Eczema

I thought I would get better. But I am not. Finally had some holiday but it is soon over, reason why my anxiety is hitting hard. The worse is that it triggered my eczema. It was already hard enough to sleep without it but now it's even harder. Tonight's another sleepless night. (4am) Another thing I hate is how broke we are currently. I feel like any purchases we make just hurt any income we get. Anyway. Hope everyone's alright, if not, here's a picture of my kitty to cheer you up!

For me this has actually been a lifelong lesson. Amazing how 8 words of advice have been so hard for me to put into practice at times. Sadly in my life sometimes its taken for my body (and/or mind) to scream so loud that its been deafening enough for me to pay attention, yet I have found that even this can ebb & flow.

These days I'm pretty proud of how I’ve been taking care of myself. Its been basically 3+ years of very serious physical and mental struggles and I've learned that in the big picture no one else can take care of me and only I can deeply feel it when I don't.So I guess you could say I’ve been falling in love with myself!

*I've been eating much better (lots fruits, veggies & nuts especially...yet I love my milk and chocolate!)

*I’m exercising &/or doing home PT religiously. My spinal injuries have been part of that screaming voice quite a bit although its getting quieter, and as I told my first PT “I’m only going to get out of this what I put into it!” I've been at the gym regularly which is so empowering (plus its a really social place with great staff & members and I find it soooo mentally uplifting when I leave…knowing I'm taking care of myself)

*I actually was counting ounces of water I drank for a long while however now I'm doing great with that and carry bottles everywhere

*My holistic practice dropped off...then I found Box Breathing which I did before bed for awhile and I'm trying to get back to that, however I’ve found just stopping to breath and ground even for short moments throughout the day really makes a difference

*My spiritual practice is earth based and simple and so my church is nature and I pray to Great Spirit…my level of gratitude and reverence are stronger than ever!

*Now sleep...I will have to plead the fifth if I want to make other people happy about when I sleep, when I turns screens off, how much sleep I get etc…my stretch now is getting ENOUGH sleep and I'm exploring what my body can best function off with less meds. I've been very surprised how much less, yet in doing so I have maxxed myself out a lot recently! (its 6:00 am now, the birds are chirping as my music is lower. As a musician and deejay in college I never stopped being nocturnal. When I worked at the beach I always saw sunrises!!!... Then I went to sleep😉

Bottom line…

Life is a beautiful blessing, its a glorious day today, I got to see Mom & family for four days and that was good for my soul….and I'm going to keep smiling

Listen to your favorite music for a bit today
Go outside and wiggle your bare feet in the dirt
Eat a scrumptious piece of fruit or rich chocolate
HUG A FRIEND OR LOVED ONE…  or many…all day long!
(or a tree if you get out there and don't want to take your shoes off!

#MentalHealth #BipolarDisorder #BipolarDepression #Bipolar1 #Bipolar2 #ChronicIllness #ChronicPain #Disability #Selfcare #COVID19 #AddictionRecovery #Addiction #Arthritis #Headache #Migraine #Anxiety #Eczema #InsideTheMighty #Trauma #ADHD #Cancer #RareDisease #ObsessiveCompulsiveDisorder #BrainInjury #BackPain

Hey, y’all!🥰 Eczema? Dry, itchy skin? Check out what I use!❤️ youtu.be/o_50QqwUKCI #MyalgicEncephalomyelitis #ChronicFatigue #Fibromyalgia #HypothyroidismUnderactiveThyroidDisease #ChronicEpsteinBarrVirus

I definitely need to work on how often I vent frustration with the body I have been given. Every so often I have to stop and readjust my thoughts for the better, thanking my body for all it does to try to do what I want.
It does the best it can and I need to appreciate what it can offer.

#AmplifiedMusculoskeletalPainSyndrome #Arthritis #Asthma #Anxiety #AmplifiedMusculoskeletalPainSyndrome #bedbound #BoneSplints #ChronicFatigueSyndrome #CheckInWithMe #ChronicPain #ChronicIllness #ComplexRegionalPainSyndrome #Depression #Disability #DistractMe #EhlersDanlosSyndrome #Endometriosis #Fibromyalgia #GastroesophagealRefluxDisease #gallstones #HypothyroidismUnderactiveThyroidDisease #Eczema #Grief #Hypersomnia #HighBloodPressure #JuvenileRheumatoidArthritis #Insomnia #Lymphedema #PosturalOrthostaticTachycardiaSyndrome #PTSD #Psoriasis #PsoriaticArthritis #Psychosis #PanicAttack #PanicAttacks #plantarfasciitis #MentalHealth #MightyTogether #MajorDepressiveDisorder #MemoryLoss #Migraine #musclespasms #MultipleAutoimmuneSyndrome #RareDisease #RheumatoidArthritis #SuicidalThoughts #Scoliosis #ShinSplints

So many new things happening as of late.

Humera helped not a bit. The first month and a half felt great and it reminded me the good of being human. Five months later and my rheumatologist put me on a new medicine called Enbrel(amongst my 55 other meds I take for my many conditions).

I took my first dose on Sunday but I feel as bad as if I wasn't taking any meds whatsoever.

Years ago my EDS meant I had to learn to walk more carefully so I didn't dislocate my joints hundreds of times a day and using my tendons wrong, bruising them left and right. Now I have to relearn and the pain is simply horrific.

And my whole digestive system is a mess of course. Swallowing ten times just to get one bite down really takes any good out of food. Constant nausea and vomiting doesn't improve anything whatsoever.

And a hundred more symptoms of misery makes my huge mountain of existing even heavier.

Yeah I am blessed in many things but health or ease of existing are most definitely not on any of the lists.
Only a very cursed body that does work hard to try to do its best in aiding me, poor thing. Thankful for the small bit of good it tries to do while also wishing I could trade bodies with a healthy person for at least one day.

If only!😕🫤😔

Alas, I wait still for my new meds to start working with fingers crossed and tears streaming down.
Thank heaven that I at least have a few doctors that are trying!
Such a long 29 years of devastating suspense!!!

May the holidays bring the light and hope you deserve this season. And if not, may these Christmas lights on my family's tree lift your soul for even a small bit of time ✨️✨️✨️

#AmplifiedMusculoskeletalPainSyndrome #Arthritis #Asthma #Anxiety #AnkylosingSpondylitis #bedbound #BoneSplints #ChronicFatigueSyndrome #CheckInWithMe #ChronicPain #ChronicIllness #ComplexRegionalPainSyndrome #CheerMeOn #Upallnight #IfYouFeelHopeless #Depression #Disability #DistractMe #EhlersDanlosSyndrome #Endometriosis #Eczema #Fibromyalgia #GastroesophagealRefluxDisease #Grief #gallstones #HypothyroidismUnderactiveThyroidDisease #Hypersomnia #HighBloodPressure #Headache #JuvenileRheumatoidArthritis #Insomnia #Lymphedema #PosturalOrthostaticTachycardiaSyndrome #Psoriasis #PsoriaticArthritis #Psychosis #plantarfasciitis #PanicAttack #PanicAttacks #PTSD #MentalHealth #MightyTogether #MightyPets #Migraine #MemoryLoss #musclespasms #MultipleAutoimmuneSyndrome #RareDisease #RheumatoidArthritis #SuicidalThoughts #Scoliosis #sciatica #ShinSplints #Sleepwalking #MajorDepressiveDisorder #nightterrors

#AmplifiedMusculoskeletalPainSyndrome #Arthritis #Asthma #Anxiety #AnkylosingSpondylitis #bedbound #BoneSplints #ChronicFatigueSyndrome #CheckInWithMe #ChronicPain #ChronicIllness #ComplexRegionalPainSyndrome #EhlersDanlosSyndrome #Endometriosis #Eczema #Depression #Disability #DistractMe #Fibromyalgia #GastroesophagealRefluxDisease #Grief #gallstones #HypothyroidismUnderactiveThyroidDisease #Hypersomnia #HighBloodPressure #Insomnia #JuvenileRheumatoidArthritis #Headache #Lymphedema #PosturalOrthostaticTachycardiaSyndrome #PTSD #PanicAttack #PanicAttacks #Psoriasis #PsoriaticArthritis #Psychosis #MentalHealth #MightyPets #MemoryLoss #MightyTogether #Migraine #RareDisease #RheumatoidArthritis #Upallnight #IfYouFeelHopeless #SuicidalThoughts #Scoliosis #sciatica #ShinSplints #CheerMeOn #Hypersomnia #WakingNightmares #Sleepwalking #RestlessLegsSyndrome #plantarfasciitis #musclespasms #MultipleAutoimmuneSyndrome #MajorDepressiveDisorder