dislocations

Just wanted to introduce myself! I’m Jody, a fellow #Potsie I am 56 yo, however I feel so much older as I have a total of 15 dx chronic diseases. Unfortunately, a little more than 2 years ago, I was fainting just a little too much (lol… 🤣), as well as having "gray outs", and my wonderful doctor told me that I could no longer get behind the wheel of a car!! It’s really nice to have to depend on your 85 yo mom to drive you around (who we are not sure if she should/should not be driving distances & freeways) to doctor’s appointments, etc.
#livinglifeinafishbowl #PosturalOrthostaticTachycardiaSyndrome #saltlick #Dysautonomia #SmallFiberNeuropathy #MastCellActivationDisorder #Gastroparesis #EhlersDanlosSyndrome #Subluxations #dislocations #Fibromyalgia #ChronicMigraines #ChronicNausea #ChronicDiarrhea #chronicconstipation #MyalgicEncephalomyelitisChronicFatigueSyndrome #Osteoarthritis #RheumatoidArthritis #Facetarthritis #ChronicPain #Depression #Lonliness #bored #icantpeople

It happened a few times and it's very stressful. I suddenly wake up in the middle of the night to breath in. It happens on the extra flexible days, only when I sleep on my back. After these few times I figgured that my jaw relaxes too much and constricts my airways. My traumatomogist and my dentist were perplexed and didn't know what to suggest. I sleep with a mouthguard to not clench my jaw too much (otherwise muscles hurt so bad!). Any of you experience something similar?
#EDS #TMJ #dislocations #breathingproblems #Sleep

I have shoulder subluxations daily, and recently I’ve been dislocating my shoulders completely fairly often and I really need to find ways to avoid that. I’ve been doing strengthening exercises for my shoulders and back that my chiropractor gave me and they’ve been helping some. Any recommendations? I really don’t need anymore emergency chiropractic visits to put my shoulders back... #HEDS #dislocations #Subluxations

So I had to have my spine realined by #ManualTherapy 4 times in the past 3 days due to #Hypermobility . Yesterday I had 5 vertebrae partially dislocated in the morning, and different 4 ones in the evening... The doctor said I'm doing everything right, and my lifestyle choices are ok. But all of this #Pain is just so annoying. I can't help but feel that I'm doing something wrong or moving weird or.. IDK. I couldn't work a single day this week, as I was so dizzy. Couldn't even walk straight. It totally looked like I was drunk in the middle of the day 🤦‍♀️ Apparently my brain was getting only ~70% of bloodflow. Now that my spine is aligned again, I still have #BrainFog . As I'm writing this, I heard another pop in my neck 😳#GoodPopOrBadPop ? I wanna do stuff and not be bored laying in bed not moving, but my body is just saying 'nope'. #EDS sucks.

#CervicalSpineInstability #SpineProblem #EhlersDanlosSyndrome #dislocations #Subluxations #spinal subluxations

I’ve just recently been diagnosed with patella alta, hyper mobile Ehlers Danlos and have been dislocating knees and hips. Wondering if anyone has suggestions that aren’t hot/cold therapy and painkillers. Thanks xx #dislocations #Ehlers -danlos #Pain

I've been in severe pain for 4 days now. (it was 'just moderate' before) I haven't slept, I keep vomiting because of the pain. Even morfine combined with NSAID's doesn't help.
My #POTS is all over the place because of all the meds and not being able to drink enough.
My physical therapist tried to put the SI joint back, which seemed to help but after an hour it just popped back out of place. I've been in an out the doctor's office... They have no idea what else to try.
I feel so tired and hopeless since no one seems to have a solution...
I'd love to hear any suggestions, also on prevention.
Anyone who had a #Fusion done?

Stop trying to make me laugh at my pain. This is not a bdsm collar. Laughing actually hurts. Your efforts to cheer me up making my pain worse or more apparent. This is still an open wound , numbing it with laughing gas- wont work and is ignorant. Laughing at others pain has never been something I enjoyed, now it makes me sick. - Trying to ease your discomfort with my disability is not my responsibility. #EhlersDanlosSyndrome #ChronicPain #notfunny #Anxiety #createempathy #ChronicIllness #Braces #spineinjury #dislocations #Subluxations #Neuropathy