Mixed Connective Tissue Disease (MCTD)

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Mixed Connective Tissue Disease (MCTD)
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Zen 🧘‍♀️

Went home unbelievably nauseous with a migraine since I opened my eyes and I’ve been having a heck of a couple weeks. Yet getting to enjoy this - zen - my GSD girls - nature - a book - quite . Did I mention it’s 75 with a slight breeze blue sky’s and suns out. Ideal for me. #MixedConnectiveTissueDiseaseMCTD #MentalHealth #RheumatoidArthritis #AutonomicDysfunction #ADHD #Anxiety #ChronicFatigue #RaynaudsPhenomenon

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Mirror

Better at giving good advice than taking it. How can I naturally give sound advice , but I have a hard time using my own advice to help myself . Why do my words tend to help others but it just goes in and out a ear when it comes to me. #depresison #MentalHealth #AutonomicDysfunction #MixedConnectiveTissueDiseaseMCTD #RaynaudsPhenomenon #RheumatoidArthritis #Anxiety

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Off Switch

Anyone know where the off switch is ?! Brain just keeps going and going it’s Friday afternoon (530pm) and I’m still wound tight - sitting out in nature for the last hour on my swing . Trying to settle . Where is that dang switch ? #MentalHealth #Anxiety #MixedConnectiveTissueDiseaseMCTD #RaynaudsPhenomenon #RheumatoidArthritis #AutonomicDysfunction

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Lane Issues

Guidence needed: how to handle when someone asks you to stay in your lane when the only reason you feel a compulsion to act is because someone else is falling flat on there responsabies. So you agree shrink yourself (which triggers a childhood traums of always having to be presentable and on your A game but blend into the background and try not to be noticed) . As you watch things catch fire because your not stepping in to fix it. I know i am at fault - what to do. In my head its helping and being a team player.
There head im over stepping. Yet when i step back im just asked a million questions and being asked to give them validation on there decision. Its dumb. Why do i need to shrink myself - to make them feel valid but still have to hold there hand. If i decline im being petty and moody. What people don’t see is I’ve already shrunk myself due to medical I am not at the full capacity I once used to be. Sorry a bit off topic from your great post I read - #MixedConnectiveTissueDiseaseMCTD #RaynaudsPhenomenon #RheumatoidArthritis #MentalHealth #AutonomicDysfunction #Anxiety #ChronicFatigue

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Cracked

Feeling …. Exactly that nothing . Have an inevitable cloud that’s been hanging around for the last couple of years. Getting harder to see the light in the lining. Stuck. Social life is non existent. Relationship is like a rock stuck in a stream. Work is driving me insane- not the work load but the people. Major communication issues in the place and my personality with my drive does not function well in the environment. Therapy helps some but spend more time talking about others than my own issues. Processing and handling things is an extreme high and I get worked up or it’s no existent and I’ve lost the ability to care. Body is the same , different days different pains . #MentalHealth #MixedConnectiveTissueDiseaseMCTD #RaynaudsPhenomenon #AutonomicDysfunction #ChronicFatigue #Anxiety #DepressiveDisorders #RheumatoidArthritis

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Realization

I’ve come to the realization that I’m going to need to up my therapy sessions from bi weekly to weekly. My insurance with cover it thankfully .

I started therapy to work on healing my inner child that needless to say wasn’t great time for me . That of what I remember. Mind you I can’t remember earlier than 15 and even what I remember from 15 to current is splotchy at best. Lots of blacked out moments . I see it in photos don’t recall it etc etc .

Then when I get there lately my current life I am living is becoming of subject. To be honest I think I’ve talked more about the gray hairs a 16 almost 17 year old step daughter is giving me and the household .

I’m not even sure what I’m working on at this point besides decompressing .

Trying to pull myself out of this stagnet rut I’m in . There’s no order .

#MentalHealth #Anxiety #MixedConnectiveTissueDiseaseMCTD #ADHD #RaynaudsPhenomenon #AutonomicDysfunction #POTS #Depression #RheumatoidArthritis

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What We Give

Sometimes we show the picture we paint for the world to see

A trickling laugh
Beaming eyes
And a seemingly permanent smile

Even though you were crying in the docs office 10 minutes prior

Heck, your still embarrassed you cried in the doctors office, Because you promised yourself you would never do that .

But here you are
Sitting on a creaky hospital chair
Waiting to be called back for an Xray
Feeling .. As weak as the skeletal structure that holds a body that feels unfit for the job it was made to do.

But still you ask the awesome lady at the front desk how her day has been

Compliment the lady with the cute shirt next to you.

Still you smile when the radiology tech calls your name , and respond to “ how are you doing “ with
“ I’m alright “

Even when you feel far from it

Hug a friend you see in the hallway

Because life is hard for all of us .

And one of the main things life has taught me is

Sometimes it’s more important to help create joy

Than share your pain #ChronicIllness #RareDisease #AutoimmuneDisease #CommonVariableImmuneDeficiency #MastCellActivationDisorder #MentalHealth #Migraine #ChronicPain #MixedConnectiveTissueDiseaseMCTD

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|+_)(*&^%$#@!*-+

I did not know what my title should be since I am having some major issues right now because of all my autoimmune diseases, mental health issues, and a host of other medical problems. I am having a major problem focusing on one task and getting it done. While I am trying to accomplish that task another task surfaces in my brain and I tell myself I should do that one because it will make the first task easier to finish. Before I can get started on any task a whole host of other tasks I need to do. That's when I become so overwhelmed I don't do anything. That is when the anxiety and depression over take me and I just shut my brain down so I can cope. I would like to see a psychiatrist but have been unable to find one who accepts insurance and we cannot afford to cash pay. I also suffer with #Fibromyalgia , #Bipolar2 , #PTSD , #ChronicPain , #MixedConnectiveTissueDiseaseMCTD , #GranulomatosisWithPolyangiitis , Buerger's Disease, #Kidney Transplant, #type 2 Diabetes, #Brain Fog

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Checked out this year

Mentally checked out.
Hardly keeping up.
Running myself into the ground day in day out.
These last two years have been tough.
Trying not being on autopilot all the time .
Not feeling like I’m living, just going through the motions .
Am I happy ? Am I not ?
#MixedConnectiveTissueDiseaseMCTD #MentalHealth #RaynaudsPhenomenon #RheumatoidArthritis #AutonomicDysfunction

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