling me inspirational and saying they could never live with my conditions which I'm sure you understand is a bit of a downer.
Anyway, I'm currently doing a research project for my English Language A-Level into inspiration porn and the use of words like inspirational which objectify people with disabilities to raise awareness (partially to my teacher who said she was just so amazed by my persistence and strength for travelling to a different country). Could anyone offer any anecdotes or quotes about their own experiences with this issue for me to submit?
Thank you for any help!!
#Disability #ChronicIllness #EhlersDanlosSyndrome #ChronicPain #LivingWithPOTS #Dysautonomia #PosturalOrthostaticTachycardiaSyndrome #MightyTogether #CheckInWithMe #BackPain
My lumbar feels awful. When I breathe deep my lumbar crunches. I am so hungry and I've got a fresh brewed pot of coffee in the kitchen. I had some coffee at about 6am today but it was cold, which I prefer. I can add heat to coffee. I can't remove hot from my coffee without changing the integrity of the original brew.
I need to eat.
*After I started this post I wandered to my kitchen for coffee. Ah yes, the elixir of the God's plaything. Pauley made a pot of butterscotch toffee flavored coffee mixed with blueberry crumble flavored coffee. Oh ho I'm doing big flavors right out the gate! Then I mixed it with butterscotch syrup and lavender syrup. It's surprisingly good!
My next coffee adventure will be chocolate and cherries!
My back is not doing very well. I've been mostly sitting on my couch and if I need food or drinks or I need to wee I scurry like a little goblin.
#coffeeadventures #ChronicPain #BackPain #FemoralAcetabularImpingement #Osteoarthritis
I've been sitting on my couch for about the last 7 hours and I haven't moved much. But every time I try to move, I get super strong jags of pain in my lumbar. I just tried moving my butt and OMG it felt like my spine was being ripped out. And God's forbid I breathe too deep or my spine and sternum cracks. I knew today would be rough. Yesterday was great but I walked for 3 hours. And that's 3 hours more than normal. Pauley and my QPP both said they were very proud of how well I did.
My face is really bothering me. I keep breaking out with horribly painful giant pimples. And my psoriasis is flaring really bad. I know somewhere I've got a cream for my face but no clue where it is.
I am gonna have my darling stupidhead goop my lumbar. It's the only thing I haven't tried.
#BackPain
No hip pain. No back pain, my legs didn't hurt... And I didn't have a migraine until just about 15 minutes ago so I took my meds. I wish I had a friend who could massage my neck and shoulders.
Lately the worst of the pain is right behind my eyes and in the socket. When I apply pressure to my eyes the pain goes away.
Ooooh my glasses left Chicago this morning! I'm really excited. I can't wait to show off my fancy new eyeballs!
#BackPain #FemoralAcetabularImpingement #Migraine
So apparently my BP and HR were very high and my nurse has been tracking it. She wants to get an updated list of my meds. Luckily Pauley has a spreadsheet of my meds, doctors, and procedures. I'll have her email my nurse.
The invega trinza injection hurts like hell and she kept apologizing. For the price of having 3 months with no symptoms I'm happy. I haven't heard voices in over 7 months. And I haven't wanted to kill myself in over 6 years.
If I had a car I'd try to become a peer support specialist. I've been told by many healthcare professionals that I would really do good work and I'm really good at listening and helping talk out solutions.
The one thing that she mentioned is coffee raises BP and HR which I knew. I probably drink maybe 30-40 oz per day. But I haven't had any coffee yet today.
I didn't bring my walker to my appointment. I was out of breath and gasping by the time I got up the stairs to the 2nd floor where I live. It's just 17 steps but I have so much going on with my health. It might as well been a mile.
I am craving fried green tomatoes and fried okra and fried cabbage with bacon and OMG fried smashed plantains! Southern/Jamaican food makes my soul happy.
My arm is gonna be achy for a few days. Nowhere near the pain I get in my hips.
#PTSD
#BackPain #FemoralAcetabularImpingement
#SchizoaffectiveDisorder #BorderlinePersonalityDisorder
Lots of stuff is happening this week.
Tomorrow is the EEG.
Tuesday is therapy and Endo.
Wednesday is my next invega trinza injection.
Thursday I'm trying to see if my peer specialist will come kidnap me for lunch or coffee.
Friday is the cortisone injections in both hips!!!
Saturday is the curiosities and oddities expo with Pauley and my QPP. I'm very interested to see how I handle walking around the expo. I'm bringing my walker. I should be able to handle at least 3 hours.
Right now my pain is at 7. As long as I don't move.
#BackPain #ChronicPain #didimentionthemigraine
The intensity of the pain is just ridiculous. It's impossible to move without feeling like my legs are being ripped off. I sat here and cried while Pauley was in the kitchen. I don't want her to worry so I'm doing my damnest to hide it. She's burnt out and I know she doesn't have any spoons to help me. I'm trying to do my best to take care of myself.
But it's effecting my mood. I'm really not ok.
I just want to sit swaddled in my blankie with my cow and I want smile potatoes and bacon and scrambled eggs. And a donut.
#imcranky #BackPain #FemoralAcetabularImpingement
Yesterday my new pain management doctor wanted to see my range of motion in my hips. She had me lay down and she bent my right leg. OMG the pain spiked to 9. She apologized for hurting me but I said she needs to see how bad it gets.
This morning I woke up in serious pain. My lumbar feels like I got kicked. My right hip really hurts. But the X-rays showed us why my right side hurts so much. The ball socket is bone on bone. It's new since September of 2022.
Thankfully I have Pauley. She gave me a Norco and she put some CBD cream on my back. Right now pain is at 6.
My fasting BG was about 152. I need to eat something but I don't want to get off my bed. I'm craving a grilled cheese sandwich with some sweet potato red pepper soup.
#BackPain #FemoralAcetabularImpingement #Bursitis #Osteoarthritis
Hi everyone:) I have been dealing with excruciating back pain for 8 weeks. Lots of tests, shots, & meds. Not much is helping. I have a very important test on Tuesday. I’m hoping it goes well. I’m very scared. I’ve never experienced physical pain like this. And I have bipolar disorder and panic disorder. Having a really tough time. How are you all doing?