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Sigh
I have a moderately rare spinal disease called spinal epidural lipomatosis. But it's complicated.
I had surgery 3 years ago to remove a large mass of unencapsulated fat tissue around my lumbar spine. The condition showed up on the MRI. My surgeon said it'd be easy.
When I woke up in obs, the surgeon came back to brief me. Apparently the mass of fat was much more tangled and bigger than they expected. My surgeon said he did his best.
Now that was on June 22nd 2023.. fast forward to now. I had an updated MRI. My back pain has been going down both of my legs. That's classic sciatica. So when we saw the new MRI we saw it grew back and it's worse than before. I also have 2 spots of stenosis. Basically damage is bad enough for surgery but I haven't talked to my pain specialist about options. Why? Yesterday I told the receptionist my pain hit 9 and I asked her to tell my doctor. Her response was " she says take Aleve or Tylenol" no. Fucking no.
I'm fed up with not being taken seriously. Nobody cares when I'm sick. I feel so awful. My logical part says people care. But when the intense level 8 and 9 pain kicks in...
What you need to know is I love pain...that I consent to. I am a sadomasochist. I love being knocked around and I love wearing a nicely bloomed field of bruises on my ass. But spinal pain? Fuck no. Big nope.
So when I say my pain is at 8... I should be out of my head. I should be blacked out in bed.
I want fried okra and catfish. I'm depressed.
The picture is my spine right before the surgery.
