Mixed Connective Tissue Disease (MCTD)

I did not know what my title should be since I am having some major issues right now because of all my autoimmune diseases, mental health issues, and a host of other medical problems. I am having a major problem focusing on one task and getting it done. While I am trying to accomplish that task another task surfaces in my brain and I tell myself I should do that one because it will make the first task easier to finish. Before I can get started on any task a whole host of other tasks I need to do. That's when I become so overwhelmed I don't do anything. That is when the anxiety and depression over take me and I just shut my brain down so I can cope. I would like to see a psychiatrist but have been unable to find one who accepts insurance and we cannot afford to cash pay. I also suffer with #Fibromyalgia , #Bipolar2 , #PTSD , #ChronicPain , #MixedConnectiveTissueDiseaseMCTD , #GranulomatosisWithPolyangiitis , Buerger's Disease, #Kidney Transplant, #type 2 Diabetes, #Brain Fog

Mentally checked out.
Hardly keeping up.
Running myself into the ground day in day out.
These last two years have been tough.
Trying not being on autopilot all the time .
Not feeling like I’m living, just going through the motions .
Am I happy ? Am I not ?
#MixedConnectiveTissueDiseaseMCTD #MentalHealth #RaynaudsPhenomenon #RheumatoidArthritis #AutonomicDysfunction

Hi, my name is Zebritis. I'm here because I want real answers.

#MightyTogether #Dysautonomia #AuditoryProcessingDisorder #Anxiety #HemiplegicMigraine #Epilepsy #MixedConnectiveTissueDiseaseMCTD

Hi, my name is LoveroftheWorld. I'm here because I love reading and writing about life with chronic illness.

#MightyTogether #MixedConnectiveTissueDiseaseMCTD

Feeling forgotten by friends and loved ones. Some new stepping up to the plate.

Life is so weird like that. We know we will pass through chapters and stages throughout life some coming and some going .

Just can’t wrap my head around just poof “bye” as soon as i am not readily available at everyone’s request.

I still overly push myself which I know is at times doing more harm than good for my body but I need to push for the sanity of my mind.

Even before i became unexpectedly ill I’ve felt like people just would use me and toss me when i was no longer of use. Now I just feel like this happens even quicker .

Just scattered thoughts . Has anyone else noticed how people act around them has changed ?

#MentalHealth #Depression #AutonomicDysfunction #POTS #RaynaudsPhenomenon #RheumatoidArthritis #MixedConnectiveTissueDiseaseMCTD

Hi, my name is Quay. I'm here because

#MightyTogether #MixedConnectiveTissueDiseaseMCTD

Needless to say nothings really changed for the better . Not necessarily the worst either.

I started embrel for my arthritis and I’m really not sure how I feel about it but I really don’t want to get back on prednisone . Equally aren’t the greatest. “Do the pros out way the cons . “

Therapy has been going good it’s kinda nice just to be able to talk to someone who’s not only studied it but lived with trauma as well and acts on her own suggestions for herself. Example: breathing exercises, does it on perineal tone / with clients to help / and recommends it .

Personal life feel like a rock stuck on the side of a river . Watching as life goes by .

Medical sometime I feel stronger most the time I feel weaker . Some days are better than others but over all auto pilot and suck. Between one condition flaring up another etc etc .

I’m having a hard time taking my medicine . It’s just like my brain is like “NO”. Squirrel and I get side tracked and don’t remember to do it . Even logging medical symptoms is tedious and just don’t have the will.

I’ve missed you old friends
#MixedConnectiveTissueDiseaseMCTD #AutonomicDysfunction #Depression #Anxiety #MentalHealth #RaynaudsPhenomenon #RheumatoidArthritis

Both my kids are persevering with multiple serious medical problems. I’m a single mom with very limited family, friend and community support. I’ve nearly died three times this year and 1-2 times every year for the past six years. My kids are very depressed about almost losing me again. My kids both have treatment resistant depression, CPTSD, endometriosis/ademomyosis,
rheumatoid arthritis, Crohn’s, epilepsy, polymigratory arthritis, degenerative spine disease, scoliosis, reynaud’s syndrome, cardiac issues, migraines and fibromyalgia, complex regional pain syndrome. The crushing guilt of being an ineffective mother, giving birth to two children who each have 5-6 illnesses inherited from me and their father who hurt them physically and emotionally especially when I was in the hospital getting 8 reconstructive spine surgeries with hardware, screws, plates in nine years covering most of my spine. My son is autistic spectrum disorder high functioning and affectionate. I’m so lucky to be here for my kids with my kids. I understand that without emergency surgery and a fully invasive opening, I wouldn’t be here today. I’m grateful to Gd for saving me. What have I done to my kids. I wasn’t so sick when I got pregnant. I didn’t know when I got pregnant that the kids father’s side has most of the same illnesses and there are many. Now both my kids, as they mature, their health diagnoses increase to longer terrifying lists of diagnoses including many of my dozens of disorders including from Crohn’s, epilepsy, an unspecified connective tissue disorders, immune modulatory disorder, endometriosis, interstitial cystitis, seronegative rheumatoid arthritis, primary immunodeficiency disorder, MGUS/multiple myeloma (monoclonal gammopathy of unknown significance), demyelinating syndrome like MS without known disease prognosis. This year I almost died three times from necrotic aspiration pneumonia with large abscesses in my lungs. I am eligible for the reversal ileostomy surgeries (2 surgeries- the first 8-10 hours is almost as devastating as the emergency colectomy. There’s a small window (4months) when surgeons can do this. It’s my only chance to get my life back to live w/o an ostomy. It’s a long process after surgery and the stoma is repaired in a follow up surgery. I need this surgery. It’s a long long recovery and major surgery with many complications. How can I do this to my family? I worry that my son & daughter can’t handle this much disruption, stress, sadness. We have such little support and no one called my kids to check on them as the plan we created was supposed to happen in emergencies. No one called. Every one gave excuses, so disappointing. Such a problem for future surgeries. I know they should be independent by now yet given their medical status, being an independent young adult is very challenging. I’m so thankful to my daughter who has been helpful beyond any thing I could have hoped for. She’s incredibly giving and loving to me. It’s hard to be here. Not functional, not effective.

#UndifferentiatedConnectiveTissueDisease #MixedConnectiveTissueDiseaseMCTD # primaryimmunodeficiencydisorder #PrimaryImmunodeficiency #AutoimmuneImmunodeficiency #CrohnsDisease #PTSD #ComplexPosttraumaticStressDisorder #ComplexRegionalPainSyndrome #CongenitalHeartDefect #Epilepsy #RheumatoidArthritis #DegenerativeDiscDisease #Scoliosis #InterstitialCystitis #Pneumonia #AspirationPneumonia
#necroticpneumonia
#Gastroparesis #gastrointesinlbleed #RheumatoidArthritis #singleparent #SjogrensSyndrome #DiffuseIdiopathicSkeletalHyperostosis #Diabetes #ComplexPosttraumaticStressDisorder #Ileostomy #Colectomy