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Miss Rosie with her boyfriend named Bruno. He is a Great Dane!!

They LOVE to play so our day revolves a Lot on hearing his bark from our bedroom and then Rosie races off the bed and spins and spins and spins in happiness while barking with her playful yips.

It is so much fun (Nixing the part where my joints all painfully pop out as I try to hurry and let her out) then she races up to the fence to bark and spin a lot more.

She was scared of his big self at first but me going up to him and giving him scrapes helped build up her courage ❤️

Can you tell she is my LIFE? 😁❤️✨️💖

#AmplifiedMusculoskeletalPainSyndrome #Arthritis #Asthma #Anxiety #AnkylosingSpondylitis #bedbound #ChronicFatigueSyndrome #CheckInWithMe #ChronicPain #ChronicIllness #ComplexRegionalPainSyndrome #Depression #Disability #DistractMe #EhlersDanlosSyndrome #Endometriosis #Fibromyalgia #GastroesophagealRefluxDisease #Grief #gallstones #HypothyroidismUnderactiveThyroidDisease #Hypersomnia #HighBloodPressure #JuvenileRheumatoidArthritis #Insomnia #Lymphedema #PosturalOrthostaticTachycardiaSyndrome #PTSD #Psoriasis #PsoriaticArthritis #Psychosis #PanicAttack #PanicAttacks #plantarfasciitis #MentalHealth #MightyPets #musclespasms #MultipleAutoimmuneSyndrome #Upallnight #CheerMeOn #SuicidalThoughts #Sleepwalking #sciatica #Scoliosis #ShinSplints #BoneSplints

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Dear heaven my mighty friends, I had an especially horrid night last night

I woke up at 11:30 or so to an urgent voice whispering that said: "good dog, good dog."

As I sat up, my eyes were drawn to one of my windows. It was someone in a Darth Vader mask who had peeked their head around my window cooler to look in my room.

Normally I sleepwalk and hallucinate, I never am fully awake but during this I absolutely was aware and terrified. I pretended to casually grab my phone. I called my mom and dad who take care of me but got only voicemail. I was shaking and so I called 911 so whoever it was would know I was asking for the police. The mask through my window disappeared and I ran to wake up my parents.

Years ago in our first house someone broke into our front window where my Lil bros room was. They cut the screen. But unexpectedly I had set the alarm that night so it went off. My parent thought I had wrongly set off the alarm and then fell asleep hard. It wasn't until my brother got home from school that he noticed the cut screen (we lived down the street from a drug house where we had people on drugs stealing and breaking in and scaring all our neighbors all the time. They even had an attempted murder where a girlfriend was chained up and stabbed multiple times.)

Yeah, dark stuff. We found out the alarm had been set off when the wannabe thief tried to open my brothers window. That scared the bad guy away. My parents thought it was me so they told the security it was nothing but after us all talking we filed a report and thanks to our cameras the police got him.

So flash forward to last night where it was my bedroom window at the front of the house hidden by a bush even. We have had people break into vehicles and take things so it makes sense to me that not only was I not sleepwalking but it was very real. But my parents don't believe me. Again. The people who mean the most to me never believe me and I have to fight hard against any tiny doubts in their minds. I am so sick of it and I was and still am terrified of what happened. But I seem to be the only one who cared.

Family can be great but they can also cut the deepest. 😥

#AmplifiedMusculoskeletalPainSyndrome #Arthritis #Asthma #Anxiety #AnkylosingSpondylitis #bedbound #BoneSplints #ChronicFatigueSyndrome #ChronicPain #ChronicIllness #ComplexRegionalPainSyndrome #Depression #Disability #DistractMe #EhlersDanlosSyndrome #Endometriosis #Fibromyalgia Great #Grief #gallstones #HypothyroidismUnderactiveThyroidDisease #Hypersomnia #HighBloodPressure #JuvenileRheumatoidArthritis #Insomnia #Lymphedema #PosturalOrthostaticTachycardiaSyndrome #PanicAttack #PanicAttacks #PTSD #Psoriasis #PsoriaticArthritis #Psychosis #plantarfasciitis #MentalHealth #MemoryLoss #MightyTogether #MightyPets #Migraine #SuicidalThoughts #Scoliosis #sciatica #ShinSplints #Upallnight #CheerMeOn #RareDisease #RareDisease #RheumatoidArthritis #Sleepwalking

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A hilarious thing we have discovered is that Rosie doesn't easily feel things on her head 🤣😂

My mom dropped some bacon and it landed on her ear 😂
I have been testing it out, like the good owner I am 😉😝

I feel like her pics can't fully express how cute she is! Her Lil bark that she uses to play with her great dane boyfriend is just aooo darn cute!!!!

It makes me giggle nonstop.
What a perfect Rosie pup!

#AmplifiedMusculoskeletalPainSyndrome #Arthritis #Asthma #Anxiety #AnkylosingSpondylitis #bedbound #BoneSplints #ChronicFatigueSyndrome #CheckInWithMe #ChronicPain #ChronicIllness #ComplexRegionalPainSyndrome #Depression #Fibromyalgia #Disability #DistractMe #EhlersDanlosSyndrome #Endometriosis #Eczema #GastroesophagealRefluxDisease #Grief #gallstones #HypothyroidismUnderactiveThyroidDisease #Hypersomnia #HighBloodPressure #PosturalOrthostaticTachycardiaSyndrome #PTSD #plantarfasciitis #Psoriasis #PsoriaticArthritis #PanicAttack #PanicAttacks #Psychosis #JuvenileRheumatoidArthritis #Insomnia #MentalHealth #MightyPets #MightyTogether #Migraine #MemoryLoss #RareDisease #RheumatoidArthritis #RestlessLegSyndrome #SuicidalThoughts #Scoliosis #sciatica #ShinSplints

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Love this so much!!!

So so so much of my life is sleeping. As a senior in high school my body was creating so much pain I would black out often so my body could get the rest it thought it needed.

Having such a messy schedule is its own problem but sleeping best during the day is still true to me.

I always ignored the doctors who said naps were the worst thing to do but I knew I felt a thousand times better after sleep. And if I didn't sleep, my already sky high pain would triple.

So I was up from 1Am to 6AM.
Now I am at waking at 6AM and then 3pm though it is forever Changing.

My best advice is to listen to your body, what does it NEED??
Not just want but Need too?

You are the You expert, show em how it is done!!!

#AmplifiedMusculoskeletalPainSyndrome #Arthritis Asthma #Anxiety #AnkylosingSpondylitis #bedbound #BoneSplints #ChronicFatigueSyndrome #CheckInWithMe #ChronicPain #ChronicIllness #ComplexRegionalPainSyndrome #Depression #Disability #DistractMe #EhlersDanlosSyndrome #Endometriosis #Eczema #Fibromyalgia #GastroesophagealRefluxDisease #Grief #gallstones #HypothyroidismUnderactiveThyroidDisease #Hypersomnia #HighBloodPressure #Insomnia #JuvenileRheumatoidArthritis #Upallnight #CheerMeOn #Lymphedema #PosturalOrthostaticTachycardiaSyndrome #PTSD #Psoriasis #PsoriaticArthritis #Psychosis #PanicAttack #PanicAttacks #plantarfasciitis #MentalHealth #MemoryLoss #MightyTogether #Migraine #RareDisease #RheumatoidArthritis #SuicidalThoughts #Scoliosis #sciatica

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