Mixed Connective Tissue Disease (MCTD)

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Mixed Connective Tissue Disease (MCTD)
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I'm new here!

Hi, my name is ewewhu. I'm here because I have MCTD, my oldest daughter has Lupus/fibromyalgia and my youngest has fibromyalgia. Looking for whatever info to help any of us.

#MightyTogether

2 reactions
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Supermarket lights and Lupus rash

I have just returned to my job in a supermarket and I have experienced my lupus rash appearing on my face, does anyone find that the lights in supermarkets trigger it for them ? #Lupus #MixedConnectiveTissueDiseaseMCTD
#SystemicLupusErythematosus

1 reaction
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I’m new here!

Hi, my name is MoniCat. I've been diagnosed with SLE and Sjogrens. Possibly MCTD with dematamyositis after feeling like garbage for years. I have relief now that I finally know I’m not crazy but now I’m scared because I’m not crazy and there is something wrong with me. I need to connect to learn how to manage, what helps, what hurts, and find support.

#MightyTogether #Lupus

5 reactions 2 comments
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Hi everyone I'm somewhat new here. I have Fibro and chronic fatigue syndrome plus a rare autoimmune dis MCTD dis plus osteoarthritis and osteoporosis and others.I love how this group is helpful and upbeat I need that just wanted to finally make intro.Lord Bless.❤

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Symptoms Overload

Recently January 12 to be exact this year I was taken off 2.5mg dosage of Prednisone. I’ve been on a combination of 5mg and 2.5mg sense December 2021. I ran out and doctor took me off it in full .

I have had nothing but bad side effects from being taken off a steroid that I have been on for 1+. As of recent is a full blown rash like symptom covering my face.

Anyone else ? #MixedConnectiveTissueDiseaseMCTD #RaynaudsPhenomenon

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I’m new here!

Hi, my name is Jyl1960. I've been diagnosed with MCTD and Behçet’s

#MightyTogether #mixedconnectivetissuedisease(MCTD)

3 reactions 2 comments